Personal Health Book - A Novel Tool for Patient Centered Healthcare

Patient centered healthcare is based on the assumption that physicians, patients and their families have the ability to obtain and understand health information and services, and make appropriate health decisions. This in turn presumes that patient’s personal health information is presented according to individuals understanding and abilities. Based on this argument our research has focused on analysing whether the existing PHRs (Personal Health Records) support patient centered healthcare in an appropriate way. The analysis of these questions led to the introduction of the Personal Health Book (PHB). It is an extension of PHR in that all healthcare providers, who are involved in patient’s healthcare, augment the PHB by links to relevant information entities. In this paper we consider two approaches for maintaining PHBs: one extends XML based PHRs while the other exploits semantic web technologies in PHBs’ implementation. In particular, we present the advantages that can be achieved in using semantic web technologies such as RDF

[1]  David W. Bates,et al.  Viewpoint Paper: A Research Agenda for Personal Health Records (PHRs) , 2008, J. Am. Medical Informatics Assoc..

[2]  Juha Puustjarvi,et al.  Providing relevant health information to patient-centered healthcare , 2010, The 12th IEEE International Conference on e-Health Networking, Applications and Services.

[3]  Dieter Fensel,et al.  Towards the Semantic Web: Ontology-driven Knowledge Management , 2002 .

[4]  P F de Vries Robbé,et al.  Patient-centred care: using online personal medical records in IVF practice. , 2006, Human reproduction.

[5]  Rosemary Gillespie,et al.  How is patient‐centred care understood by the clinical, managerial and lay stakeholders responsible for promoting this agenda? , 2004, Health expectations : an international journal of public participation in health care and health policy.

[6]  Ritu Agarwal,et al.  Technology-Enabled Transformations in U.S. Health Care: Early Findings on Personal Health Records and Individual Use , 2008 .

[7]  D. Lewis,et al.  Consumer health informatics : informing consumers and improving health care , 2010 .

[8]  M. Stewart Towards a global definition of patient centred care , 2001, BMJ : British Medical Journal.

[9]  Juha Puustjärvi,et al.  The role of medicinal ontologies in querying and exchanging pharmaceutical information , 2009, Int. J. Electron. Heal..

[10]  J. Puustjarvi,et al.  Using Semantic Web Technologies in Visualizing Medicinal Vocabularies , 2008, 2008 IEEE 8th International Conference on Computer and Information Technology Workshops.

[11]  Phyllis Butow,et al.  A systematic review on communicating with patients about evidence. , 2006, Journal of evaluation in clinical practice.

[12]  Susan Michie,et al.  Patient-centredness in chronic illness: what is it and does it matter? , 2003, Patient education and counseling.

[13]  M. Mettler,et al.  Information Therapy: Health Education One Person at a Time , 2003, Health promotion practice.

[14]  Huajun Chen,et al.  The Semantic Web , 2011, Lecture Notes in Computer Science.

[15]  Ritu Agarwal,et al.  An Empirical Examination of the Importance of Defining the PHR for Research and for Practice , 2006 .

[16]  A. Bauman,et al.  The Profession , 2001 .