Primary Care–Based Memory Clinics: Expanding Capacity for Dementia Care*

RÉSUMÉ La mise en oeuvre en l’Ontario de 15 cliniques interprofessionnelles des troubles de la mémoire à base de soins primaires représente un modèle unique de gestion de cas en équipe, visant à accroître la capacité de traitement de la démence au niveau des soins primaires. Chaque clinique a suivi les patients; dans un sous-ensemble des cliniques, des graphiques ont été vérifiés par les gériatres, les membres de la clinique ont été interrogés, et les patients, les soignants et les médecins traitants ont rempli des questionnaires de satisfaction. Dans toutes les cliniques, 582 patients ont été évalués, et 8,9 pour cent ont été adressés à un spécialiste. Les patients et les soignants étaient très satisfaits des soins reçus, de même que les médecins traitants de la famille, qui ont déclaré une augmentation de la capacité à gérer la démence. La vérification des dossiers des gériatres a révélé un niveau élevé d'accord avec le diagnostic et la gestion. Cette étude a démontré l'acceptabilité, la faisabilité et l'efficacité préliminaire du modèle de clinique des troubles de la mémoire de soins primaires. Dirigée par les médecins de famille spécialement formés, il a fourni un accès en temps opportun à la haute qualité des soins de la démence collaboratives, affectant recours aux services de santé par une utilisation plus efficace des maigres ressources spécialisées en gériatrie. ABSTRACT The implementation in Ontario of 15 primary-care–based interprofessional memory clinics represented a unique model of team-based case management aimed at increasing capacity for dementia care at the primary-care level. Each clinic tracked referrals; in a subset of clinics, charts were audited by geriatricians, clinic members were interviewed, and patients, caregivers, and referring physicians completed satisfaction surveys. Across all clinics, 582 patients were assessed, and 8.9 per cent were referred to a specialist. Patients and caregivers were very satisfied with the care received, as were referring family physicians, who reported increased capacity to manage dementia. Geriatricians’ chart audits revealed a high level of agreement with diagnosis and management. This study demonstrated acceptability, feasibility, and preliminary effectiveness of the primary-care memory clinic model. Led by specially trained family physicians, it provided timely access to high-quality collaborative dementia care, impacting health service utilization by more-efficient use of scarce geriatric specialist resources.

[1]  D. Jolley,et al.  Gnosall Primary Care Memory Clinic: Eldercare facilitator role description and development , 2015, Dementia.

[2]  W. Weston,et al.  Ensuring the Success of Interprofessional Teams: Key Lessons Learned in Memory Clinics* , 2013, Canadian Journal on Aging / La Revue canadienne du vieillissement.

[3]  W. Weston,et al.  Developing Memory Clinics in Primary Care: An Evidence‐Based Interprofessional Program of Continuing Professional Development , 2013, The Journal of continuing education in the health professions.

[4]  D. Jolley,et al.  Putting personalisation and integration into practice in primary care , 2013 .

[5]  C. Brayne,et al.  Political drive to screen for pre-dementia: not evidence based and ignores the harms of diagnosis , 2013, BMJ : British Medical Journal.

[6]  Janet B W Williams,et al.  Diagnostic and Statistical Manual of Mental Disorders , 2013 .

[7]  W. Weston,et al.  Structured approach to patients with memory difficulties in family practice. , 2013, Canadian family physician Medecin de famille canadien.

[8]  M. Borrie,et al.  Specialist Physicians in Geriatrics—Report of the Canadian Geriatrics Society Physician Resource Work Group* , 2012, Canadian geriatrics journal : CGJ.

[9]  Linda Lee,et al.  Improving the system of care for older adults with dementia: Building capacity at the primary care level , 2012, Alzheimer's & Dementia.

[10]  H. Bussche Differences between clinical guidelines and daily care for dementia in Germany: A comparison based on health services research data , 2012, Alzheimer's & Dementia.

[11]  M. O. Olde Rikkert,et al.  Effectiveness of dementia follow-up care by memory clinics or general practitioners: randomised controlled trial , 2012, BMJ : British Medical Journal.

[12]  C. Sadowsky,et al.  Practical Guidelines for the Recognition and Diagnosis of Dementia , 2012, The Journal of the American Board of Family Medicine.

