Patients’ Online Access to Their Primary Care Electronic Health Records and Linked Online Services: Implications for Research and Practice

Online access to medical records and linked services, including requesting repeat prescriptions and booking appointments, enables patients to personalize their access to care. However, online access creates opportunities and challenges for both health professionals and their patients, in practices and in research. The challenges for practice are the impact of online services on workload and the quality and safety of health care. Health professionals are concerned about the impact on workload, especially from email or other online enquiry systems, as well as risks to privacy. Patients report how online access provides a convenient means through which to access their health provider and may offer greater satisfaction if they get a timely response from a clinician. Online access and services may also result in unforeseen consequences and may change the nature of the patient-clinician interaction. Research challenges include: (1) Ensuring privacy, including how to control inappropriate carer and guardian access to medical records; (2) Whether online access to records improves patient safety and health outcomes; (3) Whether record access increases disparities across social classes and between genders; and (4) Improving efficiency. The challenges for practice are: (1) How to incorporate online access into clinical workflow; (2) The need for a business model to fund the additional time taken. Creating a sustainable business model for a safe, private, informative, more equitable online service is needed if online access to records is to be provided outside of pay-for-service systems.

[1]  N Britten,et al.  Confidentiality of medical records: the patient's perspective. , 1995, The British journal of general practice : the journal of the Royal College of General Practitioners.

[2]  L. Neinstein,et al.  Utilization of electronic communication (E-mail) with patients at university and college health centers. , 2000, The Journal of adolescent health : official publication of the Society for Adolescent Medicine.

[3]  S N Forjuoh,et al.  E-mail communications in family practice: what do patients expect? , 2001, The Journal of family practice.

[4]  Gilad J. Kuperman,et al.  Requirements development for a patient computing system , 2001, AMIA.

[5]  I. Kohane,et al.  Public standards and patients' control: how to keep electronic medical records accessible but private. , 2001, BMJ : British Medical Journal.

[6]  Sherry Holcomb,et al.  Computer-using patients want Internet services from family physicians. , 2002, The Journal of family practice.

[7]  Steven J Katz,et al.  Bridging the electronic divide: patient and provider perspectives on e-mail communication in primary care. , 2002, The American journal of managed care.

[8]  D. Ford,et al.  Doctors Who Are Using E-mail With Their Patients: a Qualitative Exploration , 2003, Journal of medical Internet research.

[9]  David W. Bates,et al.  Opportunities to enhance patient and physician e-mail contact , 2003, Int. J. Medical Informatics.

[10]  ERIC M. LIEDERMAN,et al.  Research Paper: Web Messaging: A New Tool for Patient-Physician Communication , 2003, J. Am. Medical Informatics Assoc..

[11]  Daniel Z. Sands,et al.  Experiences of Physicians Who Frequently Use E-Mail With Patients , 2003, Health communication.

[12]  David Young,et al.  Research Paper: Patient Experiences and Attitudes about Access to a Patient Electronic Health Care Record and Linked Web Messaging , 2004, J. Am. Medical Informatics Assoc..

[13]  David W. Bates,et al.  The role of primary care non-physician clinic staff in e-mail communication with patients , 2004, Int. J. Medical Informatics.

[14]  Ida A. Batista,et al.  Using Claims Data to Examine Patients Using Practice-Based Internet Communication: Is There a Clinical Digital Divide? , 2004, Journal of medical Internet research.

[15]  C. Pyper,et al.  Access to electronic health records in primary care-a survey of patients' views. , 2004, Medical science monitor : international medical journal of experimental and clinical research.

[16]  A. Sheikh,et al.  Email consultations in health care: 1—scope and effectiveness , 2004, BMJ : British Medical Journal.

[17]  S. Wyatt,et al.  The Role of the Internet in Patient-Practitioner Relationships: Findings from a Qualitative Research Study , 2004, Journal of medical Internet research.

[18]  Alessandro Petti,et al.  A road map , 2020, Orbital Mechanics for Engineering Students.

[19]  David W. Bates,et al.  A Patient-Controlled Journal for an Electronic Medical Record: Issues and Challenges , 2004, MedInfo.

