Matters of life and death: locating the end of life in lifespan-oriented hci research

Examining developmental periods of the human lifespan has been a useful tradition for focusing HCI research (e.g., technologies for children or the elderly). In this paper, we identify the end of life as another period of the human lifespan that merits consideration by technology designers and researchers. This paper maps out current and future research in HCI at the end of life by first describing how this area raises questions concerning materiality and artifacts, social identities, temporality and methodologies. Having provided a description of the richness of this area, we then frame it against HCI traditions and practices in an orientation we term the lifespan-oriented approach. This paper maps early efforts in end of life research, structures and suggests areas for continued work, and situates the end of life among existing areas of HCI research.

[1]  P. Baltes,et al.  Life-span developmental psychology. , 2019, Annual review of psychology.

[2]  James W. Green,et al.  Beyond the Good Death , 2012 .

[3]  Steve Benford,et al.  Performing Mixed Reality , 2011 .

[4]  Fiona Kerlogue,et al.  MEMORY AND MATERIAL CULTURE , 2011 .

[5]  Richard Banks,et al.  Reciprocity, deep storage, and letting go: opportunities for designing interactions with inherited digital materials , 2010, INTR.

[6]  N. Okude,et al.  ThanatoFenestra: photographic family altar supporting a ritual to pray for the deceased , 2010, Conference on Designing Interactive Systems.

[7]  Ronald Baecker,et al.  A death in the family: opportunities for designing technologies for the bereaved , 2010, CHI.

[8]  Jeremy P. Birnholtz,et al.  Independence and interaction: understanding seniors' privacy and awareness needs for aging in place , 2010, CHI.

[9]  Batya Friedman,et al.  Multi-lifespan information system design: a research initiative for the hci community , 2010, CHI.

[10]  Abigail Sellen,et al.  Passing on & putting to rest: understanding bereavement in the context of interactive technologies , 2010, CHI.

[11]  Richard Banks,et al.  HCI at the end of life: understanding death, dying, and the digital , 2010, CHI Extended Abstracts.

[12]  Masashi Crete-Nishihata,et al.  The psychosocial impacts of multimedia biographies on persons with cognitive impairments. , 2010, The Gerontologist.

[13]  E. Bradley,et al.  Tailoring Traditional Interviewing Techniques for Qualitative Research with Seriously Ill Patients about the End-of-Life: A Primer , 2010, Omega.

[14]  John R Seeley,et al.  An Internet Tool to Normalize Grief , 2010, Omega.

[15]  Rebecca E. Grinter,et al.  Broadening Ubicomp's vision: an exploratory study of charismatic pentecostals and technology use in Brazil , 2009, UbiComp.

[16]  G. Bonanno The Other Side of Sadness: What the New Science of Bereavement Tells Us About Life After Loss , 2009 .

[17]  Danny Miller,et al.  Loss and material culture in South London , 2009 .

[18]  Stefan Carmien,et al.  'Senior moments': loss and context , 2009, PETRA '09.

[19]  Michael Massimi,et al.  Dying, death, and mortality: towards thanatosensitivity in HCI , 2009, CHI Extended Abstracts.

[20]  Heekyoung Jung,et al.  Exploring early evaluation techniques of ambient health promoting devices in home environments of senior citizens living independently , 2008, HealthNet '08.

[21]  Matthew Lombard,et al.  Telepresence after Death , 2008, PRESENCE: Teleoperators and Virtual Environments.

[22]  Tobie Kerridge,et al.  Threshold devices: looking out from the home , 2008, CHI.

[23]  Deborah S. Chung,et al.  Blogging activity among cancer patients and their companions: Uses, gratifications, and predictors of outcomes , 2008, J. Assoc. Inf. Sci. Technol..

[24]  Abigail Sellen,et al.  Do life-logging technologies support memory for the past?: an experimental study using sensecam , 2007, CHI.

[25]  Genevieve Bell,et al.  No More SMS from Jesus: Ubicomp, Religion and Techno-spiritual Practices , 2006, UbiComp.

[26]  Shirley Ann Becker,et al.  A study of web usability for older adults seeking online health resources , 2004, TCHI.

[27]  F. Biley,et al.  Thoughts on the therapeutic use of narrative in the promotion of coping in cancer care. , 2004, European journal of cancer care.

[28]  Alan J. Dix,et al.  Being playful: learning from children , 2003, IDC '03.

[29]  Peta Wyeth,et al.  Using developmental theories to inform the design of technology for children , 2003, IDC '03.

[30]  L. Hanson,et al.  Needs of the dying in nursing homes. , 2002, Journal of palliative medicine.

[31]  Gordon Bell,et al.  MyLifeBits: fulfilling the Memex vision , 2002, MULTIMEDIA '02.

[32]  James W. Green Death, Memory and Material Culture , 2002 .

[33]  Johan Redström,et al.  From use to presence: on the expressions and aesthetics of everyday computational things , 2002, TCHI.

[34]  Alex S. Taylor,et al.  Age-old practices in the 'new world': a study of gift-giving between teenage mobile phone users , 2002, CHI.

[35]  C. McPherson,et al.  After-death interviews with surrogates/bereaved family members: some issues of validity. , 2001, Journal of pain and symptom management.

[36]  J. Costello,et al.  Nursing older dying patients: findings from an ethnographic study of death and dying in elderly care wards. , 2001, Journal of advanced nursing.

[37]  M. Fallat,et al.  Beneficial effects of a hospital bereavement intervention program after traumatic childhood death. , 2001, The Journal of trauma.

[38]  Douglas Carnall,et al.  Death and dying , 2000, BMJ : British Medical Journal.

[39]  Elizabeth D. Mynatt,et al.  Learning from seniors in network communities , 1999, CHI Extended Abstracts.

[40]  Allison Druin,et al.  The design of children's technology , 1998 .

[41]  T. Schenkenberg,et al.  Advance Directives: A Computer Assisted Approach to Assuring Patients’ Rights and Compliance with PSDA and JCAHO Standards , 1997 .

[42]  S. Murphy A bereavement intervention for parents following the sudden, violent deaths of their 12-28-year-old children: description and applications to clinical practice. , 1997, The Canadian journal of nursing research = Revue canadienne de recherche en sciences infirmieres.

[43]  C. Reynolds,et al.  Complicated grief as a disorder distinct from bereavement-related depression and anxiety: a replication study. , 1996, The American journal of psychiatry.

[44]  Yasmin B. Kafai,et al.  Minds In Play: Computer Game Design as a Context for Children''s , 1994 .

[45]  C. Vassy,et al.  [The awareness of dying]. , 1993, Soins; la revue de reference infirmiere.

[46]  J. Worden Grief counseling and grief therapy , 1983 .

[47]  Stephen R. Merritt,et al.  Rites Of Passage , 1977 .

[48]  J. Persson Death, the Final Stage of Growth , 1975 .

[49]  David Sudnow,et al.  Passing on; The Social Organization of Dying , 1967 .

[50]  Jed R. Brubaker,et al.  Death and the Social Network , 2010 .

[51]  Glennys Howarth,et al.  Death and Dying: A Sociological Introduction , 2007 .

[52]  Andrew Meirion Jones,et al.  Memory and Material Culture , 2007 .

[53]  H. Schut,et al.  Interventions to enhance adaptation to bereavement. , 2005, Journal of palliative medicine.

[54]  J. Finch,et al.  Passing On: Kinship and Inheritance in England , 2000 .

[55]  Lorna Bowlby-West,et al.  The impact of death on the family system , 1983 .

[56]  Allen Newell,et al.  The psychology of human-computer interaction , 1983 .