Access to effective but expensive treatments: An analysis of the solidarity argument in discussions on funding of medical treatments

Abstract The development of new effective but expensive medical treatments leads to discussions about whether and how such treatments should be funded in solidarity‐based healthcare systems. Solidarity is often seen as an elusive concept; it appears to be used to refer to different sets of concerns, and its interrelations with the concept of justice are not well understood. This paper provides a conceptual analysis of the concept of solidarity as it is used in discussions on the allocation of healthcare resources and the funding of expensive treatments. It contributes to the clarification of the concept of solidarity by identifying in the literature and discussing four uses of the concept: (1) assisting patients in need, (2) upholding the solidarity‐based healthcare system, (3) willingness to contribute and (4) promoting equality. It distinguishes normative and descriptive uses of the concept and outlines the overlap and differences between solidarity and justice. Our analysis shows that the various uses of the concept of solidarity point to different, even conflicting, ethical stances on whether and how access to effective, expensive treatments should be provided. We conclude that the concept of solidarity has a role to play in discussions on the accessibility and funding of newly approved medical treatments. It requires, for instance, that healthcare policies promote and maintain both societal willingness to contribute to the care of others and the value of providing care to vulnerable patients through public funding.

[1]  L. Fleck Precision medicine and the fragmentation of solidarity (and justice) , 2022, Medicine, Health Care and Philosophy.

[2]  A. Kerr,et al.  Accessing targeted therapies for cancer: self and collective advocacy alongside and beyond mainstream cancer charities , 2021, New genetics and society.

[3]  A. Kolers What does solidarity do for bioethics? , 2020, Journal of Medical Ethics.

[4]  Jeremy D. Goldhaber-Fiebert,et al.  Cost Effectiveness of Chimeric Antigen Receptor T-Cell Therapy in Multiply Relapsed or Refractory Adult Large B-Cell Lymphoma. , 2019, Journal of clinical oncology : official journal of the American Society of Clinical Oncology.

[5]  D. Touchette,et al.  Cost-effectiveness analysis of lumacaftor and ivacaftor combination for the treatment of patients with cystic fibrosis in the United States , 2018, Orphanet Journal of Rare Diseases.

[6]  C. Gould Solidarity and the Problem of Structural Injustice in Healthcare , 2018, Bioethics.

[7]  V. Prasad,et al.  Total Costs of Chimeric Antigen Receptor T-Cell Immunotherapy , 2018, JAMA oncology.

[8]  E. Feiring,et al.  Rationing cancer treatment: a qualitative study of perceptions of legitimate limit-setting , 2018, BMC Health Services Research.

[9]  Till Bärnighausen,et al.  Statutory health insurance in Germany: a health system shaped by 135 years of solidarity, self-governance, and competition , 2017, The Lancet.

[10]  R. Saltman Health sector solidarity: a core European value but with broadly varying content , 2015, Israel Journal of Health Policy Research.

[11]  R. T. Meulen,et al.  Solidarity and Justice in Health Care. A Critical Analysis of their Relationship , 2015 .

[12]  N. Eyal Leveling Down Health , 2013 .

[13]  B. Prainsack,et al.  Solidarity in Contemporary Bioethics – Towards a New Approach , 2012, Bioethics.

[14]  Alena Buyx,et al.  Lifestyle-related diseases and individual responsibility through the prism of solidarity , 2012 .

[15]  A. Dawson,et al.  Solidarity: a Moral Concept in Need of Clarification (editorial) , 2012 .

[16]  E. Fenton Mind the Gap: ethical issues of private treatment in the public health system. , 2011, The New Zealand medical journal.

[17]  E. Jackson Top-Up Payments for Expensive Cancer Drugs: Rationing, Fairness and the NHS , 2010 .

[18]  Jeff Richardson,et al.  The rule of rescue. , 2003, Social science & medicine.

[19]  J. Made,et al.  The extent and limits of solidarity in Dutch health care , 2000 .

[20]  D C Hadorn,et al.  Setting health care priorities in Oregon. Cost-effectiveness meets the rule of rescue. , 1991, JAMA.

[21]  D. Taruscio,et al.  The Role of Solidarity(-ies) in Rare Diseases Research. , 2017, Advances in experimental medicine and biology.

[22]  B. Jennings,et al.  The Place of Solidarity in Public Health Ethics , 2012, Public Health Reviews.

[23]  R. ter Meulen Limiting solidarity in the Netherlands: a two-tier system on the way. , 1995, The Journal of medicine and philosophy.