Psychological factors and preferences for communicating prognosis in esophageal cancer patients

Objective: Discussing prognosis is often confronting and complex for cancer patients. This study investigates how patients' psychological characteristics relate to their preferences concerning the disclosure of prognosis.

[1]  A. van der Heide,et al.  Attitudes of patients with incurable cancer toward medical treatment in the last phase of life. , 2005, Journal of clinical oncology : official journal of the American Society of Clinical Oncology.

[2]  R. Sanson-Fisher,et al.  Preventive and other interactional skills of general practitioners, surgeons, and physicians: perceived competence and endorsement of postgraduate training. , 2001, Preventive medicine.

[3]  E. Vellone,et al.  Hope and Related Variables in Italian Cancer Patients , 2006, Cancer nursing.

[4]  S. J. Marwit,et al.  DISCLOSURE PREFERENCES ABOUT TERMINAL ILLNESS: AN EXAMINATION OF DECISION-RELATED FACTORS , 2002, Death studies.

[5]  J. Saul,et al.  Information needs of patients with cancer: results from a large study in UK cancer centres , 2001, British Journal of Cancer.

[6]  Aneil Mishra,et al.  Trust in physicians and medical institutions: what is it, can it be measured, and does it matter? , 2001, The Milbank quarterly.

[7]  F. Oort,et al.  The content and amount of information given by medical oncologists when telling patients with advanced cancer what their treatment options are. palliative chemotherapy and watchful-waiting. , 2004, European journal of cancer.

[8]  P. Butow,et al.  Communicating prognosis to patients with metastatic disease: what do they really want to know? , 2002, Supportive Care in Cancer.

[9]  I. Fentiman,et al.  Quality of life in breast cancer patients aged over 70 years, participating in the EORTC 10850 randomised clinical trial. , 2003, European journal of cancer.

[10]  Suzanne L. Allard,et al.  Avoiding versus seeking: the relationship of information seeking to avoidance, blunting, coping, dissonance, and related concepts. , 2005, Journal of the Medical Library Association : JMLA.

[11]  G. Huston.  The Hospital Anxiety and Depression Scale. , 1987, The Journal of rheumatology.

[12]  D. Talbot,et al.  The development of a structured rating schedule (the BAS) to assess skills in breaking bad news , 1999, British Journal of Cancer.

[13]  C. Mariette,et al.  Pattern of recurrence following complete resection of esophageal carcinoma and factors predictive of recurrent disease , 2003, Cancer.

[14]  V. Jenkins,et al.  Effective communication skills are the key to good cancer care. , 1999, European journal of cancer.

[15]  M. Sprangers,et al.  Quality of life in long‐term survivors after curative transhiatal oesophagectomy for oesophageal carcinoma , 2000, The British journal of surgery.

[16]  D. Osoba,et al.  The European Organization for Research and Treatment of Cancer QLQ-C30: a quality-of-life instrument for use in international clinical trials in oncology. , 1993, Journal of the National Cancer Institute.

[17]  N. Christakis,et al.  Complexities in prognostication in advanced cancer: "to help them live their lives the way they want to". , 2003, JAMA.

[18]  P. Butow,et al.  The dynamics of change: cancer patients' preferences for information, involvement and support. , 1997, Annals of oncology : official journal of the European Society for Medical Oncology.

[19]  G. van der Wal,et al.  Striving for quality or length at the end-of-life: attitudes of the Dutch general public. , 2005, Patient education and counseling.

[20]  Phyllis N Butow,et al.  Cancer patient preferences for communication of prognosis in the metastatic setting. , 2004, Journal of clinical oncology : official journal of the American Society of Clinical Oncology.

[21]  F. Pasini,et al.  Pattern of recurrence after surgery in adenocarcinoma of the gastro-oesophageal junction. , 2003, European journal of surgical oncology : the journal of the European Society of Surgical Oncology and the British Association of Surgical Oncology.

[22]  M. Tattersall,et al.  Sustaining hope when communicating with terminally ill patients and their families: a systematic review , 2008, Psycho-oncology.

[23]  K. Schmidt,et al.  The patient's perspective - A qualitative study of acute myeloid leukemia patients' need for information and their information seeking behaviour , 2003 .

[24]  C. Buskens,et al.  Hospital volume and hospital mortality for esophagectomy , 2001, Cancer.

[25]  M. Sprangers,et al.  Quality of life after transhiatal compared with extended transthoracic resection for adenocarcinoma of the esophagus. , 2004, Journal of clinical oncology : official journal of the American Society of Clinical Oncology.