[20]  David T. Stern,et al.  Research Paper: A Content Analysis of E-mail Communication between Patients and Their Providers: Patients Get the Message , 2004, J. Am. Medical Informatics Assoc..

[21]  Steven J Katz,et al.  Crossing the digital divide: evaluating online communication between patients and their providers. , 2004, The American journal of managed care.

[22]  Claudia Pagliari,et al.  A survey of GP attitudes to and experiences of email consultations. , 2004, Informatics in primary care.

[23]  C. Pagliari,et al.  Email consultations in general practice. , 2004, Informatics in primary care.

[24]  Hege Andreassen,et al.  [Patient-physician interaction over the internet]. , 2004, Tidsskrift for den Norske laegeforening : tidsskrift for praktisk medicin, ny raekke.

[25]  C. Pyper,et al.  Patients' experiences when accessing their on-line electronic patient records in primary care. , 2004, The British journal of general practice : the journal of the Royal College of General Practitioners.

[26]  Catherine Quantin,et al.  The legal acknowledgement of the electronic signature: a key for a secure direct access of patients to their computerised medical record , 2004, Int. J. Medical Informatics.

[27]  A. Sheikh,et al.  Email consultations in health care: 2—acceptability and safe application , 2004, BMJ : British Medical Journal.

[28]  J. Rutland,et al.  A system for telephone and secure email consultations, with automatic billing , 2004, Journal of telemedicine and telecare.

[29]  Aksel Tjora,et al.  Privacy vs Usability: A Qualitative Exploration of Patients' Experiences With Secure Internet Communication With Their General Practitioner , 2005, Journal of medical Internet research.

[30]  Bruce Koehler,et al.  E-mail communications in primary care: what are patients' expectations for specific test results? , 2005, Int. J. Medical Informatics.

[31]  Per Egil Kummervold,et al.  Electronic patient-provider communication: Will it offset office visits and telephone consultations in primary care? , 2005, Int. J. Medical Informatics.

[32]  Chen-Tan Lin,et al.  An Internet-Based Patient-Provider Communication System: Randomized Controlled Trial , 2005, Journal of medical Internet research.

[33]  Benita Cox,et al.  Potential impacts of patient access to their electronic care records. , 2005, Informatics in primary care.

[34]  Chen-Tan Lin,et al.  Expectations of Patients and Physicians Regarding Patient-Accessible Medical Records , 2005, Journal of medical Internet research.

[35]  C. Chew‐Graham,et al.  The exceptional potential of the Internet? Perceptions about the management of another set of communications: a qualitative study , 2005, Primary Health Care Research & Development.

[36]  Peter Huggard,et al.  Pandora's electronic box: GPs reflect upon email communication with their patients. , 2005, Informatics in primary care.

[37]  Eugenie M Komives,et al.  Clinician-patient E-mail communication: challenges for reimbursement. , 2005, North Carolina medical journal.

[38]  Eric M. Liederman,et al.  Patient-physician web messaging. The impact on message volume and satisfaction. , 2005, Journal of general internal medicine.

[39]  Howard Bauchner,et al.  A Content Analysis of E-mail Communication Between Primary Care Providers and Parents , 2005, Pediatrics.

[40]  Kenneth G Adler,et al.  Web Portals in Primary Care: An Evaluation of Patient Readiness and Willingness to Pay for Online Services , 2006, Journal of medical Internet research.

[41]  Katarina Hamberg,et al.  The use of an Internet-based Ask the Doctor Service involving family physicians: evaluation by a web survey. , 2006, Family practice.

[42]  Paul C. Tang,et al.  Proposed Criteria for Reimbursing eVisits: Content Analysis of Secure Patient Messages in a Personal Health Record System , 2006, AMIA.

[43]  John Hsu,et al.  Early Experiences with e-Health Services (1999–2002): Promise, Reality, and Implications , 2006, Medical care.

[44]  Katrina M. Krause,et al.  Use of email in a family practice setting: opportunities and challenges in patient- and physician-initiated communication , 2006, BMC medicine.

[45]  Barbara A. Walters,et al.  “Patient Portals” and “E‐Visits” , 2006, The Journal of ambulatory care management.

