Comparison of Average Weekly Pain Using Recalled Paper and Momentary Assessment Electronic Diary Reports in Children With Arthritis

Objective:The current study investigated the construct validity of a multidimensional pain diary for youth with juvenile idiopathic arthritis and also compared participants’ responses on electronic and retrospective diary measures. The purpose of the latter part of this study was to compare absolute agreement, between-person and within-person consistency and judged change in weekly pain between these 2 methods of assessing pain. Methods:A total of 70 adolescents with juvenile idiopathic arthritis completed both weekly recalled and momentary reports of pain over a 2-week period and assessed their change in pain over the 2-week period using a 5-point global change in pain scale. The Pearson correlations and intraclass correlation coefficients were computed to demonstrate 3 different ways of comparing the measures on both between-person and within-person basis. Results:Momentary ratings of pain episodes were consistently greater than weekly ratings of recalled pain. Moderate to strong consistency and agreement correlations were computed for between-person momentary and recalled pain intensity. However, these correlations were much weaker when the within-person data were analyzed. The judged change in pain across weeks was significantly associated with computed change in both average momentary and recalled pain. Discussion:This is one of the few studies to explore the relationship between the measurement methods of pain recall and momentary assessment in adolescents. The poor within-person correlations observed have important implications for research design and practice in pediatric pain.

[1]  lhealtlhy youin-g,et al.  Hospital for Sick Children , 1857, British medical journal.

[2]  Arthur Lucas,et al.  THE HOSPITAL FOR SICK CHILDREN , 1915, British medical journal.

[3]  P. Gibbons,et al.  How do children describe pain? A tentative assessment , 1982, Pain.

[4]  T. Jessell.  PAIN , 1982, The Lancet.

[5]  K L Thompson,et al.  The Varni/Thompson Pediatrie Pain Questionnaire. I. Chronic musculoskeletal pain in juvenile rheumatoid arthritis , 1987, Pain.

[6]  A. Lloyd-Thomas,et al.  Pain management in children. , 1991, British medical bulletin.

[7]  J. Varni,et al.  Cognitive-behavioral pain management in children with juvenile rheumatoid arthritis. , 1992, Pediatrics.

[8]  C. V. von Baeyer,et al.  Reactive effects of measurement of pain. , 1994, The Clinical journal of pain.

[9]  C. L. Baeyer.  Reactive effects of measurement of pain , 1994 .

[10]  P. McGrath,et al.  Parents' management of children's pain following ‘minor’ surgery , 1996, Pain.

[11]  Laura Porter,et al.  Reactive effects of diary self-assessment in chronic pain patients , 1996, Pain.

[12]  J. J. Wilson,et al.  The stability of pain coping strategies in young children adolescents, and adults with sickle cell disease over an 18-month period. , 1997, The Clinical journal of pain.

[13]  A. Stone,et al.  Does the peak-end phenomenon observed in laboratory pain studies apply to real-world pain in rheumatoid arthritics? , 2000, The journal of pain : official journal of the American Pain Society.

[14]  J. Passchier,et al.  Pain in children and adolescents: a common experience , 2000, Pain.

[15]  M. V. D. van den Brink,et al.  The Occurrence of Recall Bias in Pediatric Headache: A Comparison of Questionnaire and Diary Data , 2001, Headache.

[16]  J C van der Wouden,et al.  Chronic pain and its impact on quality of life in adolescents and their families. , 2001, Journal of pediatric psychology.

[17]  R. Jamison,et al.  Electronic diaries for monitoring chronic pain: 1-year validation study , 2001, Pain.

[18]  P. Mcgrath,et al.  Pain assessment in children and adolescents. , 2001 .

[19]  David L Streiner,et al.  The Case of the Missing Data: Methods of Dealing with Dropouts and other Research Vagaries , 2002, Canadian journal of psychiatry. Revue canadienne de psychiatrie.

[20]  Nathaniel P. Katz,et al.  Comparative study of electronic vs. paper VAS ratings: a randomized, crossover trial using healthy volunteers , 2002, PAIN.

[21]  K. Gil,et al.  Daily pain and symptoms in children with polyarticular arthritis. , 2003, Arthritis and rheumatism.

