Design and methods for understanding the state of cystic fibrosis care amid the COVID-19 pandemic

[1]  G. Sawicki,et al.  Remote monitoring in telehealth care delivery across the U.S. cystic fibrosis care network. , 2021, Journal of cystic fibrosis : official journal of the European Cystic Fibrosis Society.

[2]  G. Oates,et al.  Telehealth use in cystic fibrosis during COVID-19: Association with race, ethnicity, and socioeconomic factors , 2021, Journal of Cystic Fibrosis.

[3]  G. Sawicki,et al.  Patient and family experience of telehealth care delivery as part of the CF chronic care model early in the COVID-19 pandemic , 2021, Journal of Cystic Fibrosis.

[4]  A. Stephenson.  Financial impacts of the COVID-19 pandemic on cystic fibrosis care: Lessons for the future (Commentary) A.L. Stephenson , 2021, Journal of Cystic Fibrosis.

[5]  S. Ranganathan.  Commentary on: “Evaluating barriers and promotors of telehealth during the COVID-19 pandemic at cystic fibrosis programs to inform new models of CF care” , 2021, Journal of Cystic Fibrosis.

[6]  P. Ryan,et al.  Journal of Cystic Fibrosis , 2022 .

[7]  E. Dasenbrook,et al.  Managing Cystic Fibrosis related diabetes via telehealth during COVID-19 pandemic , 2021, Journal of Clinical & Translational Endocrinology.

[8]  G. Sawicki,et al.  Favorable Clinician Acceptability of Telehealth as Part of the Cystic Fibrosis Care Model during the COVID-19 Pandemic , 2021, Annals of the American Thoracic Society.

[9]  Rachel J. Bacon,et al.  The Role of Telehealth During the COVID-19 Pandemic Across the Interdisciplinary Cancer Team: Implications for Practice , 2020, Seminars in Oncology Nursing.

[10]  M. Compton,et al.  Preserving Multidisciplinary Care Model and Patient Safety During Reopening of Ambulatory Cystic Fibrosis Clinic for Nonurgent Care: A Hybrid Telehealth Model. , 2020, Telemedicine journal and e-health : the official journal of the American Telemedicine Association.

[11]  Alycia A Bristol,et al.  Family- and Person-Centered Interdisciplinary Telehealth: Policy and Practice Implications Following Onset of the COVID-19 Pandemic. , 2020, Journal of gerontological nursing.

[12]  J. Davies.  The coronavirus pandemic has forced rapid changes in care protocols for cystic fibrosis , 2020, Nature.

[13]  M. O’Connor,et al.  Using Video Telehealth to Deliver Patient-Centered Collaborative Care: The G-IMPACT Pilot , 2020, Clinical gerontologist.

[14]  Centaine L Snoswell,et al.  Telehealth for global emergencies: Implications for coronavirus disease 2019 (COVID-19) , 2020, Journal of telemedicine and telecare.

[15]  Xin Zhou,et al.  Risk Factors Associated With Acute Respiratory Distress Syndrome and Death in Patients With Coronavirus Disease 2019 Pneumonia in Wuhan, China , 2020, The Journal of Emergency Medicine.

[16]  G. Sawicki,et al.  Healthcare expenditures for privately insured US patients with cystic fibrosis, 2010‐2016 , 2018, Pediatric pulmonology.

[17]  S. Mulrennan,et al.  Telehealth clinics increase access to care for adults with cystic fibrosis living in rural and remote Western Australia , 2017, Journal of telemedicine and telecare.

[18]  Ben Birkman,et al.  The Cystic Fibrosis Foundation , 2017 .

[19]  Aliza K Fink,et al.  The Cystic Fibrosis Foundation Patient Registry. Design and Methods of a National Observational Disease Registry. , 2016, Annals of the American Thoracic Society.

[20]  Umer Khan,et al.  Clinical mechanism of the cystic fibrosis transmembrane conductance regulator potentiator ivacaftor in G551D-mediated cystic fibrosis. , 2014, American journal of respiratory and critical care medicine.

[21]  E. Nelson,et al.  Accelerating implementation of biomedical research advances: critical elements of a successful 10 year Cystic Fibrosis Foundation healthcare delivery improvement initiative , 2014, BMJ quality & safety.

[22]  Laura Marrow,et al.  Improving chronic care delivery and outcomes: the impact of the cystic fibrosis Care Center Network , 2014, BMJ quality & safety.

[23]  J. Alison,et al.  Telehealth in cystic fibrosis: a systematic review , 2012, Journal of telemedicine and telecare.