Expert survey on coverage and characteristics of pediatric palliative care in Europe – a focus on home care

[1]  C. Centeno,et al.  Evaluating the integration of palliative care in national health systems: an indicator rating process with EAPC task force members to measure advanced palliative care development , 2021, BMC Palliative Care.

[2]  C. Feudtner,et al.  Developing a family-reported measure of experiences with home-based pediatric palliative and hospice care: a multi-method, multi-stakeholder approach , 2021, BMC Palliative Care.

[3]  F. Benini,et al.  An estimation of the number of children requiring pediatric palliative care in Italy , 2021, Italian Journal of Pediatrics.

[4]  L. Fraser,et al.  Development of a managed clinical network for children’s palliative care – a qualitative evaluation , 2020, BMC Palliative Care.

[5]  P. Norman,et al.  Estimating the current and future prevalence of life-limiting conditions in children in England , 2020, Palliative medicine.

[6]  S. Helseth,et al.  Family experiences with palliative care for children at home: a systematic literature review , 2020, BMC Palliative Care.

[7]  D. Clark,et al.  Global development of children’s palliative care: An international survey of in-nation expert perceptions in 2017 , 2020, Wellcome open research.

[8]  C. Centeno,et al.  Mapping paediatric palliative care development in the WHO-European region: Children living in low-middle income countries are less likely to access it. , 2020, Journal of pain and symptom management.

[9]  C. Escoffery,et al.  Strengths, Gaps, and Opportunities: Results of a Statewide Community Needs Assessment of Pediatric Palliative Care and Hospice Resources. , 2020, Journal of pain and symptom management.

[10]  L. Fraser,et al.  Advances and Challenges in European Paediatric Palliative Care , 2020, Medical sciences.

[11]  C. Escoffery,et al.  A Methodologic Approach to Conducting a Statewide Community Needs Assessment of Pediatric Palliative Care and Hospice Resources. , 2020, Journal of pain and symptom management.

[12]  B. Elger,et al.  Barriers to Palliative Care in Pediatric Oncology in Switzerland: A Focus Group Study , 2020, Journal of pediatric oncology nursing : official journal of the Association of Pediatric Oncology Nurses.

[13]  S. Huff,et al.  The Pediatric Home Health Care Process: Perspectives of Prescribers, Providers, and Recipients , 2019, Pediatrics.

[14]  M. Kuhlen,et al.  Specialized pediatric palliative care services for children dying from cancer: A repeated cohort study on the developments of symptom management and quality of care over a 10-year period , 2018, Palliative medicine.

[15]  C. Centeno,et al.  Brief manual on health indicators monitoring global palliative care development , 2019 .

[16]  I. Aujoulat,et al.  Building Bridges, Paediatric Palliative Care in Belgium: A secondary data analysis of annual paediatric liaison team reports from 2010 to 2014 , 2018, BMC Palliative Care.

[17]  S. Boucher,et al.  Paediatric Palliative Care in Resource-Poor Countries , 2018, Children.

[18]  M. Curley,et al.  Factors Associated With the Use of U.S. Community-Based Palliative Care for Children With Life-Limiting or Life-Threatening Illnesses and Their Families: An Integrative Review. , 2018, Journal of pain and symptom management.

[19]  S. Connor,et al.  Estimating the Global Need for Palliative Care for Children: A Cross-sectional Analysis. , 2017, Journal of pain and symptom management.

[20]  C. Centeno,et al.  APCA Atlas of Palliative Care in Africa , 2017 .

[21]  Mary Ellen Macdonald,et al.  Introducing a lexicon of terms for paediatric palliative care. , 2015, Paediatrics & child health.

[22]  C. Knapp,et al.  Pediatric palliative care provision around the world: A systematic review , 2011, Pediatric blood & cancer.

[23]  L. Lauver.  The lived experience of foster parents of children with special needs living in rural areas. , 2010, Journal of pediatric nursing.

[24]  H. Huijer,et al.  IMPaCCT: Standards pädiatrischer Palliativversorgung in Europa , 2008, Der Schmerz.

[25]  S. Liben,et al.  Paediatric palliative care: challenges and emerging ideas , 2008, The Lancet.

[26]  B. Zernikow,et al.  [IMPaCCT: standards of paediatric palliative care]. , 2008, Schmerz.

[27]  T. Lynch,et al.  Mapping levels of palliative care development: a global view. , 2008, Journal of pain and symptom management.

[28]  Chris Feudtner,et al.  Collaborative communication in pediatric palliative care: a foundation for problem-solving and decision-making. , 2007, Pediatric clinics of North America.

[29]  T. Lynch,et al.  EAPC Atlas of Palliative Care in Europe , 2007 .

[30]  D. Gothelf,et al.  Pediatric palliative care. , 2004, The New England journal of medicine.