Systematic Review of the Effect of a One-Day Versus Seven-Day Recall Duration on Patient Reported Outcome Measures (PROMs)

[1]  J. Connell,et al.  The EQ Health and Wellbeing: Overview of the Development of a Measure of Health and Wellbeing and Key Results. , 2022, Value in health : the journal of the International Society for Pharmacoeconomics and Outcomes Research.

[2]  T. Symonds,et al.  A novel patient-reported outcome instrument assessing the symptoms of paroxysmal nocturnal hemoglobinuria, the PNH-SQ , 2021, Journal of Patient-Reported Outcomes.

[3]  M. White,et al.  Content validation of a self-report daily diary in patients with sickle cell disease , 2021, Journal of Patient-Reported Outcomes.

[4]  M. Kosinski,et al.  Qualitative and psychometric approaches to evaluate the PROMIS pain interference and sleep disturbance item banks for use in patients with rheumatoid arthritis , 2021, Journal of Patient-Reported Outcomes.

[5]  L. Doward,et al.  Correction to: Qualitative study: burden of menopause-associated vasomotor symptoms (VMS) and validation of PROMIS sleep disturbance and sleep-related impairment measures for assessment of VMS impact on sleep , 2021, Journal of Patient-Reported Outcomes.

[6]  L. Doward,et al.  Qualitative study: burden of menopause-associated vasomotor symptoms (VMS) and validation of PROMIS Sleep Disturbance and Sleep-Related Impairment measures for assessment of VMS impact on sleep , 2021, Journal of Patient-Reported Outcomes.

[7]  E. Basch,et al.  Comparison of weekly and daily recall of pain as an endpoint in a randomized phase 3 trial of cabozantinib for metastatic castration-resistant prostate cancer , 2021, Clinical trials.

[8]  E. Mayo-Wilson,et al.  The PRISMA 2020 statement: An updated guideline for reporting systematic reviews. , 2021, Journal of clinical epidemiology.

[9]  A. Joshi,et al.  Patient Experience With Fatigue and Qualitative Interview-Based Evidence of Content Validation of The FACIT-Fatigue in Systemic Lupus Erythematosus , 2021, Rheumatology and Therapy.

[10]  A. Herrmann,et al.  The German RECAP questionnaire: linguistic validation and cognitive debriefing in German adults with self-reported atopic eczema and parents of affected children , 2021, Journal of Patient-Reported Outcomes.

[11]  F. Martinez,et al.  Establishing content-validity of a disease-specific health-related quality of life instrument for patients with chronic hypersensitivity pneumonitis , 2021, Journal of Patient-Reported Outcomes.

[12]  E. Heintz,et al.  Reporting and valuing one’s own health: a think aloud study using EQ-5D-5L, EQ VAS and a time trade-off question among patients with a chronic condition , 2020, Health and Quality of Life Outcomes.

[13]  J. Trudeau,et al.  Content validity of patient-reported outcomes for use in lower-risk myelodysplastic syndromes , 2020, Journal of Patient-Reported Outcomes.

[14]  D. Reissmann.  Methodological considerations when measuring oral health-related quality of life. , 2020, Journal of oral rehabilitation.

[15]  S. Salek,et al.  Development of a Novel Hematological Malignancy Specific Patient-Reported Outcome Measure (HM-PRO): Content Validity , 2020, Frontiers in Pharmacology.

[16]  J. Coast,et al.  Measuring Quality-Adjusted Life-Years When Health Fluctuates. , 2020, Value in health : the journal of the International Society for Pharmacoeconomics and Outcomes Research.

[17]  J. Beaumont,et al.  Does recall period matter? Comparing PROMIS® physical function with no recall, 24-hr recall, and 7-day recall , 2019, Quality of Life Research.

[18]  C. Heesen,et al.  Recall of health-related quality of life: how does memory affect the SF-6D in patients with psoriasis or multiple sclerosis? A prospective observational study in Germany , 2019, BMJ Open.

[19]  R. Speck,et al.  Content validity of the Migraine-Specific Quality of Life Questionnaire version 2.1 electronic patient-reported outcome , 2019, Journal of Patient-Reported Outcomes.

[20]  David E. J. Jones,et al.  Development and adaptation of patient-reported outcome measures for patients who experience itch associated with primary biliary cholangitis , 2019, Journal of Patient-Reported Outcomes.

[21]  R. Speck,et al.  The content validity of the ANMS GCSI-DD in patients with idiopathic or diabetic gastroparesis , 2018, Journal of Patient-Reported Outcomes.

[22]  Stefan Schneider,et al.  The effects of time frames on self-report , 2018, PloS one.

[23]  S. Abrams,et al.  Development of a new patient‐reported outcome (PRO) measure on the Impact of Nighttime Urination (INTU) in patients with nocturia—Psychometric validation , 2018, Neurourology and urodynamics.

[24]  Susan A. Martin,et al.  Development of the Impact of Nighttime Urination (INTU) questionnaire to assess the impact of nocturia on health and functioning , 2018, Neurourology and urodynamics.

