Improvements in neonatal care; using experience-based co-design.

PURPOSE The purpose of this paper is to identify and improve patient care processes by collaborating patients, relatives and healthcare professionals. DESIGN/METHODOLOGY/APPROACH To identify and improve patient care processes by collaborating patients, relatives and healthcare professionals. FINDINGS Healthcare problems captured from collaboration between patients and healthcare professionals fall into simple, complicated and complex problems. Healthcare staff and patient experiences with patient processes differ, and a collaborative approach is needed to capture all areas needing improvement. RESEARCH LIMITATIONS/IMPLICATIONS The conclusions are drawn from a project with few participants in a context that probably influenced the results. In contrast, other studies in the same area confirm the results. PRACTICAL IMPLICATIONS The study outcomes have direct implications for healthcare professionals who can learn from patients involved in quality improvements such as this experience-based co-design (EBCD) project. ORIGINALITY/VALUE The paper contributes to limited studies on EBCD involving patients in healthcare quality improvements.

[1]  S. Glouberman Complicated and Complex Systems: What Would Successful Reform of Medicare Look Like? , 2002 .

[2]  John Øvretveit,et al.  Does improving quality save money? A review of evidence of which improvements to quality reduce costs to health service providers , 2009 .

[3]  G. Robert Participatory action research: using experience-based co-design to improve the quality of healthcare services , 2013 .

[4]  Aditi Naidu,et al.  Factors affecting patient satisfaction and healthcare quality. , 2009, International journal of health care quality assurance.

[5]  K. Eisenhardt Building theories from case study research , 1989, STUDI ORGANIZZATIVI.

[6]  Emergency Department Co-Design Stage 1 Evaluation - Report to Health Services Performance Improvement Branch, NSW Health , 2008 .

[7]  L. Maher,et al.  Accelerating the improvement process , 2008 .

[8]  Lynne Maher,et al.  Experience based design: a practical method of working with patients to redesign services , 2008 .

[9]  Alastair Baker,et al.  Crossing the Quality Chasm: A New Health System for the 21st Century , 2001, BMJ : British Medical Journal.

[10]  Paul Bate,et al.  Experience-based design: from redesigning the system around the patient to co-designing services with the patient , 2006, Quality and Safety in Health Care.

[11]  M. Tinetti,et al.  Views of older adults on patient participation in medication-related decision making , 2006, Journal of General Internal Medicine.

[12]  T. Kettunen,et al.  Nurse-patient power relationship: preliminary evidence of patients' power messages. , 2002, Patient education and counseling.

[13]  Duncan Dickson,et al.  Comparing hospital staff and patient perceptions of customer service: a pilot study utilizing survey and focus group data , 2006, Health services management research.

[14]  R. Bohmer Designing Care: Aligning the Nature and Management of Health Care , 2009 .

[15]  Rick Iedema,et al.  Codesigning as a Discursive Practice in Emergency Health Services: The Architecture of Deliberation , 2010 .

[16]  Laura Huang,et al.  Managing the Unknowable , 2015 .

[17]  C. Pope,et al.  Qualitative methods in research on healthcare quality , 2002, Quality & safety in health care.

[18]  Claire Taylor,et al.  Doing Action Research , 2006 .

[19]  S. Kvale Dominance Through Interviews and Dialogues , 2006 .

[20]  P B Batalden,et al.  Improving the simple, complicated and complex realities of community-acquired pneumonia , 2009, Quality & Safety in Health Care.

[21]  B. Lundman,et al.  Qualitative content analysis in nursing research: concepts, procedures and measures to achieve trustworthiness. , 2004, Nurse education today.

[22]  A. Parasuraman,et al.  Delivering quality service : balancing customer perceptions and expectations , 1990 .

[23]  Paul Bate,et al.  Using a Design Approach to Assist Large-Scale Organizational Change , 2007 .

[24]  G. Robert,et al.  Toward More User-Centric OD , 2007 .

[25]  R. Marshak,et al.  Organizational Discourse and New Organization Development Practices , 2008 .

[26]  M. Ehnfors,et al.  A comparison of the concept of patient participation and patients' descriptions as related to healthcare definitions. , 2010, International journal of nursing terminologies and classifications : the official journal of NANDA International.

[27]  Stephanie G. Sherman,et al.  Total Customer Satisfaction: A Comprehensive Approach for Health Care Providers , 1998 .