FIT Decision Aid: Matching the Needs of People with Dementia and Caregivers with Products and Services

Although there exist various product and services to support people with dementia in their everyday activities and challenges, people with dementia and their informal caregivers experience many unmet needs. In this paper, we present the ongoing development process of a decision aid that aims to reveal these unmet needs and match them with relevant support and care solutions. This entails investigating the needs of people with dementia and caregivers, making an inventory of the product and service solutions, co-creating the question articulation to be used in the decision aid and developing and testing three design concepts. We aim that the insights we gained from the tests will inspire interaction designers and researchers that investigate person-centered dementia care.

[1]  L. Clare,et al.  Improving website accessibility for people with early-stage dementia: A preliminary investigation , 2005, Aging & mental health.

[2]  J Koffman,et al.  The needs of caregivers. , 1997, Elderly care.

[3]  H. Verbeek,et al.  Social health and dementia: a European consensus on the operationalization of the concept and directions for research and practice , 2017, Aging & mental health.

[4]  Rose-Marie Dröes,et al.  Evaluation of DEM-DISC, customized e-advice on health and social support services for informal carers and case managers of people with dementia; a cluster randomized trial , 2015, International Psychogeriatrics.

[5]  Rose-Marie Dröes,et al.  What do community-dwelling people with dementia need? A survey of those who are known to care and welfare services , 2009, International Psychogeriatrics.

[6]  Rose-Marie Dröes,et al.  Subjective needs of people with dementia: a review of the literature , 2007, International Psychogeriatrics.

[7]  Rose-Marie Dröes,et al.  Technologies to Support Community-Dwelling Persons With Dementia: A Position Paper on Issues Regarding Development, Usability, Effectiveness and Cost-Effectiveness, Deployment, and Ethics , 2017, JMIR rehabilitation and assistive technologies.

[8]  Rose-Marie Dröes,et al.  User evaluation of the DEMentia-specific Digital Interactive Social Chart (DEM-DISC). A pilot study among informal carers on its impact, user friendliness and, usefulness , 2010, Aging & mental health.

[9]  M. Grypdonck,et al.  Living with early-stage dementia: a review of qualitative studies. , 2006, Journal of advanced nursing.

[10]  C. Nugent,et al.  Usability of a new electronic assistive device for community-dwelling persons with mild dementia , 2012, Aging & mental health.

[11]  Inger Hagen,et al.  Technology in dementia care , 2007 .

[12]  Bob Woods,et al.  The needs of people with dementia living at home from user, caregiver and professional perspectives: a cross-sectional survey , 2013, BMC Health Services Research.

[13]  E. van Dongen.  [Review of: T. Kitwood (1997) Dementia reconsidered: the person comes first] , 1997 .

[14]  S. Sum,et al.  Empirical studies on the effectiveness of assistive technology in the care of people with dementia: a systematic review , 2014 .

[15]  Marike Hettinga,et al.  Towards an Interactive Web Tool That Supports Shared Decision Making in Dementia : Identifying User Requirements , 2014 .

[16]  P. Topo.  Technology Studies to Meet the Needs of People With Dementia and Their Caregivers , 2009 .

[17]  Jurre Ongering,et al.  De mens zien bij dementie , 2016 .

[18]  E. Graessel,et al.  Day care for dementia patients from a family caregiver's point of view: A questionnaire study on expected quality and predictors of utilisation - Part II , 2011, BMC health services research.

[19]  A. Neufeld,et al.  Male Caregivers’ Use of Formal Support , 1999, Western journal of nursing research.

[20]  Betty Wehtje Winslow,et al.  Family caregivers' experiences with community services: a qualitative analysis. , 2003, Public health nursing.

[21]  France Légaré,et al.  Decision aids for people facing health treatment or screening decisions. , 2017, The Cochrane database of systematic reviews.

[22]  Sabine Wildevuur,et al.  Producten en diensten ter ondersteuning van thuis wonen met dementie , 2016 .

[23]  J. Knottnerus,et al.  How should we define health? , 2011, BMJ : British Medical Journal.

[24]  Boris OGUIBENINE,et al.  Long-term care and dementia services: an impending crisis. , 2006, Age and ageing.

[25]  A. Wimo,et al.  The global prevalence of dementia: A systematic review and metaanalysis , 2013, Alzheimer's & Dementia.

[26]  Rose-Marie Dröes,et al.  Quality of life in dementia in perspective , 2006 .

[27]  C. Nugent,et al.  Review of ICT-based services for identified unmet needs in people with dementia , 2007, Ageing Research Reviews.