[46]  S. Wangberg,et al.  Patients’ willingness to pay for electronic communication with their general practitioner , 2007, The European Journal of Health Economics.

[47]  T. Houston,et al.  Patient Access to U.S. Physicians Who Conduct Internet or E-mail Consults , 2007, Journal of General Internal Medicine.

[48]  P. Kummervold,et al.  Patients Who Use E-Mediated Communication With Their Doctor: New Constructions of Trust in the Patient-Doctor Relationship , 2006, Qualitative health research.

[49]  N. Menachemi,et al.  Physicians’ Use of Email With Patients: Factors Influencing Electronic Communication and Adherence to Best Practices , 2006, Journal of medical Internet research.

[50]  Terhilda Garrido,et al.  Patient access to an electronic health record with secure messaging: impact on primary care utilization. , 2007, The American journal of managed care.

[51]  MPH Dr. Steven J. Katz MD,et al.  Effect of a triage-based e-mail system on clinic resource use and patient and physician satisfaction in primary care , 2007, Journal of General Internal Medicine.

[52]  A. Hannan,et al.  Towards a partnership of trust. , 2007, Studies in health technology and informatics.

[53]  I. Herbert CLICSIG report: patients' access to medical records. Report of the meeting of the Clinical Computing Special Interest Group (CLICSIG) of the Primary Health Care Specialist Group of the British Computer Society, Cranage, Cheshire, 9 December 2006. , 2007, Informatics in primary care.

[54]  Barak Gaster,et al.  Physicians’ use of and attitudes toward electronic mail for patient communication , 2003, Journal of General Internal Medicine.

[55]  Michael E Matheny,et al.  Impact of an automated test results management system on patients' satisfaction about test result communication. , 2007, Archives of internal medicine.

[56]  Blackford Middleton,et al.  Design and implementation of a web-based patient portal linked to an electronic health record designed to improve medication safety: the Patient Gateway medications module. , 2008, Informatics in primary care.

[57]  Göran Petersson,et al.  Medical text-based consultations on the Internet: A 4-year study , 2008, Int. J. Medical Informatics.

[58]  C. Reed,et al.  Early experience of the use of short message service (SMS) technology in routine clinical care. , 2008, Informatics in primary care.

[59]  K. Fairhurst,et al.  Texting appointment reminders to repeated non-attenders in primary care: randomised controlled study , 2008, Quality & Safety in Health Care.

[60]  PhC James T. Tufano MHA,et al.  Providers’ Experience with an Organizational Redesign Initiative to Promote Patient-Centered Access: A Qualitative Study , 2008, Journal of General Internal Medicine.

[61]  Susan S Woods,et al.  MyHealtheVet PHR: a description of users and patient portal use. , 2008, AMIA ... Annual Symposium proceedings. AMIA Symposium.

[62]  David W. Bates,et al.  Medication safety messages for patients via the web portal: The MedCheck intervention , 2008, Int. J. Medical Informatics.

[63]  Gregory E. Simon,et al.  Patient Use of Secure Electronic Messaging Within a Shared Medical Record: A Cross-sectional Study , 2009, Journal of General Internal Medicine.

[64]  Daniel Z. Sands,et al.  Can E-Mail Messages Between Patients and Physicians Be Patient-Centered? , 2008, Health communication.

[65]  Cornelia M. Ruland,et al.  Developing a Shared Electronic Health Record for Patients and Clinicians , 2008, MIE.

[66]  Ruth Gardiner The transition from 'informed patient' care to 'patient informed' care. , 2008, Studies in health technology and informatics.

[67]  Patricia A. H. Williams When trust defies common security sense , 2008, Health Informatics J..

[68]  Vincent Breton,et al.  Giving patients secure << Google-like >> access to their medical record. , 2008, Studies in health technology and informatics.

[69]  E. Seydel,et al.  Evaluation of Internet-Based Technology for Supporting Self-Care: Problems Encountered by Patients and Caregivers When Using Self-Care Applications , 2008, Journal of medical Internet research.

