Parent-child interactions when young children have disabilities

Publisher Summary This chapter discusses parent–child interactions for young children with disabilities. A major focus of the research on parent–child interactions has been to document what characteristics of parental interactive behavior promote and enhance child developmental outcomes, both short term and long term. The primary focus in this chapter is on the studies with children with disabilities or those at risk for developmental delay. Some of the literature based on the samples of children, who are typically developing, is also included in the discussion to highlight the major themes and issues and to provide comparison groups. The chapter describes selected studies with five populations of children, those with: (a) Down syndrome or mental retardation, (b) developmental delay, (c) orthopedic or motor impairments or cerebral palsy, (d) autism, and (e) low birth weight. Also, the focus is on the studies of behavioral interactions but not on parenting beliefs or attitudes. The chapter concludes with a brief discussion of intervention studies with young children with disabilities or delays aimed at promoting positive parent–child interactions.

[1]  K. Loveland,et al.  Communication behaviors in autism and developmental language delay. , 1988, Journal of child psychology and psychiatry, and allied disciplines.

[2]  M. Rutter,et al.  Pathways from childhood to adult life. , 1989, Journal of child psychology and psychiatry, and allied disciplines.

[3]  L. Schreibman,et al.  Collateral effects of parent training on family interactions , 1996, Journal of autism and developmental disorders.

[4]  G. Mahoney,et al.  Parent-Child Interaction—The Foundation for Family-Centered Early Intervention Practice , 1997 .

[5]  L. Atkinson,et al.  Cognitive coping, affective distress, and maternal sensitivity: Mothers of children with Down syndrome. , 1995 .

[6]  Barnett Ws,et al.  Effects of children with Down syndrome on parents' activities. , 1995 .

[7]  Ross A. Thompson,et al.  Emotional Responses of Down Syndrome and Normal Infants in the Strange Situation; The Organization of Affective Behavior in Infants , 1985 .

[8]  Timothy B. Smith,et al.  Depressive Symptomatology and Interaction Behaviors of Mothers Having a Child with Disabilities , 1993, Psychological reports.

[9]  Marc H. Bornstein,et al.  Maternal responsiveness : characteristics and consequences , 1989 .

[10]  J. Brooks-Gunn,et al.  Enhancing maternal interactive behavior and child social competence in low birth weight, premature infants. , 1993, Child development.

[11]  J. Kelly,et al.  Handbook of Early Childhood Intervention: Assessment of Parent–Child Interaction: Implications for Early Intervention , 2000 .

[12]  M. Guralnick,et al.  The Effectiveness of Early Intervention. , 1997 .

[13]  D. Cicchetti,et al.  Structural and Affective Dimensions of Play Development in Young Children with Down Syndrome , 1989 .

[14]  J. Goodman,et al.  Repetitive Activity in the Play of Children With Mental Retardation , 1998 .

[15]  Dante Cicchetti,et al.  Children with Down Syndrome: A Developmental Perspective , 1990 .

[16]  J. Shonkoff,et al.  Adaptation during early childhood among mothers of children with disabilities. , 1999, Journal of developmental and behavioral pediatrics : JDBP.

[17]  H. Levine,et al.  Conversational roles of children with developmental delays and their mothers in natural and semi-structured situations. , 1993, American journal of mental retardation : AJMR.

[18]  K. A. Hildebrandt,et al.  Prematurity stereotyping: effects on mother-infant interaction. , 1986, Child development.

[19]  S. Reilly,et al.  AN EXPLORATION OF FEEDING DIFFICULTIES IN CHILDREN WITH DOWN SYNDROME , 1996, Developmental medicine and child neurology.

[20]  P. Mundy,et al.  Joint Attention and Early Social Communication: Implications for Research on Intervention with Autism , 1997, Journal of autism and developmental disorders.

[21]  A. Turnbull,et al.  Handbook of Early Childhood Intervention: Evolution of Family–Professional Partnerships: Collective Empowerment as the Model for the Early Twenty-First Century , 2000 .

