Health and the Information Nonseeker: A Profile

Despite increased information-seeking by the public, a significant percentage of those diagnosed with a serious disease such as cancer report that they do not seek or receive health information beyond that given by health care providers. This study attempts to profile these nonseekers and study possible determinants of nonseeking behaviors. Data come from the 2003 Health Information National Trends Survey, a national survey of American adults conducted by the National Cancer Institute (N = 6,133; Nelson et al., 2004). Individuals were categorized as nonseekers or seekers and then further classified based on cancer history to yield 4 groups: nonseeker patients, the nonseeker public, seeker patients, and the seeker public. Compared to other groups, nonseeker patients came from the lowest income and education groups, and scored lower on attention to health in the media and trust in mass media health information. Nonseekers also scored lower on preventative health behaviors.

[1]  K. Viswanath,et al.  Social capital and health: civic engagement, community size, and recall of health messages. , 2006, American journal of public health.

[2]  Faith Mitchell,et al.  Examining the Health Disparities Research Plan of the National Institutes of Health , 2006 .

[3]  K. Viswanath,et al.  Beyond Access: Communication Divides and Implications for Health Disparities , 2006 .

[4]  Nancy Breen,et al.  Cancer Knowledge and Disparities in the Information Age , 2006, Journal of health communication.

[5]  Faith Mitchell,et al.  Public Communications and Its Role in Reducing and Eliminating Health Disparities , 2006 .

[6]  K. Viswanath,et al.  The communications revolution and cancer control , 2005, Nature Reviews Cancer.

[7]  Ruth McCorkle,et al.  Cancer Patients' Self-Reported Attitudes About the Internet , 2005, Journal of medical Internet research.

[8]  J. Rowland,et al.  Information needs and sources of information among cancer patients: a systematic review of research (1980-2003). , 2005, Patient education and counseling.

[9]  Nicole L. Nollen,et al.  Knowledge and perceptions of colorectal cancer screening among urban African Americans , 2005, Journal of General Internal Medicine.

[10]  M. Hjermstad,et al.  Multiple Predictors of Health-Related Quality of Life in Early Stage Breast Cancer. Data from a Year Follow-up Study Compared with the General Population , 2005, Quality of Life Research.

[11]  Nancy Kraetschmer,et al.  How does trust affect patient preferences for participation in decision‐making? , 2004, Health expectations : an international journal of public participation in health care and health policy.

[12]  B. Rimer,et al.  Informed decision making: What is its role in cancer screening? , 2004, Cancer.

[13]  Gary L. Kreps,et al.  The Health Information National Trends Survey (HINTS): Development, Design, and Dissemination , 2004, Journal of health communication.

[14]  I. Kawachi,et al.  Commentary: Reconciling the three accounts of social capital. , 2004, International journal of epidemiology.

[15]  P. Romestaing,et al.  'Parcours de Femme 2001': a French opinion survey on overall disease and everyday life management in 1870 women presenting with gynecological or breast cancer and their caregivers. , 2004, Annals of oncology : official journal of the European Society for Medical Oncology.

[16]  Paul R Duberstein,et al.  Information needs and decision-making processes in older cancer patients. , 2004, Critical reviews in oncology/hematology.

[17]  B. Leake,et al.  Determinants of participation in treatment decision-making by older breast cancer patients , 2004, Breast Cancer Research and Treatment.

[18]  Diane Reynolds,et al.  Cervical cancer in Hispanic/Latino women. , 2004, Clinical journal of oncology nursing.

[19]  G. Colditz,et al.  Modifiable risk factors for cancer , 2004, British Journal of Cancer.

[20]  G. Colditz Consensus conference: smoking and prostate cancer , 1996, Cancer Causes & Control.

[21]  R. Czaja,et al.  The Determinants and Consequences of Information Seeking Among Cancer Patients , 2003, Journal of health communication.

[22]  G. Eysenbach The Impact of the Internet on Cancer Outcomes , 2003, CA: a cancer journal for clinicians.

[23]  K. Mccaul,et al.  Information Gathering Over Time by Breast Cancer Patients , 2003, Journal of medical Internet research.

[24]  Kim Walsh-Childers,et al.  Public Health Communication: Evidence for Behavior Change , 2003 .

[25]  Jan Norum,et al.  Information and communication technology (ICT) in oncology. Patients' and relatives' experiences and suggestions , 2003, Supportive Care in Cancer.