[70]  G. Eysenbach,et al.  Patient Accessible Electronic Health Records: Exploring Recommendations for Successful Implementation Strategies , 2008, Journal of medical Internet research.

[71]  David W. Bates,et al.  An effort to improve electronic health record medication list accuracy between visits: Patients' and physicians' response , 2008, Int. J. Medical Informatics.

[72]  B. Fisher,et al.  How patients use access to their full health records: a qualitative study of patients in general practice , 2009, Journal of the Royal Society of Medicine.

[73]  Peggy Gregory,et al.  Expectations and experiences of eHealth in primary care: A qualitative practice-based investigation , 2009, Int. J. Medical Informatics.

[74]  Kenneth D Mandl,et al.  Acceptability of a Personally Controlled Health Record in a Community-Based Setting: Implications for Policy and Design , 2009, Journal of medical Internet research.

[75]  Harald Seeger,et al.  Impact of electronic messaging on the patient-physician interaction , 2009, Journal of telemedicine and telecare.

[76]  Valerie M. Sue,et al.  If you build it, will they come? The Kaiser Permanente model of online health care. , 2009, Health affairs.

[77]  D. West,et al.  Where's the revolution? Digital technology and health care in the internet age. , 2009, Journal of health politics, policy and law.

[78]  John M. Byrne,et al.  Case Report: Initial Experience with Patient-Clinician Secure Messaging at a VA Medical Center , 2009, J. Am. Medical Informatics Assoc..

[79]  G. Petersson,et al.  Physicians' attitudes towards eprescribing: a comparative web survey in Austria and Sweden. , 2009, Informatics in primary care.

[80]  Terhilda Garrido,et al.  The Kaiser Permanente Electronic Health Record: transforming and streamlining modalities of care. , 2009, Health affairs.

[81]  J. Mold,et al.  Patient-physician e-mail communication revisited a decade later: an OKPRN study. , 2009, The Journal of the Oklahoma State Medical Association.

[82]  Glyn Hayes,et al.  The NHS information technology (IT) and social care review 2009: a synopsis. , 2010, Informatics in primary care.

[83]  Steven C Adamson,et al.  Pilot study of providing online care in a primary care setting. , 2010, Mayo Clinic proceedings.

[84]  Yoon-Ho Seol,et al.  Incorporating patient perspectives into the personal health record: implications for care and caring. , 2010, Perspectives in health information management.

[85]  E. Seydel,et al.  Patient use and compliance with medical advice delivered by a web-based triage system in primary care , 2010, Journal of telemedicine and telecare.

[86]  L. Caffery,et al.  A literature review of email-based telemedicine. , 2010, Studies in health technology and informatics.

[87]  Richard M. Frankel,et al.  Patient access to radiology reports: what do physicians think? , 2010, Journal of the American College of Radiology : JACR.

[88]  T. Greenhalgh,et al.  Adoption, non-adoption, and abandonment of a personal electronic health record: case study of HealthSpace , 2010, BMJ : British Medical Journal.

[89]  Amir Hannan,et al.  Providing patients online access to their primary care computerised medical records: a case study of sharing and caring. , 2010, Informatics in primary care.

[90]  Roni Peleg,et al.  Providing cell phone numbers and email addresses to Patients: the physician's perspective , 2011, BMC Research Notes.

[91]  M. Tiik Rules and access rights of the Estonian integrated e-Health system. , 2010, Studies in health technology and informatics.

[92]  J. Wald,et al.  Variations in patient portal adoption in four primary care practices. , 2010, AMIA ... Annual Symposium proceedings. AMIA Symposium.

[93]  Joann G. Elmore,et al.  Open Notes: Doctors and Patients Signing On , 2010, Annals of Internal Medicine.

[94]  Rema Padman,et al.  eVisit: A Pilot Study of a New Kind of Healthcare Delivery , 2010, MedInfo.

[95]  Jiali Ye,et al.  E-mail in patient-provider communication: a systematic review. , 2010, Patient education and counseling.

[96]  J. Fashner,et al.  Internet availability and interest in patients at a family medicine residency clinic. , 2011, Family medicine.

