Considering management behaviours to identify vulnerable caregivers of persons with dementia

Persons with dementia gradually disengage from daily activities, and therefore require increasing daily support. Caregivers face a dilemma as to whether they should encourage the persons with dementia in terms of initiative and autonomy, or supervise and take charge of tasks, which may cause distress for both parties. This study seeks to better understand how caregivers manage the disengagement of the persons with dementia and the repercussions on their caregiving experience.

[1]  C. Jacelon,et al.  “A Little Bit of Their Souls”: Investigating the Concept of Dignity for People Living With Dementia Using Caregivers’ Blogs , 2020, Journal of family nursing.

[2]  F. Pasquier,et al.  Development and Validation of a Scale to Assess Caregiver Management Behaviors in Response to the Decreased Engagement of People with Dementia in Daily Activities , 2019, Clinical gerontologist.

[3]  F. Pasquier,et al.  A Customized Intervention for Dementia Caregivers: A Quasi-Experimental Design , 2019, Journal of aging and health.

[4]  F. Pasquier,et al.  Couples' experiences with early-onset dementia: An interpretative phenomenological analysis of dyadic dynamics , 2016, Dementia.

[5]  G. Mitchell,et al.  Person-centred care for people with dementia: Kitwood reconsidered. , 2015, Nursing standard (Royal College of Nursing (Great Britain) : 1987).

[6]  H. Duivenvoorden,et al.  Multivariate models of subjective caregiver burden in dementia: A systematic review , 2014, Ageing Research Reviews.

[7]  J. Simpson,et al.  The experience of caring for a partner with young onset dementia: How younger carers cope , 2013, Dementia.

[8]  D. Nåden,et al.  Dignity-preserving dementia care , 2013, Nursing ethics.

[9]  E. Mukaetova-Ladinska,et al.  Behavioral and Psychological Symptoms of Dementia , 2012, Front. Neur..

[10]  Joan Murphy,et al.  ‘She can see how much I actually do!’ Talking Mats®: helping people with dementia and family carers to discuss managing daily living , 2010 .

[11]  F. Ducharme,et al.  Development of an Intervention Program for Alzheimer's Family Caregivers Following Diagnostic Disclosure , 2009, Clinical nursing research.

[12]  A. Stigsdotter-Neely,et al.  Engagement in activities , 2008 .

[13]  M. Sebern,et al.  Dyadic relationship scale: a measure of the impact of the provision and receipt of family care. , 2007, The Gerontologist.

[14]  James Warner,et al.  Making sense of dementia in the social world: a qualitative study. , 2007, Social science & medicine.

[15]  A. Phinney,et al.  Family Strategies for Supporting Involvement in Meaningful Activity by Persons With Dementia , 2006, Journal of family nursing.

[16]  A. Stigsdotter-Neely,et al.  Caregivers' Self-Initiated Support toward Their Partners with Dementia When Performing an Everyday Occupation Together at Home , 2005 .

[17]  L. Robinson,et al.  Making sense of dementia and adjusting to loss: Psychological reactions to a diagnosis of dementia in couples , 2005, Aging & mental health.

[18]  A. Scott,et al.  Dementia and challenging behaviour: the needs of family caregivers. , 2005, Nursing older people.

[19]  Louise Nygård,et al.  Managing Changes in Everyday Occupations: The Experience of Persons with Alzheimer's Disease , 2002 .

[20]  Yao Wang,et al.  A robust and scalable clustering algorithm for mixed type attributes in large database environment , 2001, KDD '01.

[21]  M. Grafström,et al.  Patterns of elderly spousal caregiving in dementia care: an observational study. , 2001, Journal of advanced nursing.

[22]  J. Bond,et al.  Researching dementia: are there unique methodological challenges for health services research? , 2001, Ageing and Society.

[23]  S. Sidani,et al.  Effects of an Abilities‐Focused Program of Morning Care on Residents Who Have Dementia and On Caregivers , 2000, Journal of the American Geriatrics Society.

[24]  L. Lévesque,et al.  Evaluating the functional autonomy of persons with Alzheimer's disease: A tool for observing four activities of daily living , 1993 .

[25]  B. Given,et al.  The caregiver reaction assessment (CRA) for caregivers to persons with chronic physical and mental impairments. , 1992, Research in nursing & health.

[26]  R. Snaith,et al.  The Hospital Anxiety And Depression Scale , 2003, Health and quality of life outcomes.

[27]  S. Zarit,et al.  Relatives of the impaired elderly: correlates of feelings of burden. , 1980, The Gerontologist.