Informing , communicating and sharing decisions with people who have cancer

There is widespread agreement that people should be informed about health care options and involved in decisions about their own care. In England and Wales the National Institute for Clinical Excellence (NICE) is intent on achieving a patient focus in its work and The NHS plan emphasises the need for patients to have more say in their own care and more influence over the way in which the NHS works. Similarly, The NHS cancer plan for England and Wales emphasises the need for good communication between health professionals and patients, both for delivering high quality care and for empowering people to be involved in decisions about their own care. This paper summarises EVective Health Care bulletin 6(6) which focused on communication, information giving, and sharing of decisions between health professionals and people with cancer. Evidence from systematic reviews produced by the Cochrane Consumers and Communication Group, other good quality systematic reviews, and from guidance produced by the National Cancer Guidance Steering Group is also included.

[1]  T A Sheldon,et al.  Evidence-Informed Patient Choice: Practical Issues of Involving Patients in Decisions About Health Care Technologies , 1998, International Journal of Technology Assessment in Health Care.

[2]  V. Entwistle Supporting and resourcing treatment decision‐making: some policy considerations , 2000, Health expectations : an international journal of public participation in health care and health policy.

[3]  J. Graham,et al.  Burnout and psychiatric disorder among cancer clinicians. , 1995, British Journal of Cancer.

[4]  V. Entwistle,et al.  Decision aids for patients facing health treatment or screening decisions: systematic review , 1999, BMJ.

[5]  G. Elwyn,et al.  Towards a feasible model for shared decision making: focus group study with general practice registrars , 1999, BMJ.

[6]  A. O'Connor,et al.  Randomized Trial of a Patient Decision Aid for Choice of Surgical Treatment for Breast Cancer , 2001, Medical decision making : an international journal of the Society for Medical Decision Making.

[7]  J. Bensing,et al.  Evaluation of communication training programs in nursing care: a review of the literature. , 2000, Patient education and counseling.

[8]  Smith The role of health professionals in informing cancer patients: findings from The Teamwork Project (phase one) , 2000, Health expectations : an international journal of public participation in health care and health policy.

[9]  R. Street,et al.  Increasing patient involvement in choosing treatment for early breast cancer , 1995, Cancer.

[10]  D Charnock,et al.  DISCERN: an instrument for judging the quality of written consumer health information on treatment choices. , 1999, Journal of epidemiology and community health.

[11]  P. Bower,et al.  Patient-centredness: a conceptual framework and review of the empirical literature. , 2000, Social science & medicine.

[12]  C. Charles,et al.  Shared decision-making in the medical encounter: what does it mean? (or it takes at least two to tango). , 1997, Social science & medicine.

[13]  A Coulter,et al.  Sharing decisions with patients: is the information good enough? , 1999, BMJ.

[14]  V. Entwistle,et al.  Recordings or summaries of consultations for people with cancer. , 2000, The Cochrane database of systematic reviews.

[15]  E. Rutgers,et al.  Interpretive Review : Feasibility and Effects of Decision Aids , 2000, Medical decision making : an international journal of the Society for Medical Decision Making.

[16]  M Baum,et al.  Using an interactive video disk in breast cancer patient support. , 1998, Nursing times.

[17]  J. Saul,et al.  Information needs of patients with cancer: results from a large study in UK cancer centres , 2001, British Journal of Cancer.

[18]  K A Harris,et al.  The informational needs of patients with cancer and their families. , 1998, Cancer practice.

[19]  J Pearson,et al.  Randomised trial of personalised computer based information for cancer patients , 1999, BMJ.

[20]  S. O’Meara,et al.  Promoting the initiation of breast feeding , 2001, Quality in health care : QHC.

[21]  V. Entwistle,et al.  Evaluating Interventions to Promote Patient Involvement in Decision-Making: By What Criteria Should Effectiveness be Judged? , 1998, Journal of health services research & policy.

[22]  Margaret Holmes-Rovner,et al.  Implementing shared decision‐making in routine practice: barriers and opportunities , 2000, Health expectations : an international journal of public participation in health care and health policy.

[23]  C P Bradley,et al.  Doctor-patient communication about drugs: the evidence for shared decision making. , 2000, Social science & medicine.

[24]  Amiram Gafni,et al.  What do we mean by partnership in making decisions about treatment? , 1999, BMJ.

[25]  L. Degner,et al.  Empowerment of men newly diagnosed with prostate cancer. , 1997, Cancer nursing.

[26]  I D Graham,et al.  Decision aids for patients considering options affecting cancer outcomes: evidence of efficacy and policy implications. , 1999, Journal of the National Cancer Institute. Monographs.

[27]  W Godolphin,et al.  Framework for teaching and learning informed shared decision making. , 1999, BMJ.