[97]  Gilad J. Kuperman,et al.  Policies for patient access to clinical data via PHRs: current state and recommendations , 2011, J. Am. Medical Informatics Assoc..

[98]  Adam Williams,et al.  Patient reported barriers to enrolling in a patient portal , 2011, J. Am. Medical Informatics Assoc..

[99]  M. Cross BMA warns against letting patients have access to their electronic records , 2011, BMJ : British Medical Journal.

[100]  R. Hasnain-Wynia,et al.  Disparities in Enrollment and Use of an Electronic Patient Portal , 2011, Journal of General Internal Medicine.

[101]  Brian Fisher,et al.  How patients use access to their electronic GP record--a quantitative study. , 2011, Family practice.

[102]  Susan S Woods,et al.  Patient Interest in Sharing Personal Health Record Information , 2011, Annals of Internal Medicine.

[103]  S. Albert,et al.  Internet-based medical visit and diagnosis for common medical problems: experience of first user cohort. , 2011, Telemedicine journal and e-health : the official journal of the American Telemedicine Association.

[104]  Steven A. Smith,et al.  Patient portal doldrums: does an exam room promotional video during an office visit increase patient portal registrations and portal use? , 2011, J. Am. Medical Informatics Assoc..

[105]  D. Baer,et al.  Patient-physician e-mail communication: the kaiser permanente experience. , 2011, Journal of oncology practice.

[106]  Joann G Elmore,et al.  Inviting Patients to Read Their Doctors' Notes: Patients and Doctors Look Ahead , 2011, Annals of Internal Medicine.

[107]  Alissa L. Russ,et al.  Lessons learned from usability testing of the VA's personal health record , 2011, J. Am. Medical Informatics Assoc..

[108]  C. May,et al.  Non-face-to-face consultations and communications in primary care: the role and perspective of general practice managers in Scotland. , 2011, Informatics in primary care.

[109]  Monica M. Horvath,et al.  Impact of Health Portal Enrollment With Email Reminders on Adherence to Clinic Appointments: A Pilot Study , 2011, Journal of medical Internet research.

[110]  Yan Zhang,et al.  Designing Patient-Centered Personal Health Records (PHRs): Health Care Professionals’ Perspective on Patient-Generated Data , 2012, Journal of Medical Systems.

[111]  Shannon M. Canfield,et al.  Consistency of Patient Preferences About a Secure Internet-Based Patient Communications Portal , 2012, American journal of medical quality : the official journal of the American College of Medical Quality.

[112]  Dinara Saparova,et al.  Motivating, influencing, and persuading patients through personal health records: a scoping review. , 2012, Perspectives in health information management.

[113]  Bonnie J Wakefield,et al.  Internet use by primary care patients: where is the digital divide? , 2012, Family medicine.

[114]  Sherri L. LaVela,et al.  Understanding health care communication preferences of veteran primary care users. , 2012, Patient education and counseling.

[115]  Elin C. Lehnbom,et al.  A qualitative study of Australians' opinions about personally controlled electronic health records , 2012, HIC.

[116]  A. Sheikh,et al.  The provision and impact of online patient access to their electronic health records (EHR) and transactional services on the quality and safety of health care: systematic review protocol. , 2013, Informatics in primary care.

[117]  Tejal K. Gandhi,et al.  Effects of an online personal health record on medication accuracy and safety: a cluster-randomized trial , 2012, J. Am. Medical Informatics Assoc..

[118]  Hsin-Ginn Hwang,et al.  The Differing Privacy Concerns Regarding Exchanging Electronic Medical Records of Internet Users in Taiwan , 2012, Journal of Medical Systems.

[119]  James W. Mold,et al.  Impact of a Wellness Portal on the Delivery of Patient-Centered Preventive Care , 2012, The Journal of the American Board of Family Medicine.

[120]  T. Palen,et al.  Association of online patient access to clinicians and medical records with use of clinical services. , 2012, JAMA.

[121]  P. Szilagyi,et al.  Text messaging: a new tool for improving preventive services. , 2012, JAMA.

[122]  Communication Technology Access, Use, and Preferences among Primary Care Patients: From the Residency Research Network of Texas (RRNeT) , 2012, The Journal of the American Board of Family Medicine.