[22]  P. Mundy,et al.  A longitudinal study of joint attention and language development in autistic children , 1990, Journal of autism and developmental disorders.

[23]  K. Loveland,et al.  The effect of social context on the functional communication skills of autistic children , 1989, Journal of autism and developmental disorders.

[24]  H. Goldstein,et al.  An Exploratory Comparison of Milieu Teaching and Responsive Interaction in Classroom Applications , 1995 .

[25]  Fred R. Volkmar,et al.  Handbook of autism and pervasive developmental disorders, 2nd ed. , 1997 .

[26]  Lev Vygotsky Mind in society , 1978 .

[27]  H. Levine Understanding practice: Context and scaffolding in developmental studies of mother–child problem-solving dyads , 1993 .

[28]  C. Moore,et al.  Targets and cues: gaze-following in children with autism. , 1998, Journal of child psychology and psychiatry, and allied disciplines.

[29]  Allison Sidle Fuligni,et al.  Early childhood intervention programs: What about the family? , 2000 .

[30]  T A Walden,et al.  Contingent provision of social referential information by parents of children with and without developmental delays. , 1991, American journal of mental retardation : AJMR.

[31]  G. Mahoney,et al.  The Effects of Directive Communications on Children's Interactive Engagement , 1996 .

[32]  D. Phillips,et al.  From Neurons to Neighborhoods: The Science of Early Childhood Development , 2000 .

[33]  P. Garner,et al.  Effects of Social Context and Mothers' Requesting Strategies on Down's Syndrome Children's Social Responsiveness. , 1994 .

[34]  M. Fischer Mother-child interaction in preverbal children with Down syndrome. , 1987, The Journal of speech and hearing disorders.

[35]  S. Warren,et al.  The Role of Directives in Early Language Intervention , 1995 .

[36]  P. Mundy,et al.  Caregiver interactions with autistic children , 1988, Journal of abnormal child psychology.

[37]  P. Strain,et al.  The Need for Longitudinal, Intensive Social Skill Intervention , 2000 .

[38]  T. Crowe TIME USE OF MOTHERS WITH YOUNG CHILDREN: THE IMPACT OF A CHILD'S DISABILITY , 1993, Developmental medicine and child neurology.

[39]  The Structure of Mother-Child Play: Young Children with Down Syndrome and Typically Developing Children. , 1998 .

[40]  E. Zigler Developmental versus difference theories of mental retardation and the problem of motivation. , 1969, American journal of mental deficiency.

[41]  G. Dawson,et al.  Early recognition of children with autism: A study of first birthday home videotapes , 1994, Journal of autism and developmental disorders.

[42]  C. Saylor,et al.  Influences on responsiveness: Interactions between mothers and their premature infants , 1991 .

[43]  D. Wacker,et al.  Evaluation and Long‐Term Treatment of Aberrant Behavior Displayed by Young Children with Disabilities , 1998, Journal of developmental and behavioral pediatrics : JDBP.

[44]  Barbara H. Fiese,et al.  Transactional regulation: The developmental ecology of early intervention. , 2000 .

[45]  G. Kochanska,et al.  Mutually responsive orientation between mothers and their young children: implications for early socialization. , 1997, Child development.

[46]  E E Maccoby,et al.  Parenting and its effects on children: on reading and misreading behavior genetics. , 2000, Annual review of psychology.

[47]  L. Siegel,et al.  Language intervention with children who have developmental delays: effects of an interactive approach. , 1992, American journal of mental retardation : AJMR.

[48]  G. Mahoney,et al.  The Relationship of Parent-Child Interaction to the Effectiveness of Early Intervention Services for at-Risk Children and Children with Disabilities , 1998 .

[49]  H. Papoušek,et al.  Intuitive parenting: A dialectic counterpart to the infant's integrative competence. , 1987 .

[50]  A. Niccols,et al.  Parent Training in Groups: Pilot Study with Parents of Infants with Developmental Delay , 2000 .

