Enhancing Care Partnerships Using a Rheumatology Dashboard: Bringing Together What Matters Most to Both Patients and Clinicians

Dashboards can support person‐centered care by helping people partner with their clinicians to coproduce care based on preferences, shared decision‐making, and evidence‐based treatments. We engaged caregivers of children with juvenile idiopathic arthritis (JIA), adults with rheumatoid arthritis (RA), and clinicians in a pilot study to assess their experiences and the utility and impact of an electronic previsit questionnaire and point‐of‐care dashboard to support coproduction of rheumatology care.

[1]  Michael V. Boland,et al.  Ocular Health and National Data Standards: A Case for Including Visual Acuity in the United States Core Data for Interoperability (USCDI) , 2022, Ophthalmology science.

[2]  E. Nelson,et al.  Point-of-care dashboards promote coproduction of healthcare services for patients with inflammatory bowel disease. , 2021, International journal for quality in health care : journal of the International Society for Quality in Health Care.

[3]  Eugene Nelson,et al.  Co-design of an Electronic Dashboard to Support the Coproduction of Care in Pediatric Rheumatic Disease: Human-Centered Design and Usability Testing , 2021, Journal of participatory medicine.

[4]  Christian Johnson,et al.  The ecosystem of apps and software integrated with certified health information technology , 2021, J. Am. Medical Informatics Assoc..

[5]  Raj M. Ratwani,et al.  A novel application of SMART on FHIR architecture for interoperable and scalable integration of patient-reported outcome data with electronic health records , 2021, J. Am. Medical Informatics Assoc..

[6]  Carlos A. Velasco,et al.  The PICASO cloud platform for improved holistic care in rheumatoid arthritis treatment—experiences of patients and clinicians , 2021, Arthritis Research & Therapy.

[7]  E. Nelson,et al.  Formative evaluation of a dashboard to support coproduction of healthcare services in cystic fibrosis. , 2020, Journal of cystic fibrosis : official journal of the European Cystic Fibrosis Society.

[8]  J. Yazdany,et al.  Patient and clinician perspectives on a patient‐facing dashboard that visualizes patient reported outcomes in rheumatoid arthritis , 2020, Health expectations : an international journal of public participation in health care and health policy.

[9]  Jonathan G. Shaw,et al.  Practices to Foster Physician Presence and Connection With Patients in the Clinical Encounter. , 2020, JAMA.

[10]  G. Collins,et al.  Global, regional and national burden of rheumatoid arthritis 1990–2017: a systematic analysis of the Global Burden of Disease study 2017 , 2019, Annals of the rheumatic diseases.

[11]  G. Elwyn,et al.  Coproduction: when users define quality , 2019, BMJ Quality & Safety.

[12]  J. Curtis,et al.  Opioid use in rheumatoid arthritis: trends, efficacy, safety, and best practices , 2019, Current opinion in rheumatology.

[13]  L. Trupin,et al.  "Am I OK?" using human centered design to empower rheumatoid arthritis patients through patient reported outcomes. , 2019, Patient education and counseling.

[14]  M. Longacre,et al.  Empowering Young People Living With Juvenile Idiopathic Arthritis to Better Communicate With Families and Care Teams: Content Analysis of Semistructured Interviews , 2019, JMIR mHealth and uHealth.

[15]  Christopher J. Koenig,et al.  Experience and Context Shape Patient and Clinician Goals For Treatment of Rheumatoid Arthritis: A Qualitative Study , 2018, Arthritis care & research.

[16]  P. Batalden Getting more health from healthcare: quality improvement must acknowledge patient coproduction—an essay by Paul Batalden , 2018, BMJ.

[17]  S. Swann,et al.  The new Childhood Arthritis and Rheumatology Research Alliance (CARRA) registry: design, rationale, and characteristics of patients enrolled in the first 12 months , 2017, Pediatric Rheumatology.

[18]  E. Morgan,et al.  Improving care delivery and outcomes in pediatric rheumatic diseases , 2016, Current opinion in rheumatology.

[19]  J. Rademakers,et al.  The Net Promoter Score – an asset to patient experience surveys? , 2015, Health expectations : an international journal of public participation in health care and health policy.

[20]  Michael Seid,et al.  Coproduction of healthcare service , 2015, BMJ Quality & Safety.

[21]  Virginia R. Lerch,et al.  Improving the Quality of Care of Patients With Rheumatic Disease Using Patient‐Centric Electronic Redesign Software , 2015, Arthritis care & research.

[22]  E. Coleman,et al.  Health confidence: an essential measure for patient engagement and better practice. , 2014, Family practice management.

[23]  J. Askling,et al.  The Swedish Rheumatology Quality Register: optimisation of rheumatic disease assessments using register-enriched data. , 2014, Clinical and experimental rheumatology.

[24]  Glyn Elwyn,et al.  The Psychometric Properties of CollaboRATE: A Fast and Frugal Patient-Reported Measure of the Shared Decision-Making Process , 2014, Journal of medical Internet research.

[25]  J. Hibbard,et al.  What the evidence shows about patient activation: better health outcomes and care experiences; fewer data on costs. , 2013, Health affairs.

[26]  Virginia Lerch,et al.  Touchscreen questionnaire patient data collection in rheumatology practice: Development of a highly successful system using process redesign , 2012, Arthritis care & research.

[27]  C. Courtlandt,et al.  Model for improvement - Part 1: A framework for health care quality. , 2009, Pediatric clinics of North America.

[28]  F. Reichheld The one number you need to grow. , 2003, Harvard business review.

[29]  J. B. Brooke,et al.  SUS: A 'Quick and Dirty' Usability Scale , 1996 .