Learning from and with Menstrupedia

Menstruation has long remained a conversational taboo across India, resulting in inadequate dissemination of menstrual health education (MHE). Menstrupedia, a digital platform designed for an Indian audience, aims to bridge this information gap to impart MHE via its website and comic. We contribute a study of Menstrupedia---the information exchange on its website, the education it aims to provide, and the perceptions of its users. Using a combination of qualitative research methods, and engaging a feminist Human-Computer Interaction (HCI) lens, we critically analyze Menstrupedia's affordances and shortcomings. We also make recommendations for the design of technology-based dissemination of MHE, as well as additional sensitive and taboo topics.

[1]  Marie Louise Juul Søndergaard,et al.  Intimate Design: Designing Intimacy As a Critical-Feminist Practice , 2017, CHI Extended Abstracts.

[2]  Oliver L. Haimson,et al.  Building an online community of care: Tumblr use by transgender individuals , 2018, GenderIT.

[3]  V. Braun,et al.  Using thematic analysis in psychology , 2006 .

[4]  Rob Comber,et al.  HCI and Intimate Care as an Agenda for Change in Women's Health , 2016, CHI.

[5]  G. Schmid,et al.  Toxic-shock syndrome in menstruating women: association with tampon use and Staphylococcus aureus and clinical features in 52 cases. , 1980, The New England journal of medicine.

[6]  Madhu Reddy,et al.  Information, sharing and support in pregnancy: addressing needs for mHealth design , 2014, CSCW Companion.

[7]  Andruid Kerne,et al.  Queer Visibility: Supporting LGBT+ Selective Visibility on Social Media , 2018, CHI.

[8]  Jeremy P. Birnholtz,et al.  "Is it Weird to Still Be a Virgin": Anonymous, Locally Targeted Questions on Facebook Confession Boards , 2015, CHI.

[9]  Eric Horvitz,et al.  Major life changes and behavioral markers in social media: case of childbirth , 2013, CSCW.

[10]  Shaowen Bardzell,et al.  Pleasure is your birthright: digitally enabled designer sex toys as a case of third-wave HCI , 2011, CHI.

[11]  Michael Hammond,et al.  What is an affordance and can it help us understand the use of ICT in education? , 2010, Education and Information Technologies.

[12]  Andrew T. Campbell,et al.  BeWell+: multi-dimensional wellbeing monitoring with community-guided user feedback and energy optimization , 2012, Wireless Health.

[13]  Pinky P. Kumar,et al.  Crowdsourcing based social awareness for taboo diseases like HIV/AIDS , 2018, ACSW.

[14]  Michael A Mitchell,et al.  A confirmed case of toxic shock syndrome associated with the use of a menstrual cup , 2015, The Canadian journal of infectious diseases & medical microbiology = Journal canadien des maladies infectieuses et de la microbiologie medicale.

[15]  Minal Jain,et al.  Game based learning tool seeking peer support for empowering adolescent girls in rural Assam , 2015, IDC.

[16]  M. Sommer,et al.  Menstrual Maze: A Toy Exploring Public Engagement in Menstrual Health Education , 2018 .

[17]  Jina Huh,et al.  Clinical Questions in Online Health Communities: The Case of "See your doctor" Threads , 2015, CSCW.

[18]  Pamela Baxter,et al.  Qualitative Case Study Methodology: Study Design and Implementation for Novice Researchers , 2008 .

[19]  Naveena Karusala,et al.  Women's Safety in Public Spaces: Examining the Efficacy of Panic Buttons in New Delhi , 2017, CHI.

[20]  Rob Comber,et al.  On Looking at the Vagina through Labella , 2016, CHI.

[21]  F. Maxwell Harper,et al.  Facts or friends?: distinguishing informational and conversational questions in social Q&A sites , 2009, CHI.

[22]  Shaowen Bardzell,et al.  Feminist HCI: taking stock and outlining an agenda for design , 2010, CHI.

[23]  Deirdre A. Fullerton,et al.  Sexual health education interventions for young people: a methodological review , 1995, BMJ.

[24]  B. Foxman,et al.  Epidemiology of urinary tract infection: II. Diet, clothing, and urination habits. , 1985, American journal of public health.

[25]  Hamid Mehmood,et al.  Knowledge, Access, and Decision-Making: Women’s Financial Inclusion In Pakistan , 2018, COMPASS.

[26]  Anant Kumar,et al.  Cultural and Social Practices Regarding Menstruation among Adolescent Girls , 2011, Social work in public health.

