Consumer Health Information: the growth of an Information Specialism

Increasing attention has been given over the last decade to the topic of health care information for patients and the public. This is called consumer health information and it encompasses information about health and illness at a lay level; information about health care services available from the statutory and voluntary sectors; and information about choices in treatment and care. This is not a uniquely modern phenomenon. A study of self care and early lay medical publishing shows a robust and continuing tradition of people looking after themselves, without recourse to health professionals and with advice from various vernacular sources. However it is only since the 1970s that libraries and information services have developed to provide ready access for the public to consumer health information. The first consumer health information (CHI) services were established in the United States. By the late 1970s the first uk services had been established in Stevenage and Southampton. For most of the 1980s these were the only well developed CHI services in the UK library world, with most health information reaching consumers through a variety of non‐library advice agencies. The last two or three years have seen a flowering of CHI services, with the encouragement of official policies on consumer choice and quality assurance. There have been advances in the bibliographic control of the subject with the availability of new CHI databases. This emerging information specialism is now reaching maturity with a new concern with quality of service.

[1]  C. Elliott-Binns An analysis of lay medicine. , 1973, The Journal of the Royal College of General Practitioners.

[2]  L. MacKinney Medical ethics and etiquette in the early Middle Ages: the persistence of Hippocratic ideals. , 1952, Bulletin of the history of medicine.

[3]  R. Stewart,et al.  A review of medication errors and compliance in ambulant patients , 1972, Clinical pharmacology and therapeutics.

[4]  L F Lunin,et al.  CHID: a unique health information and education database. , 1987, Bulletin of the Medical Library Association.

[5]  R. Gann Information services and health promotion , 1986, Health education journal.

[6]  M. Slevin,et al.  BACUP--the first two years: evaluation of a national cancer information service. , 1988, BMJ.

[7]  B. Kirkpatrick,et al.  Medical libraries and the public: friends, foes and frustrations. , 1987, Bulletin of the New York Academy of Medicine.

[8]  E Gartenfeld,et al.  The community health information network: a model for hospital and public library cooperation. , 1978, Library journal.

[9]  F. Fiori,et al.  Health Education in a Hospital Setting: Report of a Public Health Service Project in Newark, New Jersey , 1974 .

[10]  R. Porter,et al.  Spreading Carnal Knowledge or Selling Dirt Cheap? Nicolas Venette's Tableau de l'Amour Conjugal in Eighteenth Century England , 1984, Journal of European studies.

[11]  V. Clement-Jones Cancer and beyond: the formation of BACUP. , 1985, British medical journal.

[12]  R Gann The people their own physicians: 2000 years of patient information. , 1987, Health libraries review.

[13]  M. Edwards Satisfying patients needs for surgical information , 1990, The British journal of surgery.

[14]  E. Bartlett,et al.  Historical glimpses of patient education in the United States. , 1986, Patient education and counseling.

[15]  G G Hannigan,et al.  Consumer health information: libraries as partners. , 1980, Bulletin of the Medical Library Association.

[16]  J. Mitchell,et al.  Is an information booklet for patients leaving hospital helpful and useful? , 1989, BMJ.

[17]  E Y Goodchild,et al.  The CHIPS project: a health information network to serve the consumer. , 1978, Bulletin of the Medical Library Association.

[18]  R. Haynes,et al.  Patient education and health outcomes: implications for library service. , 1983, Bulletin of the Medical Library Association.

[19]  The potential of health education includes cost effectiveness. , 1976 .

[20]  C. Rayner Reality and expectation of the British National Health Service Consumer. , 1979, Journal of advanced nursing.

[21]  R. Lafaille,et al.  The regimen of Salerno, a contemporary analysis of a medieval healthy life style program , 1990 .