Differences between developed and developing countries in paediatric care in haemophilia

Summary.  The aim of this article is to provide an up‐to‐date overview on paediatric haemophilia care in the world, with emphasis on medical treatment, rehabilitation, and orthopaedic surgery. The reason these specific professions caregivers are included is that over 90% of bleeding episodes in people with haemophilia (PWH) occur within the musculoskeletal system; and of these 80% of bleedings occur in joints.

[1]  C. Schachter,et al.  A qualitative study identifying the knowledge, attitudes and behaviours of young men with mild haemophilia , 2012, Haemophilia : the official journal of the World Federation of Hemophilia.

[2]  R. Wu,et al.  Low dose secondary prophylaxis reduces joint bleeding in severe and moderate haemophilic children: a pilot study in China , 2011, Haemophilia : the official journal of the World Federation of Hemophilia.

[3]  J. Luck,et al.  Management of arthrofibrosis in haemophilic arthropathy , 2010, Haemophilia : the official journal of the World Federation of Hemophilia.

[4]  R Tiktinsky,et al.  Electrotherapy: yesterday, today and tomorrow , 2010, Haemophilia : the official journal of the World Federation of Hemophilia.

[5]  V. Blanchette,et al.  Prophylaxis in the haemophilia population , 2010, Haemophilia.

[6]  V. Rampal,et al.  Surgical synovectomy of the knee in young haemophiliacs: long-term results of a monocentric series of 23 patients , 2010, Journal of children's orthopaedics.

[7]  Diane L. Damiano,et al.  A Systematic Review of the Effectiveness of Treadmill Training and Body Weight Support in Pediatric Rehabilitation , 2009, Journal of neurologic physical therapy : JNPT.

[8]  F. Lafeber,et al.  Haemophilic arthropathy: the importance of the earliest haemarthroses and consequences for treatment , 2008, Haemophilia : the official journal of the World Federation of Hemophilia.

[9]  K. Mulder,et al.  Orthopaedic management of haemophilia arthropathy of the ankle , 2008, Haemophilia : the official journal of the World Federation of Hemophilia.

[10]  A. Boadas,et al.  Chemical synoviorthesis with oxytetracycline clorhydrate (Emicine®) in recurrent haemarthrosis , 2007, Haemophilia : the official journal of the World Federation of Hemophilia.

[11]  Alan R. Cohen,et al.  Prophylaxis versus episodic treatment to prevent joint disease in boys with severe hemophilia. , 2007, The New England journal of medicine.

[12]  P. Babyn,et al.  Tailored prophylaxis in severe hemophilia A: interim results from the first 5 years of the Canadian Hemophilia Primary Prophylaxis Study , 2006, Journal of thrombosis and haemostasis : JTH.

[13]  T. Kaul.  A text book of pain , 2006 .

[14]  D. K. Bhattacharya.  Haemophilia in the Indian Scenario , 2006 .

[15]  G. Dolan.  ESOS: a European study on the orthopaedic status of patients with haemophilia and inhibitors , 2005, Haemophilia : the official journal of the World Federation of Hemophilia.

[16]  R. Gassner,et al.  Anti‐inflammatory effects of continuous passive motion on meniscal fibrocartilage , 2005, Journal of orthopaedic research : official publication of the Orthopaedic Research Society.

[17]  D. Bae,et al.  Arthroscopic synovectomy in haemophilic arthropathy of the knee , 2005, International Orthopaedics.

[18]  Mary E. Martin.  Management of the , 2005 .

[19]  G. Roosendaal,et al.  Functional recovery after bleeding episodes in haemophilia , 2004, Haemophilia : the official journal of the World Federation of Hemophilia.

[20]  B. Evatt,et al.  Comprehensive care for haemophilia around the world , 2004, Haemophilia : the official journal of the World Federation of Hemophilia.

[21]  A. Viswabandya,et al.  Dose and outcome of care in haemophilia – how do we define cost‐effectiveness? , 2004, Haemophilia : the official journal of the World Federation of Hemophilia.

[22]  A. Srivastava.  Dose and response in haemophilia – optimization of factor replacement therapy , 2004, British journal of haematology.

[23]  K. Ghosh.  Management of haemophilia and its complications in developing countries. , 2004, Clinical and laboratory haematology.

[24]  K. Sullivan,et al.  Arthroscopic Synovectomy for Hemophilic Joint Disease in a Pediatric Population , 2004, Journal of pediatric orthopedics.

