Consent for long-term storage of blood samples by Indigenous Australian research participants: the DRUID Study experience

[1]  Kevin McGovern Aboriginal and Torres Strait Islander Health Research , 2008 .

[2]  Antonio Buti,et al.  Bringing Them Home , 2007 .

[3]  Margaret Scrimgeour,et al.  Ethics in Indigenous Research – Connecting with Community , 2006 .

[4]  J. Berg,et al.  Protecting Communities in Biomedical Research , 2006, The American journal of bioethics : AJOB.

[5]  N. Pfeffer,et al.  'It's only a blood test': what people know and think about venepuncture and blood. , 2006, Social science & medicine.

[6]  P. Hartge Participation in population studies. , 2006, Epidemiology.

[7]  J. Shaw,et al.  Study Protocol – Diabetes and related conditions in urban Indigenous people in the Darwin, Australia region: aims, methods and participation in the DRUID Study , 2006, BMC public health.

[8]  E. Emanuel,et al.  Are Racial and Ethnic Minorities Less Willing to Participate in Health Research? , 2005, PLoS medicine.

[9]  P. Hartge,et al.  Reporting participation in epidemiologic studies: a survey of practice. , 2006, American journal of epidemiology.

[10]  S. Hilsenbeck,et al.  Research with stored biological samples: what do research participants want? , 2005, Archives of internal medicine.

[11]  R. Macklin Some Questionable Premises About Research Ethics , 2005, The American journal of bioethics : AJOB.

[12]  T. Beauchamp How Not to Rethink Research Ethics , 2005, The American journal of bioethics : AJOB.

[13]  R. Ivers,et al.  Aboriginal and Torres Strait Islander Australians and tobacco , 2003, Tobacco control.

[14]  R. Kington,et al.  Consent for genetic research in a general population: The NHANES experience , 2003, Genetics in Medicine.

[15]  C. Grady,et al.  Ethics: Fair benefits for research in developing countries: Participants in the 2001 conference on ethical aspects of research in developing countries , 2002 .

[16]  P. Catalano,et al.  High rate of consent to bank biologic samples for future research: the Eastern Cooperative Oncology Group experience. , 2002, Journal of the National Cancer Institute.

[17]  Charles F Lynch,et al.  Racial differences in factors that influence the willingness to participate in medical research studies. , 2002, Annals of epidemiology.

[18]  Richard R Sharp,et al.  Community involvement in the ethical review of genetic research: lessons from American Indian and Alaska Native populations. , 2002, Environmental health perspectives.

[19]  M. Murphy Cells and Surveys: Should biological measures be included in Social Science research? (Book) , 2002 .

[20]  Richard R Sharp,et al.  An analysis of research guidelines on the collection and use of human biological materials from American Indian and Alaskan Native communities. , 2002, Jurimetrics.

[21]  M. Khoury,et al.  Public Attitudes regarding the Donation and Storage of Blood Specimens for Genetic Research , 2001, Public Health Genomics.

[22]  J. Botkin Informed Consent for the Collection of Biological Samples in Household Surveys , 2001 .

[23]  E. Emanuel,et al.  Protecting Communities in Biomedical Research , 2000, Science.

[24]  S. Coughlin,et al.  New ethics guidelines for epidemiology: background and rationale. , 1999, Annals of Epidemiology.

[25]  J. Devitt,et al.  Living on Medicine: A Cultural Study of End-Stage Renal Disease Among Aboriginal People , 1998 .

[26]  Tom L. Beauchamp,et al.  Ethics and epidemiology , 1998 .

[27]  Ronald Wilson,et al.  Bringing them home : report of the national inquiry into the separation of Aboriginal and Torres Strait Islander children from their families , 1997 .

[28]  Meredith Wilkie,et al.  Bringing them home : report of the national inquiry into the separation of Aboriginal and Torres Strait Islander children from their families , 1997 .

[29]  E. Ben‐Ari,et al.  Hard choices: A sociological perspective on value incommensurability , 1993 .

[30]  L. Doyal,et al.  A Theory of Human Need , 1991 .

[31]  L. Gordis Ethical and professional issues in the changing practice of epidemiology. , 1991, Journal of clinical epidemiology.

[32]  D. Hosmer,et al.  Applied Logistic Regression , 1991 .