[26]  E. Cook,et al.  Relationship between cancer patients' predictions of prognosis and their treatment preferences. , 1998, JAMA.

[27]  Lesley Fallowfield,et al.  No news is not good news: Information preferences of patients with cancer , 1995, Psycho-oncology.

[28]  K. Hess,et al.  Revisiting the Truth-Telling Debate: A Study of Disclosure Practices at a Major Cancer Center , 2000, The Journal of Clinical Ethics.

[29]  A. Baum,et al.  Assessment of Preferences for self-treatment and information in health care. , 1980, Journal of personality and social psychology.

[30]  P. Butow,et al.  Communicating prognosis in cancer care: a systematic review of the literature. , 2005, Annals of oncology : official journal of the European Society for Medical Oncology.

[31]  Phyllis N Butow,et al.  Communicating with realism and hope: incurable cancer patients' views on the disclosure of prognosis. , 2005, Journal of clinical oncology : official journal of the American Society of Clinical Oncology.

[32]  J. de Haes,et al.  Tradeoffs between Quality and Quantity of Life , 1996, Medical decision making : an international journal of the Society for Medical Decision Making.

[33]  J. O’Leary,et al.  Prognosis Communication in Serious Illness: Perceptions of Older Patients, Caregivers, and Clinicians , 2003, Journal of the American Geriatrics Society.

[34]  M. Tinetti,et al.  Views of older adults on patient participation in medication-related decision making , 2006, Journal of General Internal Medicine.

[35]  Elizabeth Dugan,et al.  Development of abbreviated measures to assess patient trust in a physician, a health insurer, and the medical profession , 2005, BMC health services research.

[36]  B. Cassileth,et al.  Information and participation preferences among cancer patients. , 1980, Annals of internal medicine.

[37]  P. Fayers,et al.  Clinical and psychometric validation of an EORTC questionnaire module, the EORTC QLQ-OES18, to assess quality of life in patients with oesophageal cancer. , 2003, European journal of cancer.

[38]  N. Demartines,et al.  Classification of Surgical Complications: A New Proposal With Evaluation in a Cohort of 6336 Patients and Results of a Survey , 2004, Annals of Surgery.

[39]  M. Sise,et al.  Surgeons' attitudes about communicating with patients and their families. , 2006, Current surgery.

[40]  W. Chiu,et al.  Cancer Patients' Desires for Communication of Prognosis Information , 2002, Health communication.

[41]  H. Bartelink,et al.  Psychological effects of breast conserving therapy in comparison with radical mastectomy. , 1985, International journal of radiation oncology, biology, physics.

[42]  E. Smets,et al.  Patient Preferences for the Disclosure of Prognosis After Esophagectomy for Cancer with Curative Intent , 2008, Annals of Surgical Oncology.

[43]  F. Camacho,et al.  Measuring Patients’ Trust in their Primary Care Providers , 2002, Medical care research and review : MCRR.

[44]  P. Butow,et al.  ‘It's going to shorten your life’: framing of oncologist–patient communication about prognosis , 2008, Psycho-oncology.

[45]  K. Brain,et al.  Psychological distress in men with breast cancer. , 2006, Journal of clinical oncology : official journal of the American Society of Clinical Oncology.

[46]  A. Back,et al.  Discussing prognosis: "how much do you want to know?" talking to patients who do not want information or who are ambivalent. , 2006, Journal of clinical oncology : official journal of the American Society of Clinical Oncology.

[47]  J. de Haes,et al.  The effect of radical and conserving surgery on the quality of life of early breast cancer patients. , 1986, European journal of surgical oncology : the journal of the European Society of Surgical Oncology and the British Association of Surgical Oncology.

[48]  J. Reitsma,et al.  Prognostic factors in adenocarcinoma of the esophagus or gastroesophageal junction. , 2006, Journal of clinical oncology : official journal of the American Society of Clinical Oncology.

[49]  K. McPherson,et al.  Cancer patients' information needs and information seeking behaviour: in depth interview study , 2000, BMJ : British Medical Journal.

[50]  R. Sanson-Fisher,et al.  Communicating with patients: surgeons' perceptions of their skills and need for training. , 1997, The Australian and New Zealand journal of surgery.

[51]  J. Tijssen,et al.  The recurrence pattern of esophageal carcinoma after transhiatal resection. , 2000, Journal of the American College of Surgeons.