"It Isn't the Same": Experiences of Informal Caregivers of Older Adults Enrolled in a Home-Based Senior Care Program During COVID-19.

The coronavirus disease 2019 (COVID-19) pandemic placed new strains on informal caregivers, who are already vulnerable to negative psychosocial effects due to demands of the caregiving role. The current study aimed to explore the early impact of COVID-19 on caregivers living with and apart from care recipients. Semi-structured qualitative interviews with seven cohabitating and 10 distanced caregivers of patients in a home-based primary care program were conducted from April to November 2020. A framework matrix was used to identify patterns in caregiver experiences. Cohabitating and distanced caregivers reported shared concerns about COVID-19 and unique concerns dependent on cohabitation status. Cohabitating caregivers reported financial worries, care recipients with dementia being unable to understand restrictions, and concerns about community business changes. Distanced caregivers reported communication challenges with cognitively impaired care recipients and challenges with visitation policies. During pandemics, caregivers' clinical and policy support needs may differ depending on their place of residence relative to care recipients. [Journal of Gerontological Nursing, 49(3), 19-26.].

[1]  R. Schulz,et al.  Family Caregiving During the COVID-19 Pandemic , 2021, The Gerontologist.

[2]  H. Young,et al.  Impact of the COVID-19 Pandemic on Family Caregivers , 2020, Innovation in Aging.

[3]  A. Stewart,et al.  Effects of COVID-19 on Informal Caregivers and the Development and Validation of a Scale in English and Spanish to Measure the Impact of COVID-19 on Caregivers , 2020, Journal of applied gerontology : the official journal of the Southern Gerontological Society.

[4]  D. Roth,et al.  Effects of Transitions to Family Caregiving on Well‐Being: A Longitudinal Population‐Based Study , 2020, Journal of the American Geriatrics Society.

[5]  Mark E. Howard,et al.  Mental Health, Substance Use, and Suicidal Ideation During the COVID-19 Pandemic — United States, June 24–30, 2020 , 2020, MMWR. Morbidity and mortality weekly report.

[6]  Luci K. Leykum,et al.  Caring for Caregivers During COVID‐19 , 2020, Journal of the American Geriatrics Society.

[7]  L. Brown,et al.  Impact of COVID-19 pandemic restrictions on community-dwelling caregivers and persons with dementia. , 2020, Psychological trauma : theory, research, practice and policy.

[8]  Edem Hado,et al.  Amid the COVID-19 Pandemic, Meaningful Communication between Family Caregivers and Residents of Long-Term Care Facilities is Imperative , 2020, Journal of aging & social policy.

[9]  M. Aranda,et al.  Caregiving in the U.S. 2020 , 2020 .

[10]  N. Morrow-Howell,et al.  Recovering from the COVID-19 Pandemic: A Focus on Older Adults , 2020, Journal of aging & social policy.

[11]  A. Houser,et al.  Valuing the Invaluable: 2019 Update: Charting a Path Forward , 2019 .

[12]  D. Ji,et al.  Prevalence of psychological symptoms among Ebola survivors and healthcare workers during the 2014-2015 Ebola outbreak in Sierra Leone: a cross-sectional study , 2017, Oncotarget.

[13]  D. V. D. Wal,et al.  Living Under the Constant Threat of Ebola: A Phenomenological Study of Survivors and Family Caregivers During an Ebola Outbreak , 2015, The journal of nursing research : JNR.

[14]  C. Chu,et al.  Stress and Psychological Impact on SARS Patients during the Outbreak , 2004, Canadian journal of psychiatry. Revue canadienne de psychiatrie.

[15]  Martin Pinquart,et al.  Differences between caregivers and noncaregivers in psychological health and physical health: a meta-analysis. , 2003, Psychology and aging.