[51]  M. Sigman,et al.  Continuity and change in the social competence of children with autism, Down syndrome, and developmental delays. , 1999, Monographs of the Society for Research in Child Development.

[52]  F. Volkmar,et al.  Handbook of Autism and Pervasive Developmental Disorders , 1987 .

[53]  S. Warren,et al.  The relationship between prelinguistic vocalization and later expressive vocabulary in young children with developmental delay. , 1999, Journal of speech, language, and hearing research : JSLHR.

[54]  S. McHale,et al.  Family life problems, daily caregiving activities, and the psychological well-being of mothers of mentally retarded children. , 1989, American journal of mental retardation : AJMR.

[55]  A. Sameroff,et al.  Positive effects of interaction coaching on infants with developmental disabilities and their mothers. , 1991, American journal of mental retardation : AJMR.

[56]  Edward Zigler,et al.  Handbook of Mental Retardation and Development , 1998 .

[57]  P. Kroonenberg,et al.  The relative effects of maternal and child problems on the quality of attachment: a meta-analysis of attachment in clinical samples. , 1992, Child development.

[58]  B. Eheart Mother-child interactions with nonretarded and mentally retarded preschoolers. , 1982, American journal of mental deficiency.

[59]  A. Kaiser,et al.  The Effects of Teaching Parents to Use Responsive Interaction Strategies , 1996 .

[60]  S. Fisman,et al.  The handicapped child: psychological effects of parental, marital, and sibling relationships. , 1991, The Psychiatric clinics of North America.

[61]  K. Marfo Correlates of maternal directiveness with children who are developmentally delayed. , 1992, The American journal of orthopsychiatry.

[62]  R. Tannock,et al.  Improving Joint Engagement in Parent-Child Interaction , 1994 .

[63]  I. Schwartz Standing on the Shoulders of Giants , 2000 .

[64]  S. Landry The development of joint attention in premature low birth weight infants: Effects of early medical complications and maternal attention-directing behaviors. , 1995 .

[65]  S. Harris,et al.  Perceptions of Child Attachment and Maternal Gratification in Mothers of Children With Autism and Down Syndrome , 1990 .

[66]  M. Konstantareas,et al.  Maternal speech to verbal and higher functioning versus nonverbal and lower functioning autistic children , 1988, Journal of autism and developmental disorders.

[67]  M. Bornstein,et al.  Maternal responsiveness and cognitive development in children. , 1989, New directions for child development.

[68]  D. MacGregor,et al.  Influences on Maternal Responsiveness to Developmentally Delayed Preschoolers , 1990 .

[69]  E. Zigler,et al.  Children with Down syndrome: Applying the developmental perspective to individuals with Down syndrome , 1990 .

[70]  L. Mortensen,et al.  Child characteristics, family demographics and family processes: Their effects on the stress experienced by families of children with disabilities , 1991 .

[71]  S. Landry,et al.  The relation of medical risk and maternal stimulation with preterm infants' development of cognitive, language and daily living skills. , 1996, Journal of child psychology and psychiatry, and allied disciplines.

[72]  G. Mahoney,et al.  Maternal directive behavior revisited. , 1990, American journal of mental retardation : AJMR.

[73]  Brian E. Vaughn,et al.  Relations among sustained engagement during play, quality of play, and mother-child interaction in samples of children with down syndrome and normally developing toddlers , 1995 .

[74]  M. Hoffman,et al.  Review of Child Development Research , 1966 .

[75]  C. Moore,et al.  Attention and joint attention in preschool children with autism. , 2000, Developmental psychology.

[76]  K. Loveland,et al.  Speech acts and the pragmatic deficits of autism. , 1988, Journal of speech and hearing research.

[77]  S. Cohen Biosocial Factors in Early Infancy as Predictors of Competence in Adolescents Who Were Born Prematurely , 1995, Journal of developmental and behavioral pediatrics : JDBP.

