The European Rare Kidney Disease Registry (ERKReg): objectives, design and initial results

[1]  Marco Roos,et al.  OSSE Goes FAIR - Implementation of the FAIR Data Principles for an Open-Source Registry for Rare Diseases , 2018, GMDS.

[2]  F. Bianchi,et al.  Recommendations for Improving the Quality of Rare Disease Registries , 2018, International journal of environmental research and public health.

[3]  Seth Blumenthal,et al.  Improving Interoperability between Registries and EHRs , 2018, AMIA Joint Summits on Translational Science proceedings. AMIA Joint Summits on Translational Science.

[4]  V. Héon-Klin European Reference networks for rare diseases: what is the conceptual framework? , 2017, Orphanet Journal of Rare Diseases.

[5]  C. Wanner,et al.  Renal replacement therapy for rare diseases affecting the kidney: an analysis of the ERA-EDTA Registry. , 2014, Nephrology, dialysis, transplantation : official publication of the European Dialysis and Transplant Association - European Renal Association.

[6]  G. Remuzzi,et al.  Rare inherited kidney diseases: challenges, opportunities, and perspectives , 2014, The Lancet.

[7]  Hilde van der Togt,et al.  Publisher's Note , 2003, J. Netw. Comput. Appl..