Producing computer-generated tailored written information for stroke patients and their carers: system development and preliminary evaluation

PURPOSE The aim of this project was to design and evaluate a system that would produce tailored information for stroke patients and their carers, customised according to their informational needs, and facilitate communication between the patient and health professional. METHOD A human factors development approach was used to develop a computer system, which dynamically compiles stroke education booklets for patients and carers. Patients and carers are able to select the topics about which they wish to receive information, the amount of information they want, and the font size of the printed booklet. The system is designed so that the health professional interacts with it, thereby providing opportunities for communication between the health professional and patient/carer at a number of points in time. RESULTS Preliminary evaluation of the system by health professionals, patients and carers was positive. A randomised controlled trial that examines the effect of the system on patient and carer outcomes is underway.

[1]  V. Strecher,et al.  The effects of computer-tailored smoking cessation messages in family practice settings. , 1994, The Journal of family practice.

[2]  R. L. Evans,et al.  Evaluation of family stroke education , 1984, International journal of rehabilitation research. Internationale Zeitschrift fur Rehabilitationsforschung. Revue internationale de recherches de readaptation.

[3]  A Dijkstra,et al.  Targeting smokers with low readiness to change with tailored and nontailored self-help materials. , 1999, Preventive medicine.

[4]  Paul C. Tang,et al.  Informing patients: a guide for providing patient health information. , 1998, Journal of the American Medical Informatics Association : JAMIA.

[5]  H. Rodgers,et al.  Randomized controlled trial of a comprehensive stroke education program for patients and caregivers. , 1999, Stroke.

[6]  N. Clark,et al.  Management of chronic disease by practitioners and patients: are we teaching the wrong things? , 2000, BMJ : British Medical Journal.

[7]  H van Veenendaal,et al.  Educational needs of stroke survivors and their family members, as perceived by themselves and by health professionals. , 1996, Patient education and counseling.

[8]  Susan Michie,et al.  Patient-centredness in chronic illness: what is it and does it matter? , 2003, Patient education and counseling.

[9]  Kate Lorig,et al.  Patients as partners in managing chronic disease , 2000, BMJ : British Medical Journal.

[10]  J. Haselkorn,et al.  Factors predicting satisfactory home care after stroke. , 1991, Archives of physical medicine and rehabilitation.

[11]  Alan M. Davis Fifteen principles of software engineering , 1994 .

[12]  S. Theis,et al.  Strategies for teaching patients: a meta-analysis. , 1995, Clinical nurse specialist CNS.

[13]  D Charnock,et al.  Helping patients access high quality health information , 1999, BMJ.

[14]  M. Clark,et al.  Factors contributing to patient satisfaction with rehabilitation following stroke , 1998, International journal of rehabilitation research. Internationale Zeitschrift fur Rehabilitationsforschung. Revue internationale de recherches de readaptation.

[15]  C. Warlow,et al.  Perceptions and knowledge of stroke among surviving patients with stroke and their carers. , 1994, Age and ageing.

[16]  K. Booth,et al.  Chronic disease patient education: lessons from meta-analyses. , 2001, Patient education and counseling.

[17]  Alan M. Davis Fifteen principles of software engineering , 1994, IEEE Software.

[18]  F. Bull,et al.  Effects of tailored, personalized and general health messages on physical activity. , 1999, Patient education and counseling.

[19]  D. Wade,et al.  The impact of an information pack on patients with stroke and their carers: a randomized controlled trial , 1998, Clinical rehabilitation.

[20]  V. Strecher,et al.  Physicians' recommendations for mammography: do tailored messages make a difference? , 1994, American journal of public health.

[21]  M J Bernier,et al.  Developing and Evaluating Printed Education Materials: A Prescriptive Model for Quality , 1993, Orthopedic nursing.

[22]  J. Weinman Providing Written Information for Patients: Psychological Considerations , 1990, Journal of the Royal Society of Medicine.

[23]  Thomas Bell REDUCING HOSPITAL ADMISSION THROUGH COMPUTER SUPPORTED EDUCATION FOR ASTHMA PATIENTS , 1995, Pediatrics.

[24]  V. Strecher,et al.  Do tailored behavior change messages enhance the effectiveness of health risk appraisal? Results from a randomized trial. , 1996, Health education research.

[25]  Salvemini Av Improving the human-computer interface: a human factors engineering approach. , 1998 .

[26]  V. Strecher,et al.  Improving dietary behavior: the effectiveness of tailored messages in primary care settings. , 1994, American journal of public health.

[27]  H Rodgers,et al.  Satisfaction with information and advice received by stroke patients , 1997, Clinical rehabilitation.

[28]  S. Rubenach,et al.  A randomized controlled trial of an education and counselling intervention for families after stroke , 2003, Clinical rehabilitation.

[29]  Alan D. Lopez,et al.  Global mortality, disability, and the contribution of risk factors: Global Burden of Disease Study , 1997, The Lancet.

[30]  S Bond,et al.  Inadequacies in the provision of information to stroke patients and their families. , 2001, Age and ageing.

[31]  L. G. Doak,et al.  Teaching Patients With Low Literacy Skills , 1985 .

[32]  H. C. Hanger,et al.  What do patients and their carers want to know about stroke? A two-year follow-up study , 1998, Clinical rehabilitation.

[33]  J. Haselkorn,et al.  THE FAMILY'S ROLE IN STROKE REHABILITATION: A Review of the Literature , 1992, American journal of physical medicine & rehabilitation.