[78]  R. Seifer,et al.  Maternal interaction patterns and preschool competence in high-risk children. , 1998, Nursing research.

[79]  H. Keller,et al.  Intuitive parenting and infant behavior: concepts, implications, and empirical validation. , 1997, The Journal of genetic psychology.

[80]  P. Mundy,et al.  Attention to people and toys during social and object mastery in children with Down syndrome. , 1994, American journal of mental retardation : AJMR.

[81]  M. Roach,et al.  Rhythms in the dialogue of infant feeding: Preterm and term infants , 1990 .

[82]  C. Dunst Revisiting "Rethinking Early Intervention" , 2000 .

[83]  G. Wasserman,et al.  Maternal withdrawal from handicapped toddlers. , 1985, Journal of child psychology and psychiatry, and allied disciplines.

[84]  M. Barratt,et al.  Early channels of mother-infant communication: preterm and term infants. , 1992, Journal of child psychology and psychiatry, and allied disciplines.

[85]  J. Wertsch,et al.  The Adult-Child Dyad as a Problem-solving System. , 1980 .

[86]  S. Landry,et al.  Early maternal and child influences on children's later independent cognitive and social functioning. , 2000, Child development.

[87]  G. Mahoney,et al.  Clinical Assessments of Parent-Child Interaction , 1996 .

[88]  C. Nilholm The Zone of Proximal Development: A Comparison of Children with Down Syndrome and Typical Children. , 1999 .

[89]  C. Dissanayake,et al.  Autistic Children's Responses to Separation and Reunion with Their Mothers , 1997, Journal of autism and developmental disorders.

[90]  Stefani J. Hines,et al.  Effectiveness of early intervention for children with Down syndrome , 1996 .

[91]  M. Barratt,et al.  The Impact of Low-risk Prematurity on Maternal Behaviour and Toddler Outcomes , 1996 .

[92]  S. Warren,et al.  Maternal responsivity predicts the prelinguistic communication intervention that facilitates generalized intentional communication. , 1998, Journal of speech, language, and hearing research : JSLHR.

[93]  W. Stone,et al.  Patterns of adaptive behavior in very young children with autism. , 1999, American journal of mental retardation : AJMR.

[94]  C. Dunst Rethinking early intervention , 2021, Children and Young People Now.

[95]  C. Moore,et al.  Joint attention : its origins and role in development , 1995 .

[96]  D. Bailey,et al.  Family Outcomes in Early Intervention: A Framework for Program Evaluation and Efficacy Research , 1998 .

[97]  Alexander Thomas,et al.  Annual Progress in Child Psychiatry and Child Development. , 1986 .

[98]  S. Goldberg Social Competence in Infancy: A Model of Parent-Infant Interaction. , 1977 .

[99]  A Bundy,et al.  Playfulness in children with and without disability: measurement and intervention. , 2000, The American journal of occupational therapy : official publication of the American Occupational Therapy Association.

[100]  Nancy B. Richard Interaction Between Mothers and Infants with Down Syndrome , 1986 .

[101]  J. Goodman,et al.  Played Out? Passive Behavior by Children With Down Syndrome During Unstructured Play , 2000 .

[102]  D. Pederson,et al.  Predictors of Individual Differences in Attention Among Low Birth Weight Children , 1997, Journal of developmental and behavioral pediatrics : JDBP.

[103]  S. Landry Effects of Maternal Scaffolding during Joint Toy Play with Preterm and Full-Term Infants. , 1996 .

[104]  M. Tomasello,et al.  Joint attention and early language. , 1986, Child development.

[105]  M. A. Metzger,et al.  Matemal Regulation of Children's Problem-solving Behavior and Its Impact on Children's Performance , 2022 .

[106]  L Beckwith,et al.  Preterm children at early adolescence and continuity and discontinuity in maternal responsiveness from infancy. , 1992, Child development.

[107]  S. Crawley,et al.  Mother-child interactions involving two-year-olds with Down syndrome: a look at individual differences. , 1983, Child development.

