Implementing participatory intervention and research in communities: lessons from the Kahnawake Schools Diabetes Prevention Project in Canada.

Community public health interventions based on citizen and community participation are increasingly discussed as promising avenues for the reduction of health inequalities and the promotion of social justice. However, very few authors have provided explicit principles and guidelines for planning and implementing such interventions, especially when they are linked with research. Traditional approaches to public health programming emphasise expert knowledge, advanced detailed planning, and the separation of research from intervention. Despite the usefulness of these approaches for evaluating targeted narrow-focused interventions, they may not be appropriate in community health promotion, especially in Aboriginal communities. Using the experience of the Kahnawake Schools Diabetes Prevention Project, in Canada, this paper elaborates four principles as basic components for an implementation model of community programmes. The principles are: (1) the integration of community people and researchers as equal partners in every phase of the project, (2) the structural and functional integration of the intervention and evaluation research components, (3) having a flexible agenda responsive to demands from the broader environment, and (4) the creation of a project that represents learning opportunities for all those involved. The emerging implementation model for community interventions, as exemplified by this project, is one that conceives a programme as a dynamic social space, the contours and vision of which are defined through an ongoing negotiation process.

[1]  Steuart Gw Social and Behavioral Change Strategies , 1993 .

[2]  A. P. Schwartz The Open Society , 1968 .

[3]  T. K. Young The Health of Native Americans: Toward a Biocultural Epidemiology , 1994 .

[4]  K. Travers,et al.  Reducing Inequities through Participatory Research and Community Empowerment , 1997, Health education & behavior : the official publication of the Society for Public Health Education.

[5]  R Kirby,et al.  The Kahnawake Schools Diabetes Prevention Project: intervention, evaluation, and baseline results of a diabetes primary prevention program with a native community in Canada. , 1997, Preventive medicine.

[6]  J. Frankish,et al.  PARTICIPATORY RESEARCH IN HEALTH PROMOTION , 2000 .

[7]  A. Macaulay,et al.  Participatory research maximises community and lay involvement , 1999 .

[8]  E. Nowgesic Kahnawake Schools Diabetes Prevention Project , 2003 .

[9]  D Johnston,et al.  Implications of the results of community intervention trials. , 1998, Annual review of public health.

[10]  K. Lewin Action Research and Minority Problems , 1946 .

[11]  A. Macaulay,et al.  Anthropometric characteristics of Mohawk children aged 6 to 11 years: a population perspective. , 1999, Journal of the American Dietetic Association.

[12]  R. Hollister,et al.  Problems in the Evaluation of Community-Wide Initiatives , 1995 .

[13]  James P. Connell and Anne C. Kubisch Applying a Theory of Change Approach to the Evaluation of Comprehensive Community Initiatives: Progress, Prospects, and Problems , 1998 .

[14]  T. L. Davies,et al.  EDUCATION FOR HEALTH , 1944 .

[15]  Alice F. Purdey,et al.  Participatory Health Development in Rural Nepal: Clarifying the Process of Community Empowerment , 1994, Health education quarterly.

[16]  Lawrence W. Green,et al.  Book Review , 2000 .

[17]  Mayer N. Zald,et al.  : Planning and Organizing for Social Change: Action Principles from Social Science Research , 1975 .

[18]  Planning and Evaluation in Health Education , 1993 .

[19]  G. Mooney,et al.  "Communitarian claims" as an ethical basis for allocating health care resources. , 1998, Social science & medicine.

[20]  Ray Pawson,et al.  Nothing as Practical as a Good Theory , 2003 .

[21]  E. Fisher The results of the COMMIT trial. Community Intervention Trial for Smoking Cessation. , 1995, American journal of public health.

[22]  L. Potvin,et al.  A framework for health promotion evaluation. , 2001, WHO regional publications. European series.

[23]  L. Green,et al.  Health Promotion Planning: An Educational and Environmental Approach , 1991 .

[24]  M. Winkleby The future of community-based cardiovascular disease intervention studies. , 1994, American journal of public health.

[25]  G. Mooney The values of public health: hopefully not a final word… , 2000, Australian and New Zealand journal of public health.

[26]  References , 1971 .

[27]  S. Fawcett,et al.  A review of collaborative partnerships as a strategy for improving community health. , 2000, Annual review of public health.

[28]  D. Nyswander The Open Society: Its Implications for Health Educators* , 1967 .

[29]  A. Macaulay,et al.  Participatory Research with Native Community of Kahnawake Creates Innovative Code of Research Ethics , 1998, Canadian journal of public health = Revue canadienne de sante publique.

[30]  Rhonda K. Lewis,et al.  Using empowerment theory in collaborative partnerships for community health and development , 1995, American journal of community psychology.

[31]  B. Flay Efficacy and effectiveness trials (and other phases of research) in the development of health promotion programs. , 1986, Preventive medicine.

[32]  A. Macaulay,et al.  Developing a Code of Research Ethics for research with a Native community in Canada: a report from the Kahnawake Schools Diabetes Prevention Project. , 1998, International journal of circumpolar health.

[33]  Mark W. Lipsey,et al.  Theory as method: Small theories of treatments , 1993 .

[34]  M. Ross,et al.  Community organization : theory, principles, and practice , 1967 .

[35]  L. Green,et al.  Ecological Foundations of Health Promotion , 1996, American journal of health promotion : AJHP.

[36]  A. Macaulay,et al.  Prevalence of diabetic and atherosclerotic complications among Mohawk Indians of Kahnawake, PQ. , 1988, CMAJ : Canadian Medical Association journal = journal de l'Association medicale canadienne.