[123]  Claudia Pagliari,et al.  Embedding online patient record access in UK primary care: a survey of stakeholder experiences , 2012, JRSM short reports.

[124]  Joann G Elmore,et al.  Inviting Patients to Read Their Doctors' Notes: A Quasi-experimental Study and a Look Ahead , 2011, Annals of Internal Medicine.

[125]  Joann G. Elmore,et al.  Evaluating the impact of patients' online access to doctors' visit notes: designing and executing the OpenNotes project , 2012, BMC Medical Informatics and Decision Making.

[126]  Kumanan Wilson,et al.  The challenges in making electronic health records accessible to patients , 2012, J. Am. Medical Informatics Assoc..

[127]  Susan S Woods,et al.  Patient Experiences With Full Electronic Access to Health Records and Clinical Notes Through the My HealtheVet Personal Health Record Pilot: Qualitative Study , 2013, Journal of medical Internet research.

[128]  Stephen S. Cha,et al.  Research and applications: Patient-generated secure messages and eVisits on a patient portal: are patients at risk? , 2013, J. Am. Medical Informatics Assoc..

[129]  Joann G Elmore,et al.  Online Access to Doctors' Notes: Patient Concerns About Privacy , 2013, Journal of medical Internet research.

[130]  Nan Liu,et al.  Appointment reminder systems and patient preferences: Patient technology usage and familiarity with other service providers as predictive variables , 2013, Health Informatics J..

[131]  Kelly Caine,et al.  Patients want granular privacy control over health information in electronic medical records , 2013, J. Am. Medical Informatics Assoc..

[132]  D. Morrow,et al.  Factors affecting usage of a personal health record (PHR) to manage health. , 2013, Psychology and aging.

[133]  Aaron E. Carroll,et al.  Patient Preferences in Controlling Access to Their Electronic Health Records: a Prospective Cohort Study in Primary Care , 2014, Journal of General Internal Medicine.

[134]  Joann G Elmore,et al.  Patients Who Share Transparent Visit Notes With Others: Characteristics, Risks, and Benefits , 2014, Journal of medical Internet research.

[135]  Theodoros N. Arvanitis,et al.  Patients’ online access to their electronic health records and linked online services: a systematic interpretative review , 2014, BMJ Open.

[136]  Christopher Pearce,et al.  A personally controlled electronic health record for Australia , 2014, J. Am. Medical Informatics Assoc..

[137]  Paresh Kerai,et al.  A pilot study on the views of elderly regional Australians of personally controlled electronic health records , 2014, Int. J. Medical Informatics.

[138]  William M. Tierney,et al.  Provider Responses to Patients Controlling Access to their Electronic Health Records: A Prospective Cohort Study in Primary Care , 2014, Journal of General Internal Medicine.

[139]  Robert J. Stroebel,et al.  Impact of patient portal secure messages and electronic visits on adult primary care office visits. , 2014, Telemedicine journal and e-health : the official journal of the American Telemedicine Association.

[140]  Ghalib A. Bello,et al.  Engaging Primary Care Patients to Use a Patient-Centered Personal Health Record , 2014, The Annals of Family Medicine.

[141]  Xiaojun Zhang,et al.  Patients' adoption of the e-appointment scheduling service: A case study in primary healthcare , 2014, HIC.

[142]  Successful practices in the use of secure e-mail. , 2014, The Permanente journal.

[143]  Stephanie L. Shimada,et al.  Evaluating User Experiences of the Secure Messaging Tool on the Veterans Affairs’ Patient Portal System , 2014, Journal of medical Internet research.

[144]  B. Fisher,et al.  The impact of patient record access on appointments and telephone calls in two English general practices: a population-based study , 2014, London journal of primary care.

[145]  Theodoros N. Arvanitis,et al.  Patients' online access to their electronic health records and linked online services: a systematic review in primary care. , 2015, The British journal of general practice : the journal of the Royal College of General Practitioners.

[146]  Nick Sevdalis,et al.  “Nothing About Me Without Me”: An Interpretative Review of Patient Accessible Electronic Health Records , 2015, Journal of medical Internet research.