Comprehensive strategy for capturing and integrating community input into community research training curricula

Introduction Community stakeholders often participate in community research training curricula development. There is limited information describing how their input informs curricula. This paper describes input solicitation methods, input received, and examples of its integration. Methods From June 2014 to June 2016, community members (CMs) and community-based organizations (CBOs) guided curricula development tailored for CMs and CBOs, respectively. Engagement methods included a strategic planning retreat, surveys, a listening session, workgroup meetings, and community engagement studios. Descriptive statistics were used to summarize survey input. For other methods, input was extracted and compiled from facilitator notes. Results CMs (n=37) and CBOs (n=83) providing input included patients and caregivers and advocacy, community service, and faith-based organizations, respectively. The major feedback categories were training topic priorities, format (e.g., face-to-face vs. online), logistics (e.g., training frequency), and compensation (e.g., appropriateness). Input directly guided design of CBO and CM curricula (e.g., additional time devoted to specific topics based on feedback) or helped to finalize logistics. Conclusions Multiple quantitative and qualitative methods can be used to elicit input from community stakeholders to inform the development of community research training curricula. This input is essential for the development of training curricula that are culturally relevant and acceptable.

[1]  E. Acosta-Pérez,et al.  The Use of Community Engaged Research Principles to Improve Health: Community Academic Partnerships for Research. , 2017, Puerto Rico health sciences journal.

[2]  G. Bernard,et al.  Community Engagement Studios: A Structured Approach to Obtaining Meaningful Input From Stakeholders to Inform Research , 2015, Academic medicine : journal of the Association of American Medical Colleges.

[3]  Stephania T. Miller,et al.  Community‐Engaged Strategies to Promote Relevance of Research Capacity‐Building Efforts Targeting Community Organizations , 2015, Clinical and translational science.

[4]  Tisha M Felder,et al.  Mentoring and Training of Cancer-Related Health Disparities Researchers Committed to Community-Based Participatory Research , 2015, Progress in community health partnerships : research, education, and action.

[5]  Michael A. Yonas,et al.  Aligning the Goals of Community-Engaged Research: Why and How Academic Health Centers Can Successfully Engage With Communities to Improve Health , 2012, Academic medicine : journal of the Association of American Medical Colleges.

[6]  I. Sia,et al.  Capacity building through focus group training in community-based participatory research. , 2011, Education for health.

[7]  Melody S Goodman,et al.  Increasing Research Literacy in Minority Communities: CARES Fellows Training Program , 2010, Journal of empirical research on human research ethics : JERHRE.

[8]  P. Harris,et al.  Research electronic data capture (REDCap) - A metadata-driven methodology and workflow process for providing translational research informatics support , 2009, J. Biomed. Informatics.

[9]  E. Perez-stable,et al.  Mentoring in community-based participatory research: the RCMAR experience. , 2007, Ethnicity & disease.

[10]  Philip W. Nyden Academic incentives for faculty participation in community-based participatory research , 2003, Journal of General Internal Medicine.