RemoDem: Delivering support for people with dementia in remote areas

RemoDem aimed to develop, test and evaluate services for people with dementia in remote areas of the Faroe Islands, Greenland, Sweden and Scotland. Formative and summative evaluation used a flexible research design including collection of baseline data, interviews and focus groups with key informants and data relating to service users, i.e. people with dementia and their carers. Challenges for service providers included organisational difficulties, lack of clear information about their populations with dementia and lack of knowledge in local communities. Test sites which developed services building on their particular local starting points adopted both specialist and ‘off the shelf’ technologies and found that these were generally helpful for people with significant support needs. The flexible research design was found to be essential in the real world conditions of the service development and evaluation. Services were more successful where more mature and less experimental technologies were used. The new services promised to address effectively challenges of remoteness including distance, communication and workforce deployment issues.

[1]  C. Price Evaluation of an activity monitoring system for people with dementia , 2007 .

[2]  J. Manthorpe Rural Ageing: A good place to grow old? , 2009 .

[3]  R. Tappen,et al.  Analysis of Barriers to Cognitive Screening in Rural Populations in the United States , 2014, ANS. Advances in nursing science.

[4]  John Humphreys,et al.  Systematic review of effective retention incentives for health workers in rural and remote areas: towards evidence-based policy. , 2010, The Australian journal of rural health.

[5]  Alison Bowes,et al.  Effectiveness of telemedicine: A systematic review of reviews , 2010, Int. J. Medical Informatics.

[6]  I. Hodder Entangled: An Archaeology of the Relationships Between Humans and Things , 2012 .

[7]  C E Wells,et al.  Dementia reconsidered. , 1972, Archives of general psychiatry.

[8]  K. Croucher,et al.  The Impact of Demographic Change on the Infrastructure for Housing, Health and Social Care in the North of England , 2013 .

[9]  N. Harris,et al.  A smarter future: technology to enhance an independent lifestyle for our future selves , 2011 .

[10]  C. Robson,et al.  Real World Research: A Resource for Social Scientists and Practitioner-Researchers , 1993 .

[11]  Alison Bowes,et al.  Methodologies for assessing telemedicine: A systematic review of reviews , 2012, Int. J. Medical Informatics.

[12]  C. Brayne,et al.  Political drive to screen for pre-dementia: not evidence based and ignores the harms of diagnosis , 2013, BMJ : British Medical Journal.

[13]  B. Draper,et al.  Characteristics of rural hospital services for people with dementia: findings from the Hospital Dementia Services Project. , 2013, The Australian journal of rural health.

[14]  N. Keating Rural ageing: a good place to grow old? , 2008 .

[15]  Services for Australian Rural The Australian journal of rural health , 1992 .

[16]  J. Hendy,et al.  Effect of telehealth on use of secondary care and mortality: findings from the Whole System Demonstrator cluster randomised trial , 2012, BMJ : British Medical Journal.

[17]  D. Brooker What is Person-Centred Care in Dementia? , 2003 .

[18]  Carol Brayne,et al.  The pros and cons of early diagnosis in dementia. , 2013, The British journal of general practice : the journal of the Royal College of General Practitioners.

[19]  F. Miskelly Electronic tracking of patients with dementia and wandering using mobile phone technology. , 2005, Age and ageing.

[20]  C. Nugent,et al.  Usability of a new electronic assistive device for community-dwelling persons with mild dementia , 2012, Aging & mental health.

[21]  Martin Knapp,et al.  Cost effectiveness of telehealth for patients with long term conditions (Whole Systems Demonstrator telehealth questionnaire study): nested economic evaluation in a pragmatic, cluster randomised controlled trial , 2013, BMJ.

[22]  Andreas Maercker,et al.  E-health interventions for depression, anxiety disorders, dementia, and other disorders in old age: A review , 2011 .

[23]  Louise McCabe,et al.  Supporting safe walking for people with dementia: User participation in the development of new technology , 2013 .

[24]  C. Nugent,et al.  Review of ICT-based services for identified unmet needs in people with dementia , 2007, Ageing Research Reviews.

[25]  A. Innes,et al.  Dementia care in rural and remote settings: a systematic review of formal or paid care. , 2011, Maturitas.

[26]  L. Hantrais International Comparative Research: Theory, Methods and Practice , 2008 .

[27]  L. Flicker Dementia Reconsidered: the Person Comes First , 1999, BMJ.

[28]  Jenny Basran,et al.  Improving access to dementia care: Development and evaluation of a rural and remote memory clinic , 2009, Aging & mental health.

[29]  P. Snow,et al.  Influence of rurality on diagnosing dementia in Australian general practice. , 2012, Australian journal of primary health.

[30]  P. Sjödén,et al.  High prevalence of self‐reported winter depression in a Swedish county , 2005, Psychiatry and clinical neurosciences.