[25]  L. B. Mokkink,et al.  COSMIN methodology for evaluating the content validity of patient-reported outcome measures: a Delphi study , 2018, Quality of Life Research.

[26]  D. Chang,et al.  Patient experience in systemic lupus erythematosus: development of novel patient-reported symptom and patient-reported impact measures , 2018, Journal of Patient-Reported Outcomes.

[27]  M. Hyland,et al.  How patient participation was used to develop a questionnaire that is fit for purpose for assessing quality of life in severe asthma , 2018, Health and Quality of Life Outcomes.

[28]  M. Bayliss,et al.  Content validation of the SF-36v2® health survey with AL amyloidosis patients , 2017, Journal of Patient-Reported Outcomes.

[29]  C. Terwee,et al.  Core outcome measurement instruments for clinical trials in nonspecific low back pain , 2017, Pain.

[30]  A. Shields,et al.  Development of the Rheumatoid Arthritis Symptom Questionnaire (RASQ): a patient reported outcome scale for measuring symptoms of rheumatoid arthritis , 2017, Current medical research and opinion.

[31]  E. Basch,et al.  Evaluation of different recall periods for the US National Cancer Institute’s PRO-CTCAE , 2017, Clinical trials.

[32]  N. Devlin,et al.  EQ-5D and the EuroQol Group: Past, Present and Future , 2017, Applied Health Economics and Health Policy.

[33]  D. Beaton,et al.  Content validity of global measures for at-work productivity in patients with rheumatic diseases: an international qualitative study. , 2016, Rheumatology.

[34]  J. Paty,et al.  Content Validity for the VVSymQ® Instrument: A New Patient-Reported Outcome Measure for the Assessment of Varicose Veins Symptoms , 2016, The Patient - Patient-Centered Outcomes Research.

[35]  S. Feldman,et al.  Measurement properties of a patient-reported outcome measure assessing psoriasis severity: The psoriasis symptoms and signs diary , 2016, The Journal of dermatological treatment.

[36]  I. Wiklund,et al.  Development of the Pulmonary Arterial Hypertension-Symptoms and Impact (PAH-SYMPACT®) questionnaire: a new patient-reported outcome instrument for PAH , 2016, Respiratory Research.

[37]  Terry K Koo,et al.  A Guideline of Selecting and Reporting Intraclass Correlation Coefficients for Reliability Research. , 2016, Journal Chiropractic Medicine.

[38]  Doerte U. Junghaenel,et al.  PROMIS fatigue, pain intensity, pain interference, pain behavior, physical function, depression, anxiety, and anger scales demonstrate ecological validity. , 2016, Journal of clinical epidemiology.

[39]  C. Kerr,et al.  Health-related quality of life in Parkinson’s: impact of ‘off’ time and stated treatment preferences , 2016, Quality of Life Research.

[40]  I. Higginson,et al.  Discovering the hidden benefits of cognitive interviewing in two languages: The first phase of a validation study of the Integrated Palliative care Outcome Scale , 2015, Palliative medicine.

[41]  E. Edson-Heredia,et al.  The Worst Itch Numeric Rating Scale for patients with moderate to severe plaque psoriasis or psoriatic arthritis , 2015, International journal of dermatology.

[42]  O. Chassany,et al.  The Intestinal Gas Questionnaire: development of a new instrument for measuring gas‐related symptoms and their impact on daily life , 2015, Neurogastroenterology and motility : the official journal of the European Gastrointestinal Motility Society.

[43]  R. Hayes,et al.  Establishing the content validity of the Sexual Arousal, Interest, and Drive Scale and the Hypogonadism Energy Diary , 2015, International journal of clinical practice.

[44]  A. Abernethy,et al.  Comparison of seven-day and repeated 24-hour recall of symptoms in the first 100 days after hematopoietic cell transplantation. , 2015, Journal of pain and symptom management.

[45]  M. Sterling,et al.  Measuring Pain Intensity in Patients with Neck Pain: Does It Matter How You Do It? , 2015, Pain practice : the official journal of World Institute of Pain.

[46]  L. Matza,et al.  Qualitative Research on Fatigue Associated with Depression: Content Validity of the Fatigue Associated with Depression Questionnaire (FAsD-V2) , 2015, The Patient - Patient-Centered Outcomes Research.

[47]  J. Jaccard,et al.  The accuracy of patient‐reported measures for GI symptoms: a comparison of real time and retrospective reports , 2014, Neurogastroenterology and motility : the official journal of the European Gastrointestinal Motility Society.

[48]  M. Gilbert,et al.  Impact of recall period on primary brain tumor patient's self-report of symptoms. , 2014, Neuro-oncology practice.

[49]  B. Strober,et al.  The Psoriasis Symptom Diary: development and content validity of a novel patient‐reported outcome instrument , 2014, International journal of dermatology.

[50]  M. Herdman,et al.  Validation of the Short Form of the Brief Pain Inventory (BPI‐SF) in Spanish Patients with Non‐Cancer‐Related Pain , 2014, Pain practice : the official journal of World Institute of Pain.

