Open Access Digital Data Sharing: Principles, Policies and Practices☆

Open access to research data is increasingly being institutionalized across funding and research-related organizations through data sharing policies. Compliance with these policies has been hampered by reluctance, amongst many social and natural scientists, to release data on an open access basis. Dominant approaches to tackling data sharing obstacles focus on methodological, ethical, legal, scientific and technological infrastructures. This article explores barriers to data sharing through examination of the changing conditions and practices of data sharing; specifically, the recent introduction of digital data sharing policies and their institutionalization of open access as a normative data sharing model. The scientific, moral and political assumptions underpinning open access digital data sharing policies and principles are examined, and their implications considered for data sharing practices. The paper suggests that data sharing obstacles may be understood in terms of a policy–practice divide, whereby data sharing policies fail to recognize data sharing as a relational practice. In conclusion, alternative relational approaches to data sharing policies are proposed, drawing on the Mass Observation Archive guidelines as a useful illustrative model.

[1]  S. O’Brien Stewardship of human biospecimens, DNA, genotype, and clinical data in the GWAS era. , 2009, Annual review of genomics and human genetics.

[2]  Emilio M. Bruna Scientific Journals can Advance Tropical Biology and Conservation by Requiring Data Archiving , 2010 .

[3]  A. Rees Reflections on the Field , 2007 .

[4]  Alan H. Shapley,et al.  World data centers , 1982 .

[5]  Niamh Moore,et al.  (Re)Using Qualitative Data? [1] , 2007 .

[6]  David Bawden,et al.  Memory Practices in the Sciences , 2007 .

[7]  Dirk Pilat,et al.  OECD Principles and Guidelines for Access to Research Data from Public Funding , 2007, Data Sci. J..

[8]  R. Edwards,et al.  Ethics and feminist research: theory and practice , 2012 .

[9]  J. Heaton Reworking Qualitative Data , 2004 .

[10]  D. Wolf Feminist Dilemmas In Fieldwork , 1997 .

[11]  Ann Zimmerman,et al.  New Knowledge from Old Data , 2008 .

[12]  V. Morrow Working Paper 53. The Ethics of Social Research with Children and Families in Young Lives: Practical Experiences. , 2012 .

[13]  Health services research and personal health information: privacy concerns, new legislation and beyond. , 1998, CMAJ : Canadian Medical Association journal = journal de l'Association medicale canadienne.

[14]  Anders M. Dale,et al.  Towards effective and rewarding data sharing , 2003, Neuroinformatics.

[15]  William A. Wulf,et al.  How Collaboratories Affect Scientists from Developing Countries , 2008 .

[16]  Bryn Nelson Data sharing: Empty archives , 2009, Nature.

[17]  Eric M Meslin,et al.  Research Ethics Recommendations for Whole-Genome Research: Consensus Statement , 2008, PLoS biology.

[18]  Libby Bishop,et al.  Protecting Respondents and Enabling Data Sharing: Reply to Parry and Mauthner , 2005 .

[19]  David Copp,et al.  The Oxford handbook of ethical theory , 2006 .

[20]  Michael Emmison,et al.  Qualitative Researchers’ Understandings of Their Practice and the Implications for Data Archiving and Sharing , 2009 .

[21]  R. Edwards,et al.  Feminist Dilemmas in Qualitative Research , 1998 .

[22]  H. Arendt,et al.  In a Different Voice : , 2013 .

[23]  Allan Bromley Policy Statements on Data Management for Global Change Research , 1991 .

[24]  N. Hawkins,et al.  Data sharing in genomics — re-shaping scientific practice , 2009, Nature Reviews Genetics.

[25]  H. Greely The uneasy ethical and legal underpinnings of large-scale genomic biobanks. , 2007, Annual review of genomics and human genetics.

[26]  H. Wallace The development of UK Biobank: Excluding scientific controversy from ethical debate , 2005 .

[27]  Nithya Ramanathan,et al.  Know Thy Sensor: Trust, Data Quality, and Data Integrity in Scientific Digital Libraries , 2007, ECDL.

[28]  Ann Zimmerman,et al.  Not by metadata alone: the use of diverse forms of knowledge to locate data for reuse , 2007, International Journal on Digital Libraries.

[29]  Bruce Mason,et al.  Ethnography and Data Re-Use: Issues of Context and Hypertext , 2006 .

[30]  Lisa A. Ennis The access principle: The case for open access to research and scholarship , 2007, J. Assoc. Inf. Sci. Technol..

[31]  Harry van den Berg,et al.  Reanalyzing Qualitative Interviews from Different Angles: The Risk of Decontextualization and Other Problems of Sharing Qualitative Data , 2005 .

[32]  Jane C. Richardson,et al.  Towards ethical practice in the use of archived transcripted interviews , 2003 .

[33]  Carol Parker Institutional Repositories and the Principle of Open Access: Changing the Way We Think About Legal Scholarship. 37 New Mexico L. Rev. 431-77 (2007). , 2006 .

[34]  Jaak Valge,et al.  Restrictions on Access to Archives and Records in Europe: A History and the Current Situation , 2007 .

[35]  Libby Bishop,et al.  Ethical Sharing and Reuse of Qualitative Data , 2009 .

[36]  B. Knoppers,et al.  Trends in ethical and legal frameworks for the use of human biobanks , 2007, European Respiratory Journal.

[37]  Michael C Whitlock,et al.  Data Archiving , 2010, The American Naturalist.

[38]  Libby Bishop,et al.  A Proposal for Archiving Context for Secondary Analysis , 2006 .

[39]  Jennifer Couzin,et al.  Whole-Genome Data Not Anonymous, Challenging Assumptions , 2008, Science.

[40]  Geoffrey C. Bowker,et al.  Promoting Access to Public Research Data for Scientific, Economic, and Social Development , 2004, Data Sci. J..

[41]  Christine Hine,et al.  Databases as Scientific Instruments and Their Role in the Ordering of Scientific Work , 2006 .

[42]  Carol Marie Perry Archiving of publicly funded research data: A survey of Canadian researchers , 2008, Gov. Inf. Q..

[43]  J. McLeod,et al.  Researching Social Change: Qualitative approaches , 2009 .

[44]  B. Library Patterns of information use and exchange: case studies of researchers in the life sciences , 2009 .

[45]  Sarita Albagli,et al.  Memory Practices in the Sciences , 2008 .

[46]  Martyn Hammersley,et al.  Qualitative Data Archiving: Some Reflections on its Prospects and Problems , 1997 .

[47]  Peter Suber Timeline of the open access movement , 2009 .

[48]  Karen Barad Meeting the Universe Halfway: Quantum Physics and the Entanglement of Matter and Meaning , 2007 .

[49]  Tim Ingold,et al.  The textility of making , 2010 .

[50]  Raivo Ruusalepp A comparative study of international approaches to enabling the sharing of research data , 2008 .

[51]  Brian D. Crawford Open Access Initiative , 2014 .