Using popular culture to enable health service co-design with young people

This paper reports on participatory service design with young people with type 1 diabetes – a long-term condition that can impact their emotional wellbeing and where poor self-care often leads to negative health consequences. The paper describes a project working with young people with type 1 diabetes to design innovative health services. The project consisted of eight creative workshops, in which we used popular cultural references as a means to create enjoyable activities and encourage the young people to engage with design. These cultural references can be understood as creating design language games that allowed the young people to understand and participate in the activities required at each stage of the design process. However, not all popular culture references worked equally well and this paper explores the reasons for this.

[1]  Janet C. Read,et al.  Climbing the cool wall: exploring teenage preferences of cool , 2012, CHI EA '12.

[2]  Marcelo Milrad,et al.  Physical Activities and Playful Learning Using Mobile Games , 2008, Res. Pract. Technol. Enhanc. Learn..

[3]  Tingting Zhao,et al.  Exploring teenagers' motivation to exercise through technology probes , 2011, BCS HCI.

[4]  Sri Hastuti Kurniawan,et al.  Mobile system to motivate teenagers' physical activity , 2010, IDC.

[5]  Allison Druin,et al.  Mixing ideas: a new technique for working with young children as design partners , 2004, IDC '04.

[6]  Allison Druin,et al.  The role of children in the design of new technology , 2002 .

[7]  Thomas Ryberg,et al.  Making chocolate-covered broccoli: designing a mobile learning game about food for young people with diabetes , 2010, Conference on Designing Interactive Systems.

[8]  Anne Marie Kanstrup,et al.  Evoking Creativity: Young Diabetics Design Their Own Mobile Diabetes Supporter , 2008 .

[9]  Thomas Ryberg,et al.  Design and Exploration of a Mobile Game Scenario in a Diabetic Youth Camp , 2010 .

[10]  Merritt S Boytim.  Designing for service , 2010 .

[11]  Michael Erlhoff,et al.  Service Design Network , 2008 .

[12]  A. Connell,et al.  Family conflict, adherence, and glycaemic control in youth with short duration Type 1 diabetes , 2002, Diabetic medicine : a journal of the British Diabetic Association.

[13]  Eric von Hippel,et al.  The Journal of Product Innovation Management 18 (2001) 247–257 PERSPECTIVE: User toolkits for innovation , 2022 .

[14]  Allison Druin,et al.  Social networking as a vehicle to foster cross-cultural awareness , 2011, IDC.

[15]  Pelle Ehn,et al.  Playing the language-games of design and use-on skill and participation , 1988, COCS '88.

[16]  Eric A. Weiss,et al.  Association for computing machinery (ACM) , 2003 .

[17]  Ole Iversen,et al.  Scandinavian participatory design: dialogic curation with teenagers , 2012, IDC '12.

[18]  Heidi Schelhowe,et al.  Designing digital media for teen-aged apprentices: a participatory approach , 2012, IDC '12.

[19]  B. Anderson,et al.  An office-based intervention to maintain parent-adolescent teamwork in diabetes management. Impact on parent involvement, family conflict, and subsequent glycemic control. , 1999, Diabetes care.

[20]  Panos Markopoulos,et al.  SenseMS: a user-centered approach to enrich the messaging experience for teens by non-verbal means , 2005, Mobile HCI.

[21]  A. Brew.  The nature of research , 2001 .

[22]  Sue Morgan,et al.  'Pizza, patients and points of view': Involving young people in the design of a post registration module entitled the adolescent with cancer. , 2008, Nurse education in practice.

[23]  J. Latour,et al.  Exciting but exhausting: experiences with participatory research with chronically ill adolescents , 2010, Health expectations : an international journal of public participation in health care and health policy.

[24]  Morten Kyng,et al.  Cardboard Computers: Mocking-it-up or Hands-on the Future , 1992 .

[25]  Anne Marie Kanstrup,et al.  IT-services for everyday life with diabetes: learning design, community design, inclusive design , 2010, Conference on Designing Interactive Systems.

[26]  Janet C. Read,et al.  Design with and for disaffected teenagers , 2008, NordiCHI.

[27]  Nusrat Yousuf,et al.  Tomorrow's World , 1997 .

[28]  Nicky Kime,et al.  The importance of self-care: How the ‘Getting Sorted’ programme helps young people manage their diabetes. , 2013 .

[29]  V. Franklin,et al.  "Sweet Talk": text messaging support for intensive insulin therapy for young people with diabetes. , 2003, Diabetes technology & therapeutics.

[30]  Joost Beunderman,et al.  Seen and Heard: Reclaiming the Public Realm with Children and Young People , 2007 .

[31]  Anne Marie Kanstrup,et al.  Emotions on diabetes: a design case of user mock-ups by young people living with diabetes , 2011 .

[32]  Tammy Toscos.  Using data to promote healthy behavior in children , 2010, IDC.