[22]  A. Stone,et al.  Measuring clinical pain in chronic widespread pain: selected methodological issues. , 2003, Best practice & research. Clinical rheumatology.

[23]  S. Shiffman,et al.  Patient compliance with paper and electronic diaries. , 2003, Controlled clinical trials.

[24]  David A. Williams,et al.  Pain Assessment in Patients With Fibromyalgia Syndrome: A Consideration of Methods for Clinical Trials , 2004, The Clinical journal of pain.

[25]  S. Shiffman,et al.  Understanding recall of weekly pain from a momentary assessment perspective: absolute agreement, between- and within-person consistency, and judged change in weekly pain , 2004, Pain.

[26]  Paul P Stork,et al.  A randomized trial of electronic versus paper pain diaries in children: impact on compliance, accuracy, and acceptability , 2004, Pain.

[27]  T. Marche,et al.  Children's memory for pain: overview and implications for practice. , 2004, The journal of pain : official journal of the American Pain Society.

[28]  J. Turner,et al.  Electronic diary assessment of pain-related variables: is reactivity a problem? , 2005, The journal of pain : official journal of the American Pain Society.

[29]  J. Baird,et al.  Pain assessment in patients with low back pain: comparison of weekly recall and momentary electronic data. , 2006, The journal of pain : official journal of the American Pain Society.

[30]  J. Stinson,et al.  Systematic review of the psychometric properties, interpretability and feasibility of self-report pain intensity measures for use in clinical trials in children and adolescents , 2006, Pain.

[31]  Jennifer N Stinson,et al.  e-Ouch: Usability Testing of an Electronic Chronic Pain Diary for Adolescents With Arthritis , 2006, The Clinical journal of pain.

[32]  A. Stone,et al.  Real-time data collection for pain: appraisal and current status. , 2007, Pain medicine.

[33]  J. Stinson,et al.  Working out the kinks: testing the feasibility of an electronic pain diary for adolescents with arthritis. , 2008, Pain research & management.

[34]  Steven Weisman,et al.  Core outcome domains and measures for pediatric acute and chronic/recurrent pain clinical trials: PedIMMPACT recommendations. , 2008, The journal of pain : official journal of the American Pain Society.

[35]  Patrick J. McGrath,et al.  Construct validity of a multidimensional electronic pain diary for adolescents with arthritis , 2008, PAIN.

[36]  M. Jensen,et al.  Validity of 24-h recall ratings of pain severity: Biasing effects of “Peak” and “End” pain , 2008, PAIN®.

[37]  H Lester Kirchner,et al.  Comparing Diary and Retrospective Reports of Pain and Activity Restriction in Children and Adolescents With Chronic Pain Conditions , 2009, The Clinical journal of pain.

[38]  J. Bensing,et al.  Compliance with momentary pain measurement using electronic diaries: A systematic review , 2009, European journal of pain.

[39]  Jennifer N Stinson,et al.  Improving the assessment of pediatric chronic pain: harnessing the potential of electronic diaries. , 2009, Pain research & management.

[40]  Jennifer N Stinson,et al.  An Internet-based Self-management Program with Telephone Support for Adolescents with Arthritis: A Pilot Randomized Controlled Trial , 2010, The Journal of Rheumatology.

[41]  A. Stone,et al.  Peak and end effects in patients' daily recall of pain and fatigue: a within-subjects analysis. , 2011, The journal of pain : official journal of the American Pain Society.

[42]  R. Klein,et al.  The influence of children’s pain memories on subsequent pain experience , 2012, PAIN®.

[43]  J. LaFountain.  Inc. , 2013, American Art.

[44]  J. Varni,et al.  Varni/Thompson Pediatric Pain Questionnaire , 2013 .

[45]  A. Mazur,et al.  Pain management in children. , 2013, Annals of agricultural and environmental medicine : AAEM.

[46]  J. Stinson,et al.  Development and Testing of a Multidimensional iPhone Pain Assessment Application for Adolescents with Cancer , 2012, Journal of medical Internet research.

[47]  J. Stinson,et al.  Pain Intensity Variability and Its Relationship With Quality of Life in Youths With Juvenile Idiopathic Arthritis , 2013, Arthritis care & research.