The current status and future directions of efforts to create a global database for the outcomes of therapy for congenital heart disease

There are many reasons for seeking to create a global database with which to record the outcomes of therapy for congenital heart disease. Such a database can function as a tool to support a variety of purposes:

[1]  M. Jacobs,et al.  Current status of the European Association for Cardio-Thoracic Surgery and the Society of Thoracic Surgeons Congenital Heart Surgery Database. , 2005, The Annals of thoracic surgery.

[2]  M. Jacobs,et al.  Initial application in the STS congenital database of complexity adjustment to evaluate surgical case mix and results. , 2005, The Annals of thoracic surgery.

[3]  M. Jacobs,et al.  Lessons learned from the data analysis of the second harvest (1998-2001) of the Society of Thoracic Surgeons (STS) Congenital Heart Surgery Database. , 2004, European journal of cardio-thoracic surgery : official journal of the European Association for Cardio-thoracic Surgery.

[4]  M Pozzi,et al.  The Aristotle score: a complexity-adjusted method to evaluate surgical results. , 2004, European journal of cardio-thoracic surgery : official journal of the European Association for Cardio-thoracic Surgery.

[5]  Hiromi Kurosawa,et al.  Update from The International Working Group for Mapping and Coding of Nomenclatures for Paediatric and Congenital Heart Disease , 2004, Cardiology in the Young.

[6]  J. Monro,et al.  Survival after surgery or therapeutic catheterisation for congenital heart disease in children in the United Kingdom: analysis of the central cardiac audit database for 2000-1 , 2004, BMJ : British Medical Journal.

[7]  J. William Gaynor,et al.  Congenital heart surgery nomenclature and database project. Update and proposed data harvest. , 2002, The Japanese journal of thoracic and cardiovascular surgery : official publication of the Japanese Association for Thoracic Surgery = Nihon Kyobu Geka Gakkai zasshi.

[8]  M. Béland,et al.  Report from the Executive of The International Working Group for Mapping and Coding of Nomenclatures for Paediatric and Congenital Heart Disease , 2002, Cardiology in the Young.

[9]  STS/EACTS Short List mapping to European Paediatric Cardiac Code Short List with ICD-9 & ICD-10 crossmapping , 2002, Cardiology in the Young.

[10]  European Paediatric Cardiac Code Short List crossmapped to STS/EACTS Short List with ICD-9 & ICD-10 crossmapping , 2002, Cardiology in the Young.

[11]  M. Béland,et al.  Bidirectional crossmap of the Short Lists of the European Paediatric Cardiac Code and the International Congenital Heart Surgery Nomenclature and Database Project , 2002, Cardiology in the Young.

[12]  G. Teasdale Learning from Bristol: report of the public inquiry into children's heart surgery at Bristol Royal Infirmary 1984-1995 , 2002, British journal of neurosurgery.

[13]  W. S. Ring,et al.  The Society of Thoracic Surgeons National Congenital Heart Surgery Database Report: analysis of the first harvest (1994-1997). , 1999, The Annals of thoracic surgery.

[14]  M. Jacobs,et al.  The Aristotle score for congenital heart surgery. , 2004, Seminars in thoracic and cardiovascular surgery. Pediatric cardiac surgery annual.

[15]  F. Lacour-Gayet,et al.  Risk stratification theme for congenital heart surgery. , 2002, Seminars in thoracic and cardiovascular surgery. Pediatric cardiac surgery annual.

[16]  J. Jacobs Software development, nomenclature schemes, and mapping strategies for an international pediatric cardiac surgery database system. , 2002, Seminars in thoracic and cardiovascular surgery. Pediatric cardiac surgery annual.

[17]  W. Williams,et al.  Practical experience with databases for congenital heart disease: a registry versus an academic database. , 2002, Seminars in thoracic and cardiovascular surgery. Pediatric cardiac surgery annual.

[18]  C. Mavroudis,et al.  Congenital heart disease outcome analysis: methodology and rationale. , 2002, The Journal of thoracic and cardiovascular surgery.