[51]  Liying Zhang,et al.  The Functional Assessment of Cancer Therapy - Brain (FACT-Br) for assessing quality of life in patients with brain metastases: A comparison of recall periods , 2013 .

[52]  E. Edson-Heredia,et al.  The patient experience with fatigue and content validity of a measure to assess fatigue severity: qualitative research in patients with ankylosing spondylitis (AS) , 2013, Health and Quality of Life Outcomes.

[53]  Doerte U. Junghaenel,et al.  Validity and Reliability of Patient‐Reported Outcomes Measurement Information System Instruments in Osteoarthritis , 2013, Arthritis care & research.

[54]  Doerte U. Junghaenel,et al.  Psychometric characteristics of daily diaries for the Patient-Reported Outcomes Measurement Information System (PROMIS®): a preliminary investigation , 2013, Quality of Life Research.

[55]  A. Gottlieb,et al.  Early development and qualitative evidence of content validity for the Psoriasis Symptom Inventory (PSI), a patient-reported outcome measure of psoriasis symptom severity , 2013, The Journal of dermatological treatment.

[56]  I. Ahmed,et al.  AB0197 The arthritic patients’ perspective of measuring treatment efficacy: patient reported experience measures (prems) as a quality tool , 2013, Clinical and experimental rheumatology.

[57]  N. Santanello,et al.  Choice of recall period for patient-reported outcome (PRO) measures: criteria for consideration , 2012, Quality of Life Research.

[58]  Z. Balogh,et al.  Recalled pain scores are not reliable after acute trauma. , 2012, Injury.

[59]  D. Amtmann,et al.  Comparison of 7-day recall and daily diary reports of COPD symptoms and impacts. , 2012, Value in health : the journal of the International Society for Pharmacoeconomics and Outcomes Research.

[60]  A. Bennett,et al.  Comparison of 7-day and repeated 24-h recall of type 2 diabetes , 2011, Quality of Life Research.

[61]  C. Goss,et al.  Comparison of 7-day and repeated 24-hour recall of symptoms of cystic fibrosis. , 2010, Journal of cystic fibrosis : official journal of the European Cystic Fibrosis Society.

[62]  C. Cleeland,et al.  Does recall period have an effect on cancer patients' ratings of the severity of multiple symptoms? , 2010, Journal of pain and symptom management.

[63]  A. Stone,et al.  Interference with activities due to pain and fatigue: accuracy of ratings across different reporting periods , 2010, Quality of Life Research.

[64]  I. Durand-zaleski,et al.  Influence of Time, Activities, and Memory on the Assessment of Chronic Low Back Pain Intensity , 2009, Spine.

[65]  N. Bansback,et al.  Impact of the recall period on measuring health utilities for acute events. , 2008, Health economics.

[66]  Joseph E. Schwartz,et al.  The accuracy of pain and fatigue items across different reporting periods , 2008, PAIN.

[67]  A. Stone,et al.  Context Effects in Survey Ratings of Health, Symptoms, and Satisfaction , 2008, Medical care.

[68]  S. Shiffman,et al.  Ecological momentary assessment. , 2008, Annual review of clinical psychology.

[69]  C. Carswell.  Measuring and Valuing Health Benefits for Economic Valuation , 2007, PharmacoEconomics.

[70]  J. Schmier,et al.  Patient recall and recall bias of health state and health status , 2004, Expert review of pharmacoeconomics & outcomes research.

[71]  D. Feeny,et al.  The Health Utilities Index (HUI®): concepts, measurement properties and applications , 2003, Health and quality of life outcomes.

[72]  Michael D. Robinson,et al.  Episodic and semantic knowledge in emotional self-report: evidence for two judgment processes. , 2002, Journal of personality and social psychology.

[73]  J. Brazier,et al.  The estimation of a preference-based measure of health from the SF-36. , 2002, Journal of health economics.

[74]  Norman M. Bradburn,et al.  Temporal Representation and Event Dating , 1999 .

[75]  N. Schwarz,et al.  Looking back at anger: reference periods change the interpretation of emotion frequency questions. , 1998, Journal of personality and social psychology.

[76]  D. Kahneman,et al.  When More Pain Is Preferred to Less: Adding a Better End , 1993 .

[77]  Ed Diener,et al.  Memory accuracy in the recall of emotions. , 1990 .

[78]  W. Downie,et al.  Studies with pain rating scales. , 1978, Annals of the rheumatic diseases.

[79]  T. Mendoza.  New Developments in the Use of Patient-Reported Outcomes in Cancer Patients Undergoing Immunotherapies. , 2020, Advances in experimental medicine and biology.

[80]  S. Feldman,et al.  Development of a patient-reported outcome questionnaire for use in adults with moderate-to-severe plaque psoriasis: The Psoriasis Symptoms and Signs Diary ☆ , 2016 .

[81]  D. Stull,et al.  Optimal recall periods for patient-reported outcomes: challenges and potential solutions. , 2009, Current medical research and opinion.