Retest reliability of surveillance questions on health related quality of life

Study objectives: Health related quality of life (HRQoL) is an important surveillance measure for monitoring the health of populations, as proposed in the American public health plan, Healthy People 2010. The authors investigated the retest reliability of four HRQoL questions from the US Behavioral Risk Factor Surveillance System (BRFSS). Design: Randomly sampled BRFSS respondents from the state of Missouri were re-contacted for a retest of the HRQoL questions. Reliability was estimated by κ statistics for categorical questions and intraclass correlation coefficients for continuous questions. Setting: Missouri, United States. Participants: 868 respondents were re-interviewed by telephone about two weeks after the initial interview (mean 13.5 days). Participants represented the adult, non-institutionalised population of Missouri: 59.1% women; mean age 49.5 years; 93.2% white race. Main results: Retest reliability was excellent (0.75 or higher) for Self-Reported Health and Healthy Days measures, and moderate (0.58 to 0.71) for other measures. Reliability was lower for older adults. Other demographic subgroups (for example, gender) showed no regular pattern of differing reliability and there was very little change in reliability by the time interval between the first and second interview. Conclusions: Retest reliability of the HRQoL Core is moderate to excellent. Scaling options will require future attention, as will research into appropriate metrics for what constitutes important population group differences and change in HRQoL.

[1]  Quality of life as a new public health measure--Behavioral Risk Factor Surveillance System, 1993. , 1994, MMWR. Morbidity and mortality weekly report.

[2]  Bruce K. Armstrong,et al.  Principles of Exposure Measurement in Epidemiology , 1992 .

[3]  E. Andresen,et al.  Limitations of the SF-36 in a sample of nursing home residents. , 1999, Age and ageing.

[4]  State differences in reported healthy days among adults--United States, 1993-1996. , 1998, MMWR. Morbidity and mortality weekly report.

[5]  E. Andresen,et al.  Criteria for assessing the tools of disability outcomes research. , 2000, Archives of physical medicine and rehabilitation.

[6]  M. Zack,et al.  Surveillance for sensory impairment, activity limitation, and health-related quality of life among older adults--United States, 1993-1997. , 1999, MMWR. CDC surveillance summaries : Morbidity and mortality weekly report. CDC surveillance summaries.

[7]  J. Romeis,et al.  Performance of health-related quality-of-life instruments in a spinal cord injured population. , 1999, Archives of physical medicine and rehabilitation.

[8]  R. Brownson,et al.  Reliability of information on chronic disease risk factors collected in the Missouri Behavioral Risk Factor Surveillance System. , 1994, Epidemiology.

[9]  F. Gilliland,et al.  Health-related quality of life for rural American Indians in New Mexico. , 1998, Ethnicity & health.

[10]  Self-reported frequent mental distress among adults--United States, 1993-1996. , 1998, MMWR. Morbidity and mortality weekly report.

[11]  P. Scherr,et al.  Measuring health-related quality of life for public health surveillance. , 1994, Public health reports.

[12]  P L Remington,et al.  Design, characteristics, and usefulness of state-based behavioral risk factor surveillance: 1981-87. , 1988, Public health reports.

[13]  R. Brownson,et al.  Disability and health status: ethnic differences among women in the United States , 2000, Journal of epidemiology and community health.

[14]  Re Waller,et al.  Principles of Exposure Measurement in Epidemiology , 1994 .

[15]  S. Shea,et al.  The Behavioral Risk Factor Surveillance System questionnaire: its reliability in a statewide sample. , 1993, American journal of public health.

[16]  C. Basch,et al.  Reliability of the behavioral risk factor survey in a triethnic population. , 1991, American journal of epidemiology.

[17]  G C Hogelin,et al.  The behavioral risk factor surveys: II. Design, methods, and estimates from combined state data. , 1985, American journal of preventive medicine.

[18]  J. Fleiss The design and analysis of clinical experiments , 1987 .

[19]  Y. Benyamini,et al.  Self-rated health and mortality: a review of twenty-seven community studies. , 1997, Journal of health and social behavior.

[20]  D. Simonson,et al.  Assessment of quality-of-life outcomes. , 1996, The New England journal of medicine.

[21]  Kristofer J. Hagglund,et al.  The Missouri Disability Epidemiology and Health Project. , 1999, American journal of preventive medicine.

[22]  Factors associated with prevalent self-reported arthritis and other rheumatic conditions--United States, 1989-1991. , 1996, MMWR. Morbidity and mortality weekly report.

[23]  Seymour Sudman,et al.  Cognition, aging, and self-reports , 1999 .

[24]  Susan Schechter,et al.  Asking Survey Respondents About Health Status: Judgment and Response Issues , 1999 .

[25]  J. Fleiss,et al.  Statistical methods for rates and proportions , 1973 .

[26]  Raking Kappa: Describing Potential Impact of Marginal Distributions on Measures of Agreement , 1995 .

[27]  L. Sanderson,et al.  Behavioral risk factor surveillance, 1986-1990. , 1991, MMWR. CDC surveillance summaries : Morbidity and mortality weekly report. CDC surveillance summaries.

[28]  K. Hagglund,et al.  Disability and satisfaction with access to health care , 2000, Journal of epidemiology and community health.