Early intervention services to children with developmental delay in resource poor settings in India

Background: Early intervention has been proven to be effective in facilitating development in children with developmental delay (DD). However, such service, subject of this study, is not available to DD children in most of India. Against the odds, therefore, one non-government organization (NGO) in the country, Ashagram Trust (AGT), decided to establish a service unit in a resource-poor geographical setting. This study aimed to examine the impact of early intervention provided to children with DD by Community Based Rehabilitation Workers (CBRWs) under supervision of professionals. Methods: Data analysis of pre- and -post scores on an early intervention tool (EIT). A total of 67 children (male 38, female 29), ages 6 through 36 months, ranging in DD from borderline (IQ<80) to a high level of DD, received early intervention services provided by community-based rehabilitation workers (CBRWs) under the supervision of professionals. A total of 46 children who stayed in compliance were analyzed. Results: A paired t-test was conducted. Overall results indicated significant improvement (pre-mean 22, sd – 3.9, post-mean 39, - 4.3, t-value – 6.40, p<0.0002, Pearson correlation 0.873, p<0.05) in children with DD in all four areas of development, motor, communication, cognitive and social. Conclusion: The study demonstrated positive outcome of early intervention in areas of motor, communication, cognitive and social development of children with DD. Early intervention services may be successfully provided by CBRWs under the supervision of trained professionals in resource-poor tribal areas of India, using low cost locally prepared therapeutic materials. Nepal Journal of Medical Sciences | Volume 02 | Number 02 | July-December 2013 | Page 149-155 DOI: http://dx.doi.org/10.3126/njms.v2i2.8966

[1]  C. Ramey,et al.  Early intervention and early experience. , 1998, The American psychologist.

[2]  A. Scherzer Experience in Cambodia With the Use of a Culturally Relevant Developmental Milestone Chart for Children in Low‐ and Middle‐Income Countries , 2009 .

[3]  M. Sharma,et al.  A STUDY OF KNOWLEDGE, ATTITUDES AND PRACTICES (KAP) SURVEY OF FAMILIES TOWARD THEIR CHILDREN WITH INTELLECTUAL DISABILITY IN BARWANI, INDIA , 2010 .

[4]  R. Lakhan Inclusion of Children with Intellectual and Multiple Disabilities: A Community-Based Rehabilitation Approach, India , 2013 .

[5]  R. Lakhan Social, Environmental and Biological Determinants of Cerebral Palsy in Children with Intellectual Disabilities (ID) in India , 2013 .

[6]  M. Guralnick Early Intervention for Children with Intellectual Disabilities: Current Knowledge and Future Prospects* , 2005 .

[7]  David Werner Disabled Village Children. A Guide for Community Health Workers, Rehabilitation Workers, and Families. First Edition. , 1987 .

[8]  D. Bailey,et al.  First experiences with early intervention: a national perspective. , 2004, Pediatrics.

[9]  A. Majnemer,et al.  Benefits of early intervention for children with developmental disabilities. , 1998, Seminars in pediatric neurology.

[10]  Mijna Hadders-Algra,et al.  A systematic review of the effects of early intervention on motor development. , 2005, Developmental medicine and child neurology.

[11]  L. Wright,et al.  Feasibility of Implementing an Early Intervention Program in an Urban Low-Income Setting to Improve Neurodevelopmental Outcome in Survivors Following Birth Asphyxia , 2011 .

[12]  M. Wolery,et al.  Early intervention as we know it , 1999 .

[13]  Angela C. Larosa,et al.  Developmental delay: Timely identification and assessment , 2010 .

[14]  J. Blackman,et al.  Early Intervention: A Global Perspective , 2002 .

[15]  S. Lata,et al.  Early intervention in developmental delay , 2006, Indian journal of pediatrics.

[16]  M. Durkin The epidemiology of developmental disabilities in low-income countries. , 2002, Mental retardation and developmental disabilities research reviews.

[17]  Effect of Play and Exposure on Development of Children with Intellectual Disabilities through Community Based Rehabilitation , 2009 .

[18]  K. Olness Effects on Brain Development Leading to Cognitive Impairment: A Worldwide Epidemic , 2003, Journal of developmental and behavioral pediatrics : JDBP.

[19]  Scientific CBR : a strategy for rehabilitation, equalization of opportunities, poverty reduction and social inclusion of people with disabilities - Arabic version , 2004 .

[20]  R. Lakhan The Coexistence of Psychiatric Disorders and Intellectual Disability in Children Aged 3–18 Years in the Barwani District, India , 2013, ISRN psychiatry.