[27]  S. Gifford,et al.  “It is Good to Know Now…Before it’s Too Late”: Promoting Sexual Health Literacy Amongst Resettled Young People With Refugee Backgrounds , 2009 .

[28]  Bryan C. Semaan,et al.  Impression Management in High Context Societies: 'Saving Face' with ICT , 2017, CSCW.

[29]  Stacey Kuznetsov,et al.  Hacking Women's Health , 2017, CHI Extended Abstracts.

[30]  Patrick Olivier,et al.  Intimate care: exploring eTextiles for teaching female pelvic fitness , 2014, DIS Companion '14.

[31]  Sardar Patel Bhavan,et al.  Ministry of Statistics & Programme Implementation , 2013 .

[32]  Kentaro Toyama,et al.  Text-Free User Interfaces for Illiterate and Semi-Literate Users , 2006, 2006 International Conference on Information and Communication Technologies and Development.

[33]  Shaowen Bardzell,et al.  Sex toys and designing for sexual wellness , 2011, CHI Extended Abstracts.

[34]  Nazanin Andalibi,et al.  Social Media for Sensitive Disclosures and Social Support: The Case of Miscarriage , 2016, GROUP.

[35]  Guo Li,et al.  SunForum: Understanding Depression in a Chinese Online Community , 2016, CSCW.

[36]  Sean A. Munson,et al.  Examining Menstrual Tracking to Inform the Design of Personal Informatics Tools , 2017, CHI.

[37]  Arun Kumar,et al.  The World Wide Telecom Web browser , 2010, ACM DEV '10.

[38]  Irina Shklovski,et al.  Let's Talk About Sex (Apps), CSCW , 2015, CSCW Companion.

[39]  E. Charters The Use of Think-aloud Methods in Qualitative Research An Introduction to Think-aloud Methods , 2003 .

[40]  Elizabeth D. Mynatt,et al.  Comparing Health Information Sharing Preferences of Cancer Patients, Doctors, and Navigators , 2015, CSCW.

[41]  S. V. Wagh,et al.  Age at Menarche and Menstrual Cycle Pattern among School Adolescent Girls in Central India , 2011, Global journal of health science.

[42]  Amy Bruckman,et al.  Domestic violence and information communication technologies , 2011, Interact. Comput..

[43]  Teresa Almeida,et al.  Designing intimate wearables to promote preventative health care practices , 2015, UbiComp/ISWC Adjunct.

[44]  Munmun De Choudhury,et al.  Mental Health Support and its Relationship to Linguistic Accommodation in Online Communities , 2018, CHI.

[45]  L. Brinton,et al.  Sexual behavior, venereal diseases, hygiene practices, and invasive cervical cancer in a high‐risk population , 1990, Cancer.

[46]  Naveena Karusala,et al.  "Only if you use English you will get to more things": Using Smartphones to Navigate Multilingualism , 2018, CHI.

[47]  Richard J. Anderson,et al.  Mobile Phones for Maternal Health in Rural India , 2015, CHI.

[48]  E. Rutanen,et al.  [Toxic shock syndrome in menstruating women]. , 1981, Duodecim; laaketieteellinen aikakauskirja.

[49]  Sophia Alice Johnson,et al.  ‘Intimate mothering publics’: comparing face-to-face support groups and Internet use for women seeking information and advice in the transition to first-time motherhood , 2015, Culture, health & sexuality.

[50]  Meredith Ringel Morris,et al.  What do people ask their social networks, and why?: a survey study of status message q&a behavior , 2010, CHI.

[51]  C. Martin 2015 , 2015, Les 25 ans de l’OMC: Une rétrospective en photos.

[52]  Tawfiq Ammari,et al.  LGBT Parents and Social Media: Advocacy, Privacy, and Disclosure during Shifting Social Movements , 2016, CHI.

[53]  Neha Kumar,et al.  Sidestepping the Elephant in the Classroom: Using Culturally Localized Technology To Teach Around Taboos , 2017, CHI.

[54]  Nazanin Andalibi,et al.  Depression-related Imagery on Instagram , 2015, CSCW Companion.

[55]  Sarah Homewood,et al.  Designing for the Changing Body: A Feminist Exploration of Self-Tracking Technologies , 2018, CHI Extended Abstracts.

[56]  Orit Shaer,et al.  Crimson Wave: Shedding Light on Menstrual Health , 2018, TEI.