Participation and interest in support services among family caregivers of older adults with cancer

The purpose of this study was to describe distressed and underprepared family caregiver's use of and interest in formal support services (eg, professional counseling, education, organizational assistance).

[1]  Judith G. Gonyea,et al.  Caregiving and the experience of subjective and objective burden. , 1985 .

[2]  M. Greenlick,et al.  Mutuality and preparedness as predictors of caregiver role strain. , 1990, Research in nursing & health.

[3]  R. Andersen Revisiting the behavioral model and access to medical care: does it matter? , 1995, Journal of health and social behavior.

[4]  T. T. Haug,et al.  The validity of the Hospital Anxiety and Depression Scale. An updated literature review. , 2002, Journal of psychosomatic research.

[5]  T. Ricketts,et al.  Access in health services research: the battle of the frameworks. , 2005, Nursing outlook.

[6]  H. Prigerson,et al.  Psychiatric disorders and mental health service use among caregivers of advanced cancer patients. , 2005, Journal of clinical oncology : official journal of the American Society of Clinical Oncology.

[7]  A. Scharlach,et al.  Cultural Attitudes and Caregiver Service Use , 2006, Journal of gerontological social work.

[8]  J. Jones,et al.  A review of distress and its management in couples facing end‐of‐life cancer , 2007, Psycho-oncology.

[9]  K. Wyrwich,et al.  Reliability and validity of the SF-12v2 in the medical expenditure panel survey , 2009, Quality of Life Research.

[10]  Angela P. Wetzel Internet, mail, and mixed‐mode surveys: The tailored design method , 2010 .

[11]  K. Thomas,et al.  Psychological and social profile of family caregivers on commencement of palliative care. , 2011, Journal of pain and symptom management.

[12]  M. Hare,et al.  Patients, family caregivers, and patient navigators , 2011, Cancer.

[13]  B. Bonevski,et al.  The unmet needs of partners and caregivers of adults diagnosed with cancer: a systematic review , 2012, BMJ Supportive & Palliative Care.

[14]  A. Girgis,et al.  Walking a mile in their shoes: anxiety and depression among partners and caregivers of cancer survivors at 6 and 12 months post-diagnosis , 2012, Supportive Care in Cancer.

[15]  K. Kahn,et al.  Racial Variation in the Cancer Caregiving Experience: A Multisite Study of Colorectal and Lung Cancer Caregivers , 2012, Cancer nursing.

[16]  D. Razavi,et al.  Desire for formal psychological support among caregivers of patients with cancer: prevalence and implications for screening their needs , 2013, Psycho-oncology.

[17]  B. Given,et al.  Support service use and interest in support services among distressed family caregivers of lung cancer patients , 2013, Psycho-oncology.

[18]  W. Breitbart,et al.  Preliminary study of themes of meaning and psychosocial service use among informal cancer caregivers , 2013, Palliative and Supportive Care.

[19]  P. McElduff,et al.  Some things change, some things stay the same: a longitudinal analysis of cancer caregivers' unmet supportive care needs , 2013, Psycho-oncology.

[20]  Michael Lees,et al.  Quantifying the burden of informal caregiving for patients with cancer in Europe , 2014, Supportive Care in Cancer.

[21]  M. Hegel,et al.  Benefits of Early Versus Delayed Palliative Care to Informal Family Caregivers of Patients With Advanced Cancer: Outcomes From the ENABLE III Randomized Controlled Trial. , 2015, Journal of clinical oncology : official journal of the American Society of Clinical Oncology.

[22]  B. Given,et al.  Barriers to mental health service use among distressed family caregivers of lung cancer patients. , 2015, European journal of cancer care.

[23]  Richard Schulz,et al.  Families Caring for an Aging America , 2016 .

[24]  M. A. O. Ignacio,et al.  How to cite this article , 2016 .

[25]  G. Macfarlane,et al.  A meta-analytic investigation of the relationship between the psychological distress of cancer patients and their carers. , 2005, Social science & medicine.

[26]  A. Jemal,et al.  Cancer treatment and survivorship statistics, 2016 , 2016, CA: a cancer journal for clinicians.

[27]  M. Neergaard,et al.  Psychological distress, health, and socio-economic factors in caregivers of terminally ill patients: a nationwide population-based cohort study , 2016, Supportive Care in Cancer.

[28]  S. Clauser,et al.  Revisiting the Surveillance Epidemiology and End Results Cancer Registry and Medicare Health Outcomes Survey (SEER‐MHOS) Linked Data Resource for Patient‐Reported Outcomes Research in Older Adults with Cancer , 2016, Journal of the American Geriatrics Society.

[29]  M. Fouad,et al.  The Patient Care Connect Program: Transforming Health Care Through Lay Navigation. , 2016, Journal of oncology practice.

[30]  Trevor Hastie,et al.  Computer Age Statistical Inference: Algorithms, Evidence, and Data Science , 2016 .

[31]  L. Nichols,et al.  Dementia Caregivers' Use of Services for Themselves. , 2016, The Gerontologist.

[32]  Vicki A Freedman,et al.  A National Profile of Family and Unpaid Caregivers Who Assist Older Adults With Health Care Activities. , 2016, JAMA internal medicine.

[33]  James E. Helmreich Regression Modeling Strategies with Applications to Linear Models, Logistic and Ordinal Regression and Survival Analysis (2nd Edition) , 2016 .

[34]  F. Schultze-Lutter,et al.  Association between mental health-related stigma and active help-seeking: Systematic review and meta-analysis , 2017, British Journal of Psychiatry.

[35]  W. Demark-Wahnefried,et al.  The self-care practices of family caregivers of persons with poor prognosis cancer: differences by varying levels of caregiver well-being and preparedness , 2017, Supportive Care in Cancer.

[36]  T. Shanafelt,et al.  Future of the Palliative Care Workforce: Preview to an Impending Crisis. , 2017, The American journal of medicine.