Quality of Life in Pediatric Patients with Continent Urinary Diversion—A Single Center Experience

Background and Objectives: The advancement of surgical strategies in various types of urological conditions has resulted in improved functional outcomes, but the issues of patient perception and life quality remain difficult to assess, particularly in pediatric populations. We aimed to critically analyze the outcomes of urinary continent diversion in pediatric patients treated in our institution for various bladder conditions. Materials and Methods: We conducted a cross-sectional study, reviewing the records of patients treated for bladder evacuation problems between 2003 and 2014, and analyzing the data of those with continent urinary diversion. We used two types of questionnaires to assess the impact on life quality: the Qualiveen-30 and the SF-36 Health Survey. Results: The study included one hundred thirty-four patients with bladder conditions, and eight underwent urinary diversion, at a median age of 6.5 years. Seven of them, aged 10–23 years, completed questionnaires, with all seven scoring high on physical functioning scale but low on the social functioning scale. Conclusions: Continent urinary diversion remains the treatment of choice in well selected patients, but the results must be considered both in terms of functional outcomes and the impact on these patients’ emotional and mental health.

[1]  I. Sârbu,et al.  Pediatric and Adolescent Oncofertility in Male Patients—From Alpha to Omega , 2021, Genes.

[2]  Julián Chavarriaga,et al.  Self-perception, quality of life and ease of catheterization in patients with continent urinary diversion with the mitrofanoff principle , 2020, International braz j urol : official journal of the Brazilian Society of Urology.

[3]  P. Dik,et al.  Techniques Used to Create Continent Catheterizable Channels: A Comparison of Long-term Results in Children. , 2017, Urology.

[4]  J. Martins,et al.  Quality of Life of Intermittent Urinary Catheterization Users and Their Caregivers: A Scoping Review , 2017, Worldviews on evidence-based nursing.

[5]  D. Clayton,et al.  Update on Continent Catheterizable Channels and the Timing of their Complications , 2017, The Journal of urology.

[6]  C. E. Fonseca,et al.  Quality of life evaluation of patients with neurogenic bladder submitted to reconstructive urological surgeries preserving the bladder , 2015, International braz j urol : official journal of the Brazilian Society of Urology.

[7]  D. Bägli,et al.  Long-term followup and time to event outcome analysis of continent catheterizable channels. , 2011, The Journal of urology.

[8]  D. Carroll,et al.  Health-Related Quality of Life in Patients Reliant Upon Mitrofanoff Catheterisation , 2011, European journal of pediatric surgery : official journal of Austrian Association of Pediatric Surgery ... [et al] = Zeitschrift fur Kinderchirurgie.

[9]  M. Farrugia,et al.  Educational article: The Mitrofanoff procedure. , 2010, Journal of pediatric urology.

[10]  A. Macneily,et al.  Health related quality of life in patients with spina bifida: a prospective assessment before and after lower urinary tract reconstruction. , 2009, The Journal of urology.

[11]  A. Farkas,et al.  Quality of life: urinary bladder augmentation or substitution in children , 2009, Pediatric Surgery International.

[12]  V. Agrawal,et al.  The continent, catheterizable abdominal conduit in adult urological practice , 2008, BJU international.

[13]  G. Guyatt,et al.  Measuring quality of life in multiple sclerosis patients with urinary disorders using the Qualiveen questionnaire. , 2004, Archives of physical medicine and rehabilitation.

[14]  C. Eiser,et al.  Current approaches to assessing the quality of life in children and adolescents , 2003, BJU international.

[15]  A. Diokno,et al.  CLEAN, INTERMITTENT SELF‐CATHETERIZATION IN THE TREATMENT OF URINARY TRACT DISEASE , 2002, The Journal of urology.

[16]  A. Liard,et al.  The Mitrofanoff procedure: 20 years later. , 2001, The Journal of urology.

[17]  P. Marquis,et al.  Quality of Life in Spinal Cord Injury Patients with Urinary Difficulties , 2000, European Urology.

[18]  C. F. Harris,et al.  Appendicovesicostomy: the mitrofanoff procedure-a 15-year perspective. , 2000, The Journal of urology.

[19]  M. Cain,et al.  Appendicovesicostomy and newer alternatives for the Mitrofanoff procedure: results in the last 100 patients at Riley Children's Hospital. , 1999, The Journal of urology.

[20]  Christine Eiser,et al.  Measuring quality of life , 1997, Archives of disease in childhood.

[21]  C. Harris,et al.  Assessment of health-related quality of life in children and adolescents: an integrative review. , 1996, Journal of pediatric psychology.

[22]  C. McHorney,et al.  The MOS 36‐Item Short‐Form Health Survey (SF‐36): II. Psychometric and Clinical Tests of Validity in Measuring Physical and Mental Health Constructs , 1993, Medical care.

[23]  C. Sherbourne,et al.  The MOS 36-Item Short-Form Health Survey (SF-36) , 1992 .

[24]  D. Webb,et al.  A 15-year follow-up of 406 consecutive spinal cord injuries. , 1984, British journal of urology.

[25]  W O Geisler,et al.  Survival in traumatic spinal cord injury , 1983, Paraplegia.

[26]  R. Hackler A 25-year prospective mortality study in the spinal cord injured patient: comparison with the long-term living paraplegic. , 1977, The Journal of urology.

[27]  K. Hickey,et al.  Key elements of bladder and Bowel management for children with spinal cord injuries. , 2005, SCI nursing : a publication of the American Association of Spinal Cord Injury Nurses.

[28]  E. D. da Silva Re: Appendicovesicostomy: the Mitrofanoff procedure--a 15-year perspective. , 2000, The Journal of urology.

[29]  H. Kuo Clinical outcome and quality of life after enterocystoplasty for contracted bladders. , 1997, Urologia internationalis.

[30]  C. Mahony The impact of continence problems on self-esteem. , 1997, Nursing Times.

[31]  Ware J.E.Jr.,et al.  THE MOS 36- ITEM SHORT FORM HEALTH SURVEY (SF- 36) CONCEPTUAL FRAMEWORK AND ITEM SELECTION , 1992 .

[32]  P. Mitrofanoff [Trans-appendicular continent cystostomy in the management of the neurogenic bladder]. , 1980, Chirurgie pediatrique.