Ethical Issues in Cochlear Implant Surgery: An Exploration into Disease, Disability, and the Best Interests of the Child

This paper examines ethical issues related to medical practices with children and adults who are members of a linguistic and cultural minority known as the DEAF-WORLD. Members of that culture characteristically have hearing parents and are treated by hearing professionals whose values, particularly concerning language, speech, and hearing, are typically quite different from their own. That disparity has long fueled a debate on several ethical issues, most recently the merits of cochlear implant surgery for DEA children. We explore whether that surgery would be ethical if implants could deliver close to normal hearing for most implanted children, thereby diminishing the ranks of the DEAF-WORLD. The ethical implications of eugenic practices with the DEA are explored, as are ethical quandaries in parental surrogacy for DEA children, and their parallels in transracial adoption.

[1]  A. Hodges,et al.  Ethics of Cochlear Implantation in Young Children , 1996, Otolaryngology--head and neck surgery : official journal of American Academy of Otolaryngology-Head and Neck Surgery.

[2]  Warren Thomas Reich,et al.  Encyclopedia of Bioethics , 1979 .

[3]  H. Lane The Mask of Benevolence: Disabling the Deaf Community , 1993 .

[4]  D. Davis Genetic dilemmas and the child's right to an open future. , 1997, Rutgers law journal.

[5]  B. Franklin The Rights of Children , 1986 .

[6]  I. Jordan Ethical Issues in the Genetic Study of Deafness , 1991, Annals of the New York Academy of Sciences.

[7]  Comment on Turner , 2013 .

[8]  Carol Padden,et al.  Deaf in America: Voices from a Culture , 1988 .

[9]  P. Frank,et al.  Boston Studies in the Philosophy of Science , 1968 .

[10]  R. Tyler Cochlear Implants: Audiological Foundations , 1992 .

[11]  J. Schein At Home Among Strangers , 2009 .

[12]  H. Lane When the Mind Hears: A History of the Deaf , 1984 .

[13]  H. Lane The Cochlear Implant Controversy , 1994 .

[14]  Paul Abberley The Concept of Oppression and the Development of a Social Theory of Disability , 1987 .

[15]  Rachel I. Mayberry,et al.  The long-lasting advantage of learning sign language in childhood: Another look at the critical period for language acquisition , 1991 .

[16]  D. Rose The ethics of cochlear implants in young children. , 1994, The American journal of otology.

[17]  H. Lane Constructions of Deafness , 1995 .

[18]  J. Cleve,et al.  Gallaudet encyclopedia of deaf people and deafness , 1987 .

[19]  H. Lane The dispute concerning the benefits to be expected from cochlear implantation of young deaf children. , 1995, The American journal of otology.

[20]  Rita J. Simon,et al.  Adoption, Race, and Identity: From Infancy through Adolescence. , 1993 .

[21]  H. Lane,et al.  A journey into the deaf-world , 1996 .