[13]  Chris G Maher,et al.  Drugs for relief of pain in patients with sciatica: systematic review and meta-analysis , 2012, BMJ : British Medical Journal.

[14]  S. McPherson,et al.  Finding Dementia in Primary Care: The Results of a Clinical Demonstration Project , 2012, Journal of the American Geriatrics Society.

[15]  Amanda Connolly,et al.  Underdiagnosis of dementia in primary care: Variations in the observed prevalence and comparisons to the expected prevalence , 2011, Aging & mental health.

[16]  E. Walker,et al.  Diagnostic and Statistical Manual of Mental Disorders , 2013 .

[17]  W. Weston,et al.  Building capacity for dementia care: training program to develop primary care memory clinics. , 2011, Canadian family physician Medecin de famille canadien.

[18]  J. M. MacNeil Vroomen,et al.  The accuracy of family physicians' dementia diagnoses at different stages of dementia: a systematic review , 2011, International journal of geriatric psychiatry.

[19]  M. Boustani,et al.  Implementing dementia care models in primary care settings: The Aging Brain Care Medical Home , 2011, Aging & mental health.

[20]  P. Stolee,et al.  Enhancing Dementia Care: A Primary Care–Based Memory Clinic , 2010, Journal of the American Geriatrics Society.

[21]  L. Boise,et al.  The Rural Older Adult Memory (ROAM) Study: A Practice-based Intervention to Improve Dementia Screening and Diagnosis , 2010, The Journal of the American Board of Family Medicine.

[22]  F. Massoud,et al.  Care of dementia in Canada: A collaborative care approach with a central role for the primary care physician , 2010, The journal of nutrition, health & aging.

[23]  D. Jolley,et al.  National Dementia Strategy: well intentioned--but how well founded and how well directed? , 2010, The British journal of general practice : the journal of the Royal College of General Practitioners.

[24]  W. Rosser,et al.  Patient-centered medical homes in Ontario. , 2010, The New England journal of medicine.

[25]  Robyn Tamblyn,et al.  Doctor scores on national qualifying examinations predict quality of care in future practice , 2009, Medical education.

[26]  Hardeep Singh,et al.  Missed and Delayed Diagnosis of Dementia in Primary Care: Prevalence and Contributing Factors , 2009, Alzheimer disease and associated disorders.

[27]  R. Wootton,et al.  Differences in diagnosis for cognitive assessment following an in-person physical examination versus a telegeriatric evaluation , 2009, Alzheimer's & Dementia.

[28]  N. Pimlott,et al.  Family physicians and dementia in Canada: Part 2. Understanding the challenges of dementia care. , 2009, Canadian family physician Medecin de famille canadien.

[29]  Jenny Basran,et al.  Improving access to dementia care: Development and evaluation of a rural and remote memory clinic , 2009, Aging & mental health.

[30]  I. Scott,et al.  Chronic disease management: a primer for physicians , 2008, Internal medicine journal.

[31]  R. Wootton,et al.  PHYSICAL EXAMINATION AND DIAGNOSIS OF DEMENTIA FOR VIDEO CONSULTATION , 2008, Journal of the American Geriatrics Society.

[32]  H. Fillit Commentary on “The Third Canadian Consensus Conference on the Diagnosis and Treatment of Dementia, 2006.” Clinical guidelines are not enough: System-wide, population-based programs are needed to improve the care of patients with Alzheimer’s disease and related dementias , 2007, Alzheimer's & Dementia.

[33]  P. Aisen Commentary on “The Third Canadian Consensus Conference on the Diagnosis and Treatment of Dementia, 2006.”—An appraisal , 2007, Alzheimer's & Dementia.

[34]  Frederick A. Schmitt,et al.  Should older adults be screened for dementia? It is important to screen for evidence of dementia! , 2007, Alzheimer's & Dementia.

[35]  S. Straus,et al.  Lost in knowledge translation: Time for a map? , 2006, The Journal of continuing education in the health professions.

[36]  Naihua Duan,et al.  The Effect of a Disease Management Intervention on Quality and Outcomes of Dementia Care , 2006, Annals of Internal Medicine.

