Psychometric properties of the European Portuguese version of the Pediatric Quality of Life Inventory™ family impact module.

PURPOSE This study aims to assess the psychometric properties of the European Portuguese version of the Pediatric Quality of Life Inventory™ Family Impact Module in parents of children/adolescents with chronic health conditions. DESIGN AND METHODS The European Portuguese version of the Pediatric Quality of Life Inventory™ Family Impact Module was administered to 237 parents of children/adolescents with chronic disease and/or chronic disorder. Participants were recruited from the day hospital and/or outpatient services of four hospitals in Northern Portugal, the majority being mothers (87.3%) aged between 31 and 50 years (86.9%). The questionnaire was administered online through the REDCap platform. The hierarchical factor model of the Pediatric Quality of Life Inventory™ Family Impact Module proposed by Varni and colleagues was tested. RESULTS Confirmatory Factor Analysis indicated good model fit, with the following indices (χ2 /gL = 2.19; comparative fit index [CFI] = 0.90;  root mean square error of approximation [RMSEA] = 0.07 immune cell [IC] 90% = 0.06-0.07). Internal consistency values were high (parent quality of life subtotal, α = .96; family functioning subtotal, α = .92; total score, α = .96). PRACTICE IMPLICATIONS The European Portuguese version of the PedsQL™ FIM is a reliable and valid measurement tool for nurses to assess the impact of the child/adolescent chronic conditions on family's quality of life and to develop interventions to improve their well-being.

[1]  Norma E. Conner,et al.  Quality of life of parents of children with Autism Spectrum Disorder: An integrative literature review. , 2022, Journal for specialists in pediatric nursing : JSPN.

[2]  M. Bullinger,et al.  Factors of family impact in a Swedish–German cohort of children born with esophageal atresia , 2022, Orphanet Journal of Rare Diseases.

[3]  A. Rozensztrauch,et al.  The Quality of Life of Children with Epilepsy and the Impact of the Disease on the Family Functioning , 2022, International journal of environmental research and public health.

[4]  R. Śmigiel,et al.  Clinical presentation of Rett syndrome in relation to quality of life and family functioning , 2021, The Journal of international medical research.

[5]  Filiberto Toledano-Toledano,et al.  Psychosocial factors related with caregiver burden among families of children with chronic conditions , 2019, BioPsychoSocial Medicine.

[6]  A. Valiulis,et al.  Quality of life of the family of children with asthma is not related to asthma severity , 2019, European Journal of Pediatrics.

[7]  C. Hajat,et al.  The global burden of multiple chronic conditions: A narrative review , 2018, Preventive medicine reports.

[8]  M. Ferro,et al.  A systematic review of quality of life in parents of children with epilepsy , 2018, Epilepsy & Behavior.

[9]  Eliza Cristina Macedo,et al.  Burden and quality of life of mothers of children and adolescents with chronic illnesses: an integrative review 1 , 2015, Revista latino-americana de enfermagem.

[10]  B. Rath,et al.  The impact of pediatric nephrotic syndrome on parents' health-related quality of life and family functioning: an assessment made by the PedsQL 4.0 family impact module. , 2015, Saudi journal of kidney diseases and transplantation : an official publication of the Saudi Center for Organ Transplantation, Saudi Arabia.

[11]  D. Stevanović,et al.  The Croatian Version of the Pediatric Quality of Life Inventory (PedsQL™) Family Impact Module: Cross-Cultural Adaptation and Psychometric Evaluation , 2015 .

[12]  K. Berlin,et al.  Utility of the PedsQL™ family impact module: assessing the psychometric properties in a community sample , 2013, Quality of Life Research.

[13]  J. Leask,et al.  Condition-specific quality of life questionnaires for caregivers of children with pediatric conditions: a systematic review , 2013, Quality of Life Research.

[14]  I. Brown,et al.  Review: the development of family quality of life concepts and measures. , 2012, Journal of intellectual disability research : JIDR.

[15]  Y. Hao,et al.  The Chinese version of the Pediatric Quality of Life Inventory™ (PedsQL™) Family Impact Module: cross-cultural adaptation and psychometric evaluation , 2011, Health and quality of life outcomes.

[16]  R. Hoffmann,et al.  A psychometric evaluation of the PedsQL™ Family Impact Module in parents of children with sickle cell disease , 2009, Health and quality of life outcomes.

[17]  P. Harris,et al.  Research electronic data capture (REDCap) - A metadata-driven methodology and workflow process for providing translational research informatics support , 2009, J. Biomed. Informatics.

[18]  J. Varni,et al.  The Pediatric Quality of Life Inventory™ (PedsQL™) family impact module: reliability and validity of the Brazilian version , 2008, Health and quality of life outcomes.