Health-Related Quality of Life Among German YouthsWith Early-Onset and Long-Duration Type 1 Diabetes

RESEARCH DESIGN AND METHODSdA total of 629 subjects aged 11 to 17 years, with a type 1 diabetes onset occurring from age 0 to 4 years during the years 1993–1999, and their parents, completed questionnaires, including the generic KINDL-R Questionnaire for MeasuringHealth-RelatedQuality of Life in Children and Adolescents, revised version, to assess QoL. The comparison group (n = 6,813) was a representative sample from the German Health Interview and Examination Survey for Children and Adolescents (KiGGS) study. Regression analyses were conducted using sociodemographic and health-related covariates.

[1]  S. Jaser,et al.  Coping and resilience in adolescents with type 1 diabetes. , 2011, Child: care, health and development.

[2]  T. Danne,et al.  Initialschulung für Eltern von Kindern mit Diabetes: Aufwand und Effekte bei Kindern und Eltern , 2011 .

[3]  V. Helgeson,et al.  Children with Diabetes Compared to Peers: Depressed? Distressed? , 2011, Annals of behavioral medicine : a publication of the Society of Behavioral Medicine.

[4]  Christine Eiser,et al.  Health‐related quality of life (HRQoL) of children with type 1 diabetes mellitus (T1DM): self and parental perceptions , 2011, Pediatric diabetes.

[5]  David M Maahs,et al.  Epidemiology of type 1 diabetes. , 2010, Endocrinology and metabolism clinics of North America.

[6]  N. Matsuura,et al.  Health‐related and diabetes‐related quality of life in Japanese children and adolescents with type 1 and type 2 diabetes , 2010, Pediatrics international : official journal of the Japan Pediatric Society.

[7]  H. Hoey.  Psychosocial factors are associated with metabolic control in adolescents: research from the Hvidoere Study Group on Childhood Diabetes , 2009, Pediatric diabetes.

[8]  K. Karavanaki,et al.  Psychosocial problems in adolescents with type 1 diabetes mellitus. , 2009, Diabetes & metabolism.

[9]  B. Kurth,et al.  Measuring adolescents' HRQoL via self reports and parent proxy reports: an evaluation of the psychometric properties of both versions of the KINDL-R instrument , 2009, Health and quality of life outcomes.

[10]  C. Murray,et al.  Are Americans Feeling Less Healthy? The Puzzle of Trends in Self-rated Health , 2009, American journal of epidemiology.

[11]  A. Green,et al.  Incidence trends for childhood type 1 diabetes in Europe during 1989–2003 and predicted new cases 2005–20: a multicentre prospective registration study , 2009, The Lancet.

[12]  M. Bullinger,et al.  Psychometric properties of the KINDL-R questionnaire: results of the BELLA study , 2008, European Child & Adolescent Psychiatry.

[13]  D. Elleri,et al.  Quality of life, psychological adjustment and metabolic control in youths with type 1 diabetes: a study with self‐ and parent‐report questionnaires , 2008, Pediatric diabetes.

[14]  Gert B. M. Mensink,et al.  The challenge of comprehensively mapping children's health in a nation-wide health survey: Design of the German KiGGS-Study , 2008, BMC public health.

[15]  T. Lampert,et al.  Messung soziodemographischer Merkmale im Kinder- und Jugendgesundheitssurvey (KiGGS) und ihre Bedeutung am Beispiel der Einschätzung des allgemeinen Gesundheitszustands , 2007, Bundesgesundheitsblatt - Gesundheitsforschung - Gesundheitsschutz.

[16]  Robert Koch-Institut,et al.  Der Kinder- und Jugendgesundheitssurvey (KiGGS): Stichprobendesign, Response und Nonresponse-Analyse , 2007, Bundesgesundheitsblatt - Gesundheitsforschung - Gesundheitsschutz.

[17]  Susan M Sawyer,et al.  Adolescents with a chronic condition: challenges living, challenges treating , 2007, The Lancet.

[18]  F. Pouwer,et al.  Monitoring health related quality of life in adolescents with diabetes: a review of measures , 2007, Archives of Disease in Childhood.

[19]  D. Sherifali,et al.  Parent as Proxy Reporting , 2007, Journal of family nursing.

[20]  U. Thyen,et al.  Age, metabolic control and type of insulin regime influences health-related quality of life in children and adolescents with type 1 diabetes mellitus , 2005, European Journal of Pediatrics.

[21]  B. Anderson,et al.  General quality of life in youth with type 1 diabetes: relationship to patient management and diabetes-specific family conflict. , 2003, Diabetes care.

[22]  O. Søvik,et al.  Measuring self‐reported, health‐related, quality of life in adolescents with type 1 diabetes using both generic and disease‐specific instruments , 2003, Acta paediatrica.

[23]  Kenneth L. Jones,et al.  The PedsQL in type 1 and type 2 diabetes: reliability and validity of the Pediatric Quality of Life Inventory Generic Core Scales and type 1 Diabetes Module. , 2003, Diabetes care.

[24]  Franz Schweiggert,et al.  A framework for diabetes documentation and quality management in Germany: 10 years of experience with DPV , 2002, Comput. Methods Programs Biomed..

[25]  J. Müller,et al.  Perzentile für den Body-mass-Index für das Kindes- und Jugendalter unter Heranziehung verschiedener deutscher Stichproben , 2001, Monatsschrift Kinderheilkunde.

[26]  H. Koot,et al.  Quality of life measurement in children and adolescents: issues, instruments, and applications. , 2001, Journal of clinical psychology.

[27]  M. Wake,et al.  The Child Health Questionnaire in children with diabetes: cross‐sectional survey of parent and adolescent‐reported functional health status , 2000, Diabetic medicine : a journal of the British Diabetic Association.

[28]  G. Giani,et al.  Temporal, seasonal, and geographical incidence patterns of Type I diabetes mellitus in children under 5 years of age in Germany , 1999, Diabetologia.

[29]  M. Bullinger,et al.  Assessing health-related quality of life in chronically ill children with the German KINDL: first psychometric and content analytical results , 1998, Quality of Life Research.

[30]  Christine Eiser,et al.  Measuring quality of life , 1997, Archives of disease in childhood.

[31]  J. Stockman,et al.  Incidence trends for childhood type 1 diabetes in Europe during 1989–2003 and predicted new cases 2005–20: a multicentre prospective registration study , 2011 .

[32]  Christine Eiser,et al.  Can parents rate their child's health-related quality of life? Results of a systematic review , 2004, Quality of Life Research.