[37]  N. Pimlott,et al.  Management of dementia by family physicians in academic settings. , 2006, Canadian family physician Medecin de famille canadien.

[38]  E. Wenghofer,et al.  Physician‐patient encounters: The structure of performance in family and general office practice , 2006, The Journal of continuing education in the health professions.

[39]  Malaz A Boustani,et al.  Effectiveness of collaborative care for older adults with Alzheimer disease in primary care: a randomized controlled trial. , 2006, JAMA.

[40]  L. Clare,et al.  ‘It's like a revolving door syndrome’: Professional perspectives on models of access to services for people with early-stage dementia , 2006, Aging & mental health.

[41]  A. Wu,et al.  Clinical practice guidelines and quality of care for older patients with multiple comorbid diseases: implications for pay for performance. , 2005, JAMA.

[42]  Katrina M. Krause,et al.  Is There Time for Management of Patients With Chronic Diseases in Primary Care? , 2005, The Annals of Family Medicine.

[43]  J. Gaugler,et al.  Early community-based service utilization and its effects on institutionalization in dementia caregiving. , 2005, The Gerontologist.

[44]  Jenenne A Geske,et al.  Physicians' perspectives on caring for cognitively impaired elders. , 2005, The Gerontologist.

[45]  Malcolm Man-Son-Hing,et al.  In-office evaluation of medical fitness to drive: practical approaches for assessing older people. , 2005, Canadian family physician Medecin de famille canadien.

[46]  C. Teel,et al.  Rural practitioners’ experiences in dementia diagnosis and treatment , 2004, Aging & mental health.

[47]  Carol Roth,et al.  Restructuring Primary Care Practices to Manage Geriatric Syndromes: The ACOVE‐2 Intervention , 2003, Journal of the American Geriatrics Society.

[48]  U. P. S. T. Force Screening for dementia: recommendations and rationale. , 2003, The American journal of nursing.

[49]  Steve Iliffe,et al.  Dementia: issues in early recognition and intervention in primary care. , 2003, Journal of the Royal Society of Medicine.

[50]  U. P. S. T. Force,et al.  Screening for Dementia: Recommendation and Rationale , 2003, Annals of Internal Medicine.

[51]  I. McKeith,et al.  How do memory clinics compare with traditional old age psychiatry services? , 2001, International journal of geriatric psychiatry.

[52]  C. Caltagirone,et al.  Guidelines for the diagnosis of dementia and Alzheimer's disease , 2000, Neurological Sciences.

[53]  K. Buckwalter,et al.  Emotional and physical health of spouse caregivers of persons with Alzheimer's disease and stroke. , 1999, Journal of advanced nursing.

[54]  D. Ames,et al.  Do memory clinics improve the quality of life of carers? A randomized pilot trial , 1999, International journal of geriatric psychiatry.

[55]  C. Patterson,et al.  The Recognition, Assessment and Management of Dementing Disorders: Conclusions from the Canadian Consensus Conference on Dementia , 1999, Canadian Journal of Neurological Sciences / Journal Canadien des Sciences Neurologiques.

[56]  R. Powers,et al.  Knowledge About Alzheimer Disease Among Primary Care Physicians, Psychologists, Nurses, and Social Workers , 1997, Alzheimer disease and associated disorders.

[57]  H. Brodaty,et al.  THE PRINCE HENRY HOSPITAL DEMENTIA CAREGIVERS’ TRAINING PROGRAMME , 1997, International journal of geriatric psychiatry.

[58]  S H Ferris,et al.  A family intervention to delay nursing home placement of patients with Alzheimer disease. A randomized controlled trial. , 1996, JAMA.

[59]  Brian T. Austin,et al.  Organizing care for patients with chronic illness. , 1996, The Milbank quarterly.

[60]  T. Corbett Continuing Education in the Health Professions , 1982 .

[61]  J. R. Landis,et al.  The measurement of observer agreement for categorical data. , 1977, Biometrics.

[62]  I. Greaves,et al.  The Gnosall project: Setting new benchmarks for dementia care , 2011 .

[63]  E. Guba,et al.  Naturalistic inquiry: Beverly Hills, CA: Sage Publications, 1985, 416 pp., $25.00 (Cloth) , 1985 .