A qualitative study of stakeholder views of a community-based anticipatory care service for patients with COPD.

BACKGROUND The need to consider anticipatory preventive care for people with chronic obstructive pulmonary disease (COPD) has been highlighted in UK guidelines and policy. AIMS To explore stakeholder views of the utility and design of a community-based anticipatory care service (CBACS) for COPD. METHODS This was a qualitative study using focus groups and in-depth interviews in North-East Scotland. Key stakeholders were purposively sampled: GPs (n=7), practice nurses (n=6), community nurses (n=4), district nurses (n=6), physiotherapists (n=6), pharmacists (n=8), COPD Managed Clinical Network members (n=8), NHS managers (n=4), the COPD Early Supported Discharge (ESD) Team (n=7), patients and carers (n=7). Data were analysed using framework analysis. RESULTS A CBACS for COPD was broadly acceptable to most participants although not all wished direct involvement. Patient education and empowerment, clear roles, effective communication across traditional service boundaries, generic and clinical skills training, ongoing support and a holistic service were seen as crucial. Potential issues included: resources; anticipatory care being in conflict with the 'reactive' ethos of NHS care; and the breadth of clinical knowledge required. CONCLUSION A CBACS for COPD requires additional resources and professionals will need to adapt to a new model of service delivery for which they may not be ready.

[1]  Jonida Lesha,et al.  ACTION RESEARCH IN EDUCATION , 2014 .

[2]  C. Karner,et al.  Primary care based clinics for asthma. , 2012, The Cochrane database of systematic reviews.

[3]  H. Bloomfield,et al.  Disease management program for chronic obstructive pulmonary disease: a randomized controlled trial. , 2010, American journal of respiratory and critical care medicine.

[4]  D. Price,et al.  From support to boundary: a qualitative study of the border between self-care and professional care. , 2010, Patient education and counseling.

[5]  John Weinman,et al.  Drop-out and attendance in pulmonary rehabilitation: the role of clinical and psychosocial variables. , 2009, Respiratory medicine.

[6]  A. Sheikh,et al.  Is multidisciplinary teamwork the key? A qualitative study of the development of respiratory services in the UK , 2009, Journal of the Royal Society of Medicine.

[7]  M. Petticrew,et al.  Developing and evaluating complex interventions: the new Medical Research Council guidance , 2008, BMJ : British Medical Journal.

[8]  W. Ghali,et al.  Effectiveness of chronic obstructive pulmonary disease-management programs: systematic review and meta-analysis. , 2008, The American journal of medicine.

[9]  E. Walters,et al.  Self-management education for patients with chronic obstructive pulmonary disease. , 2007, The Cochrane database of systematic reviews.

[10]  Angela E. Williams,et al.  Health status impairment and costs associated with COPD exacerbation managed in hospital , 2007, International journal of clinical practice.

[11]  B. Smith Chronic obstructive pulmonary disease management trials, including coordinated care, outreach nursing, and other attempted care innovations , 2006 .

[12]  P. Martin Review of nursing in the community in Scotland. , 2006, Community practitioner : the journal of the Community Practitioners' & Health Visitors' Association.

[13]  D. Price,et al.  Can a GP be a generalist and a specialist? Stakeholders views on a respiratory General Practitioner with a special interest service in the UK , 2006, BMC Health Services Research.

[14]  Michael Greenstone,et al.  Hospital at home for patients with acute exacerbations of chronic obstructive pulmonary disease: systematic review of evidence , 2004, BMJ : British Medical Journal.

[15]  Susan Michie,et al.  Changing clinical behaviour by making guidelines specific , 2004, BMJ : British Medical Journal.

[16]  E. Wouters Economic analysis of the Confronting COPD survey: an overview of results. , 2003, Respiratory medicine.

[17]  F. Maltais,et al.  Reduction of hospital utilization in patients with chronic obstructive pulmonary disease: a disease-specific self-management intervention. , 2003, Archives of internal medicine.

[18]  A. Hassey,et al.  Barriers to developing the nurse practitioner role in primary care-the GP perspective. , 2002, Family practice.

[19]  T. Seemungal,et al.  Relationship between exacerbation frequency and lung function decline in chronic obstructive pulmonary disease , 2002, Thorax.

[20]  L. Spencer,et al.  Qualitative data analysis for applied policy research , 2002 .

[21]  Marie Johnston,et al.  Application of the Theory of Planned Behaviour in Behaviour Change Interventions: A Systematic Review , 2002 .

[22]  H. Sullivan,et al.  Working Across Boundaries , 2002 .

[23]  W. MacNee,et al.  Randomised controlled trial of supported discharge in patients with exacerbations of chronic obstructive pulmonary disease , 2000 .

[24]  T. Seemungal,et al.  Time course and recovery of exacerbations in patients with chronic obstructive pulmonary disease. , 2000, American journal of respiratory and critical care medicine.

[25]  S. Ziebland,et al.  Analysing qualitative data , 2000, BMJ : British Medical Journal.

[26]  W. MacNee,et al.  Randomized controlled trial of supported discharge in patients with exacerbations of chronic obstructive pulmonary disease. , 2000, Thorax.

[27]  C. Pope,et al.  Qualitative Research in Health Care , 1999 .

[28]  C. Farquhar,et al.  Are focus groups suitable for 'sensitive' topics? , 1999 .

[29]  J. Kitzinger,et al.  Developing Focus Group Research: Politics, Theory and Practice , 1998 .

[30]  S. Shepperd,et al.  Randomised controlled trial comparing hospital at home care with inpatient hospital care. I: three month follow up of health outcomes. , 1998, BMJ.

[31]  T. Seemungal,et al.  Effect of exacerbation on quality of life in patients with chronic obstructive pulmonary disease. , 1998, American journal of respiratory and critical care medicine.

[32]  Liz Clarke,et al.  The Essence of Change , 1994 .