Développement d’indicateurs pour valoriser des actions de prévention et de réadaptation de la perte d’autonomie des personnes âgées

Abstract Background In Europe and Asia, long-term care funding is disability-based. This introduces a perverse effect by inappropriately adding value to functional decline among beneficiaries. To support the efforts in prevention and rehabilitation made by personnel in long-term care services, indicators have to be developed to promote functional improvement of beneficiaries. As people receiving those services are already experiencing a functional decline process, it is essential to know the natural magnitude of functional decline in order to assess deviation from this expected decline. The objective of the study was to estimate the natural decrease of autonomy in beneficiaries of home care services and nursing homes. Methods Two databases were used: for home-dwelling people, 1235 subjects over 75 years old who participated in the PRISMA study; for institutions, 1330 residents over 65 years old of a nursing home in Sherbrooke (QC, Canada). These subjects were assessed several times over many years with the Functional Autonomy Measurement System (SMAF). Growth analyses were used to estimate the annual decrease in the SMAF score according to age, gender and the initial autonomy status. Results At home, only age was significantly associated with the slope of functional decline. The average annual decrease of subjects 75–84 years old was 2.4 points on the SMAF score (out of 87); for those aged over 85, the annual loss was 3.8 points. In institutions, gender and the initial autonomy profile were associated with the annual decrease. For men, the annual decrease varied between 0.7 for the most disabled subjects to 5.2 for the most autonomous. For women, those values varied from 0.2 to 6.6, respectively. Conclusion A decrease in the SMAF score less than these expected values should be associated with a bonus to support personnel training, prevention activities, rehabilitation and activities aimed at supporting the autonomy of the beneficiaries. Such a strategy requires the implementation of a precise and reliable assessment instrument like the SMAF and also the availability of a longitudinal database where data for each beneficiary could be linked over time.

[1]  D. Mukamel,et al.  The Volume-Outcome Relationship in Nursing Home Care: An Examination of Functional Decline Among Long-term Care Residents , 2010, Medical care.

[2]  Thomas M Gill,et al.  Trajectories of disability in the last year of life. , 2010, The New England journal of medicine.

[3]  J. Mackenbach,et al.  The level and time course of disability: Trajectories of disability in adults and young elderly , 2006, Disability and rehabilitation.

[4]  R. Hébert Les défis du vieillissement au Canada , 2003 .

[5]  F. Porell,et al.  A longitudinal analysis of nursing home outcomes. , 1998, Health services research.

[6]  S. Volpato,et al.  Nutritional parameters, body composition, and progression of disability in older disabled residents living in nursing homes. , 2001, The journals of gerontology. Series A, Biological sciences and medical sciences.

[7]  D. Spiegelhalter,et al.  Factors associated with functional decline and improvement in a very elderly community-dwelling population. , 1999, American journal of epidemiology.

[8]  M. Tousignant,et al.  Application of a case-mix classification based on the functional autonomy of the residents for funding long-term care facilities. , 2003, Age and ageing.

[9]  P. Barberger-Gateau,et al.  Démence et perte d'autonomie fonctionnelle du sujet âgé , 2005 .

[10]  R. Hébert,et al.  Disability-based classification system for older people in integrated long-term care services: the Iso-SMAF profiles. , 2006, Archives of gerontology and geriatrics.

[11]  J. Desrosiers,et al.  Reliability of the revised functional autonomy measurement system (SMAF) for epidemiological research. , 1995, Age and ageing.

[12]  D Spiegelhalter,et al.  Incidence of functional decline and improvement in a community-dwelling, very elderly population. , 1997, American journal of epidemiology.

[13]  D. Deeg,et al.  Longitudinal characterization of course types of functional limitations , 2005, Disability and rehabilitation.

[14]  Lydia W. Li Predictors of ADL Disability Trajectories Among Low-Income Frail Elders in the Community , 2005 .

[15]  R. Hébert,et al.  Home-care programmes for older adults with disabilities in Canada: how can we assess the adequacy of services provided compared with the needs of users? , 2006, Health & social care in the community.

[16]  D. Spiegelhalter,et al.  Setting the minimal metrically detectable change on disability rating scales. , 1997, Archives of physical medicine and rehabilitation.

[17]  L. Demers,et al.  Trajectories of cognitive decline and functional status in the frail older adults. , 2009, Archives of gerontology and geriatrics.

[18]  T. I. Romøren,et al.  Trajectories of Disability among the Oldest Old , 2003, Journal of aging and health.

[19]  C. Pieper,et al.  Effects of cognitive performance on change in physical function in long-stay nursing home residents. , 2002, The journals of gerontology. Series A, Biological sciences and medical sciences.

[20]  J.-C. Allibert,et al.  La grille AGGIR , 1998 .

[21]  J. Morris,et al.  Measuring change in activities of daily living in nursing home residents with moderate to severe cognitive impairment , 2006, BMC geriatrics.

[22]  R. Hébert,et al.  Implantation du Système de Mesure de l'Autonomie Fonctionnelle (SMAF) dans onze milieux d'hébergement et d'aide à domicile du secteur médico-social français: étude PISE-Dordogne , 2011 .

[23]  J. Desrosiers,et al.  Economic evaluation of a geriatric day hospital: cost-benefit analysis based on functional autonomy changes. , 2003, Age and ageing.

[24]  W. Strawbridge,et al.  The Dynamics of Disability and Functional Change in an Elderly Cohort: Results from the Alameda County Study , 1992, Journal of the American Geriatrics Society.

[25]  R. Kane,et al.  Cognition Moderates the Relationship Between Facility Characteristics, Personal Impairments, and Nursing Home Residents' Activities of Daily Living , 2010, Journal of the American Geriatrics Society.

[26]  J. Singer,et al.  Applied Longitudinal Data Analysis , 2003 .

[27]  M. Tousignant,et al.  Impact of PRISMA, a coordination-type integrated service delivery system for frail older people in Quebec (Canada): A quasi-experimental study. , 2010, The journals of gerontology. Series B, Psychological sciences and social sciences.

[28]  J. Kelley-Moore,et al.  The black/white disability gap: persistent inequality in later life? , 2004, The journals of gerontology. Series B, Psychological sciences and social sciences.

[29]  P. Gervais,et al.  Le système de mesure de l'autonomie fonctionnelle (SMAF). , 2003 .

[30]  H. Rothgang Social Insurance for Long-term Care: An Evaluation of the German Model , 2010 .

[31]  K. Manton,et al.  Estimates of change in chronic disability and institutional incidence and prevalence rates in the U.S. elderly population from the 1982, 1984, and 1989 National Long Term Care Survey. , 1993, Journal of gerontology.