Involving People with Cognitive and Communication Impairments in Mobile Health App Design

Multiple challenges face people with cognitive and communication impairments when asked to be involved in the design of technology that is appropriate for them. This population is under-represented in healthcare research and have health inequalities relative to most people. The work discussed here concerns how to adapt research processes to suit people with these difficulties when developing smartphone apps to give access to health promotion information, an area in which health inequalities arise. Strategies are identified to assist participants to understand the proposed area of work, to give consent to participation and be involved with activities such as evaluation. A combination of adaptations is proposed to engage people who would otherwise be excluded. It is clear that strategies used to make research participation accessible can assist people with cognitive and communication impairments to influence and inform the development of technology for their use.

[1]  J. B. Brooke,et al.  SUS: a retrospective , 2013 .

[2]  John L. Arnott,et al.  Mobile Delivery of Health Information for People with Mild Cognitive Impairment , 2017, AAATE Conf..

[3]  Mary Whitehead,et al.  Smartphone Applications for Promoting Healthy Diet and Nutrition: A Literature Review. , 2015, Jacobs journal of food and nutrition.

[4]  Margot Brereton,et al.  'Put yourself in the picture': designing for futures with young adults with intellectual disability , 2016, OZCHI.

[5]  Maria M. Klawe,et al.  The participatory design of a sound and image enhanced daily planner for people with aphasia , 2004, CHI.

[6]  Joanna McGrenere,et al.  The Design and Field Evaluation of PhotoTalk: A Digital Image Communication Application for People with Aphasia , 2007 .

[7]  Joan Murphy,et al.  Obtaining consent to participate in research: the issues involved in including people with a range of learning and communication disabilities , 2007 .

[8]  Mahzar Eisapour,et al.  Participatory Design of a Virtual Reality Exercise for People with Mild Cognitive Impairment , 2018, CHI Extended Abstracts.

[9]  S. Baines,et al.  Health Inequalities & People with Learning Disabilities in the UK: 2010 , 2010 .

[10]  Joan Murphy,et al.  The effectiveness of Talking Mats® with people with intellectual disability , 2008 .

[11]  Laurianne Sitbon,et al.  Co-designing interactive applications with adults with intellectual disability: a case study , 2017, OZCHI.

[12]  K. McDonald,et al.  'You need to let your voice be heard': research participants' views on research. , 2013, Journal of intellectual disability research : JIDR.

[13]  A. Hill,et al.  Addressing challenges in gaining informed consent for a research study investigating falls in people with intellectual disability , 2018 .

[14]  Karin Slegers,et al.  Challenges in doing participatory design with people with dementia , 2014, PDC '14.

[15]  Joanna McGrenere,et al.  The design and field evaluation of PhotoTalk: a digital image communication application for people , 2007, Assets '07.

[17]  J. Dekelver,et al.  Design of Mobile Applications for People with Intellectual Disabilities , 2015 .

[18]  Teresa Iacono,et al.  Ethical challenges and complexities of including people with intellectual disability as participants in research , 2006, Journal of intellectual & developmental disability.

[19]  P. Olivier,et al.  Empathy, participatory design and people with dementia , 2012, CHI.

[20]  Mary Whitehead,et al.  A Review of Smartphone Applications for Promoting Physical Activity. , 2016, Jacobs journal of community medicine.

[21]  Margot Brereton,et al.  Design after design to bridge between people living with cognitive or sensory impairments, their friends and proxies , 2015 .

[22]  Shaun K. Kane,et al.  What we talk about: designing a context-aware communication tool for people with aphasia , 2012, ASSETS '12.