The Ethics of Biomedical Big Data

The availability of diverse sources of data related to health and illness from various types of modern communication technology presents the possibility of augmenting medical knowledge, clinical care, and the patient experience. New forms of data collection and analysis will undoubtedly transform epidemiology, public health, and clinical practice, but what ethical considerations come in to play? With a view to analysing the ethical and regulatory dimensions of burgeoning forms of biomedical big data, Brent Daniel Mittelstadt and Luciano Floridi have brought together thirty scholars in an edited volume that forms part of Springer’s Law, Governance and Technology book series in a collection titled The Ethics of Biomedical Big Data. With eighteen chapters partitioned into six carefully devised sections, this volume engages with core theoretical, ethical, and regulatory challenges posed by biomedical big data.

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[12]  A Critical Examination of Policy-Developments in Information Governance and the Biosciences , 2016 .

[13]  Linda F. Hogle,et al.  The Ethics and Politics of Infrastructures: Creating the Conditions of Possibility for Big Data in Medicine , 2016 .

[14]  S. Langan,et al.  Reporting and Transparency in Big Data: The Nexus of Ethics and Methodology , 2016 .

[15]  Luciano Floridi,et al.  The Ethics of Biomedical Big Data , 2016 .

[16]  P. Hert,et al.  Many Have It Wrong – Samples Do Contain Personal Data: The Data Protection Regulation as a Superior Framework to Protect Donor Interests in Biobanking and Genomic Research , 2016 .

[17]  P. Boddington Big Data, Small Talk: Lessons from the Ethical Practices of Interpersonal Communication for the Management of Biomedical Big Data , 2016 .

[18]  B. Goodman What’s Wrong with the Right to Genetic Privacy: Beyond Exceptionalism, Parochialism and Adventitious Ethics , 2016 .

[19]  S. Woods Big Data Governance: Solidarity and the Patient Voice. , 2016 .

[20]  Annika Richterich Using Transactional Big Data for Epidemiological Surveillance: Google Flu Trends and Ethical Implications of ‘Infodemiology’ , 2016 .