[25]  P. Mannucci.  Hemophilia: treatment options in the twenty‐first century , 2003, Journal of thrombosis and haemostasis : JTH.

[26]  D. Grobbee,et al.  Prophylactic treatment for severe haemophilia: comparison of an intermediate‐dose to a high‐dose regimen , 2002, Haemophilia : the official journal of the World Federation of Hemophilia.

[27]  E. Wojtys,et al.  The role of arthroscopic synovectomy in the management of hemarthrosis in hemophilia patients: financial perspectives. , 2002, Arthroscopy : the journal of arthroscopic & related surgery : official publication of the Arthroscopy Association of North America and the International Arthroscopy Association.

[28]  T. Bedirhan Üstün,et al.  Application of the International Classification of Functioning, Disability and Health (ICF) in clinical practice , 2002, Disability and rehabilitation.

[29]  P. Stevens,et al.  Anterior Femoral Stapling , 2001, Journal of pediatric orthopedics.

[30]  K. Fischer,et al.  Changes in treatment strategies for severe haemophilia over the last 3 decades: effects on clotting factor consumption and arthropathy , 2001, Haemophilia : the official journal of the World Federation of Hemophilia.

[31]  D. Mohanty,et al.  Epsilon-Aminocaproic Acid Inhibits the Activity of Factor VIII Inhibitors in Patients with Severe Haemophilia A in vivo and in vitro , 2000, Acta Haematologica.

[32]  Pathare,et al.  Gas gangrene in a patient with severe haemophilia A , 1999, Haemophilia.

[33]  Srivastava.  Factor replacement for haemophilia – should cryoprecipitate be used? , 1999, Haemophilia : the official journal of the World Federation of Hemophilia.

[34]  R. Eston,et al.  Effects of cold water immersion on the symptoms of exercise-induced muscle damage. , 1999, Journal of sports sciences.

[35]  A. Srivastava.  Delivery of haemophilia care in the developing world , 1998, Haemophilia : the official journal of the World Federation of Hemophilia.

[36]  M. Chandy,et al.  Management of haemophilia in the developing world , 1998, Haemophilia : the official journal of the World Federation of Hemophilia.

[37]  C. Kessler,et al.  Continuous infusion therapy in haemophilia , 1998, Haemophilia : the official journal of the World Federation of Hemophilia.

[38]  E. Rodríguez‐Merchán.  Management of the orthopaedic complications of haemophilia. , 1998, The Journal of bone and joint surgery. British volume.

[39]  E. Rodríguez‐Merchán,et al.  Hamstring release for fixed knee flexion contracture in hemophilia. , 1997, Clinical orthopaedics and related research.

[40]  H. Pettersson,et al.  Haemophilia prophylaxis in young patients–a long‐term follow‐up , 1997, Journal of internal medicine.

[41]  B. Colvin.  Haemophilia in the UK: past, present and future , 1995, Haemophilia : the official journal of the World Federation of Hemophilia.

[42]  M. Chandy.  Management of haemophilia in developing countries with available resources , 1995, Haemophilia : the official journal of the World Federation of Hemophilia.

[43]  H. Pettersson,et al.  Twenty‐five years' experience of prophylactic treatment in severe haemophilia A and B , 1992, Journal of internal medicine.

[44]  P. Mannucci,et al.  Hemophilia in the 1990s: principles of management and improved access to care. , 1992, Seminars in thrombosis and hemostasis.

[45]  Neal C. Small,et al.  Complications in arthroscopy: the knee and other joints. Committee on Complications of the Arthroscopy Association of North America. , 1986, Arthroscopy : the journal of arthroscopic & related surgery : official publication of the Arthroscopy Association of North America and the International Arthroscopy Association.

[46]  J. Luck,et al.  Hematologic management of hemophilia A for surgery. , 1985, JAMA.

[47]  J. Seibold,et al.  Arthroscopic synovectomy in the treatment of hemophilic synovitis. , 2009, Scandinavian journal of haematology. Supplementum.

[48]  J. Wiedel.  Arthroscopic synovectomy in hemophilic arthropathy of the knee. , 2009, Scandinavian journal of haematology. Supplementum.

[49]  P. Hamilton,et al.  The Role of Synovectomy in the Management of Recurrent Haemarthroses in Haemophilia , 1981, British journal of haematology.

[50]  R. A. Cumming,et al.  PROPHYLAXIS IN HÆMOPHILIA , 1971 .

[51]  Prophylaxis in haemophilia. , 1971, Lancet.

[52]  Jackson Mh.  Tubal patency tests. , 1947 .