[26]  D. Tataryn,et al.  Reports of information and support needs of daughters and sisters of women with breast cancer. , 2003, European journal of cancer care.

[27]  C. Charles,et al.  Shared treatment decision making: what does it mean to physicians? , 2003, Journal of clinical oncology : official journal of the American Society of Clinical Oncology.

[28]  C. Maurana,et al.  Cancer prevention in underserved African American communities: barriers and effective strategies--a review of the literature. , 2003, WMJ : official publication of the State Medical Society of Wisconsin.

[29]  R. Hornik Public health communication: Evidence for behavior change. , 2013 .

[30]  C. Manfredi,et al.  Factors Influencing Medical Information Seeking Among African American Cancer Patients , 2002, Journal of health communication.

[31]  Robert C. Hornik,et al.  Introduction Public Health Communication: Making Sense of Contradictory Evidence , 2002 .

[32]  B. Smedley,et al.  Unequal Treatment: Con-fronting Racial and Ethnic Disparities in Health Care , 2002 .

[33]  Adrienne Y. Stith,et al.  Unequal treatment: confronting racial and ethnic disparities in health care. , 2003 .

[34]  K Soothill,et al.  The psychosocial needs of cancer patients: findings from an observational study. , 2001, European journal of cancer care.

[35]  P. Bath,et al.  Information-seeking behaviors of women with breast cancer. , 2001, Oncology nursing forum.

[36]  L. Strycker,et al.  Awareness and barriers to use of cancer support and information resources by HMO patients with breast, prostate, or colon cancer: patient and provider perspectives , 2001, Psycho-oncology.

[37]  J. Saul,et al.  Information needs of patients with cancer: results from a large study in UK cancer centres , 2001, British Journal of Cancer.

[38]  C E Rees,et al.  The information needs and source preferences of women with breast cancer and their family members: a review of the literature published between 1988 and 1998. , 2000, Journal of advanced nursing.

[39]  K. McPherson,et al.  Cancer patients' information needs and information seeking behaviour: in depth interview study , 2000, BMJ : British Medical Journal.

[40]  Gunther Eysenbach,et al.  Rapid Responses , 2022 .

[41]  R. Hiatt,et al.  A new strategy for cancer control research. , 1999, Cancer epidemiology, biomarkers & prevention : a publication of the American Association for Cancer Research, cosponsored by the American Society of Preventive Oncology.

[42]  J. Stoker,et al.  The Department of Health and Human Services. , 1999, Home healthcare nurse.

[43]  K. McPherson,et al.  An analysis of first-time enquirers to the CancerBACUP information service: variations with cancer site, demographic status and geographical location , 1999, British Journal of Cancer.

[44]  J. D. Johnson Cancer-Related Information Seeking , 1997 .

[45]  J. Balint,et al.  Regaining the initiative. Forging a new model of the patient-physician relationship. , 1996, JAMA.

[46]  J. Finnegan,et al.  The Knowledge Gap Hypothesis: Twenty-Five Years Later , 1996 .

[47]  Harvard Report on Cancer Prevention. Volume 1: Causes of human cancer. , 1996, Cancer causes & control : CCC.

[48]  Jeffrey A. Sloan,et al.  The information needs of women newly diagnosed with breast cancer. , 1995, Journal of advanced nursing.

[49]  Elizabeth Pugzles Lorch,et al.  Attention, Need for Sensation, and Health Communication Campaigns , 1994 .

[50]  J. Finnegan,et al.  Exposure to Sources of Heart Disease Prevention Information: Community Type and Social Group Differences , 1993 .

[51]  R. Czaja,et al.  Patient use of treatment‐related information received from the cancer information service , 1993, Cancer.

[52]  V. Freimuth Narrowing the cancer knowledge gap between whites and African Americans. , 1993, Journal of the National Cancer Institute. Monographs.

[53]  S. Folkman,et al.  [An analysis of coping in a middle-aged community sample]. , 1980, Kango kenkyu. The Japanese journal of nursing research.

[54]  S. M. Miller,et al.  Monitoring and blunting: validation of a questionnaire to assess styles of information seeking under threat. , 1987, Journal of personality and social psychology.

[55]  John P. Robinson,et al.  The Main Source: Learning from Television News , 1986 .