[108]  S. Goldberg Premature birth: consequences for the parent-infant relationship. , 1979, American scientist.

[109]  L. Glidden What we do not know about families with children who have developmental disabilities: Questionnaire on Resources and Stress as a case study. , 1993, American journal of mental retardation : AJMR.

[110]  L. Adamson,et al.  Joint attention in preverbal children: Autism and developmental language disorder , 1996, Journal of autism and developmental disorders.

[111]  L. Harper,et al.  Child Effects on Adults , 1977 .

[112]  P. Mundy,et al.  Attention regulation by children with Down syndrome: coordinated joint attention and social referencing looks. , 1995, American journal of mental retardation : AJMR.

[113]  B. Lester,et al.  Family-based intervention improves maternal psychological well-being and feeding interaction of preterm infants. , 1994, Pediatrics.

[114]  C. Mccarton Behavioral outcomes in low birth weight infants. , 1998, Pediatrics.

[115]  Mark S. Innocenti,et al.  Families of Children with Disabilities: Normative Data and Other Considerations on Parenting Stress , 1992 .

[116]  E. Zigler Handbook of Early Childhood Intervention edited by Jack P. Shonkoff , 2000 .

[117]  S. Crossley,et al.  Proximity and sociable behaviours in autism: evidence for attachment. , 1996, Journal of child psychology and psychiatry, and allied disciplines.

[118]  E. Waters,et al.  Growing points of attachment theory and research , 1985 .

[119]  H. Tager-Flusberg,et al.  An Investigation of Attention and Affect in Children with Autism and Down Syndrome , 1997, Journal of autism and developmental disorders.

[120]  D. Cicchetti,et al.  Mothers' ratings of the temperament characteristics of Down Syndrome infants. , 1982 .

[121]  S. Warren,et al.  Maternal Responsivity Mediates the Relationship Between Prelinguistic Intentional Communication and Later Language , 1999 .

[122]  R. Q. Bell A reinterpretation of the direction of effects in studies of socialization. , 1968, Psychological review.

[123]  J. Osofsky Handbook of infant development , 1979 .

[124]  S. Harel,et al.  Maternal directiveness and infant compliance at one year of age: a comparison between mothers and their developmentally-delayed infants and mothers and their nondelayed infants. , 1995, Journal of child psychology and psychiatry, and allied disciplines.

[125]  K. Loveland,et al.  Joint attention and language in autism and developmental language delay , 1986, Journal of autism and developmental disorders.

[126]  In-home observations of young Down syndrome children with their mothers and fathers. , 1983, American journal of mental deficiency.

[127]  M. Bornstein,et al.  Contemporary research on parenting. The case for nature and nurture. , 2000, The American psychologist.

[128]  J. Hanzlik,et al.  Interactions of Mothers with Their Infants Who Are Mentally Retarded, Retarded with Cerebral Palsy, or Nonretarded , 1986, American journal of mental deficiency.

[129]  C. Kasari,et al.  Linking Parental Perceptions to Interactions in Young Children with Autism , 1997, Journal of autism and developmental disorders.

[130]  Jeffrey Harris,et al.  Why children turn out the way they do , 1998 .

[131]  G. Dawson,et al.  Affective exchanges between young autistic children and their mothers , 1990, Journal of abnormal child psychology.

[132]  L. von Wendt,et al.  Temperament profiles and their role in neurodevelopmental assessed preterm children at two years of age , 1998, European Child & Adolescent Psychiatry.

[133]  C. Kasari,et al.  Joint attention and language gains in children with Down syndrome. , 1996, American journal of mental retardation : AJMR.

[134]  E. Tiegerman,et al.  Individual patterns of interaction in the mother‐child dyad: implications for parent intervention , 1984 .

[135]  J. Lave,et al.  Understanding Practice: Perspectives on Activity and Context , 1996 .

[136]  P. Hauser-Cram Mastery motivation in toddlers with developmental disabilities. , 1996, Child development.