Does Tracheostomy Remain an Option in Neuromuscular Patients?

Numerous patients with a progressive neuromuscular disease are characterized by a decline in respiratory muscle performance, which results in progressive respiratory failure, initially during sleep and subsequently during the day.[1][1] At this point, daytime hypercapnia and symptoms related to

[1]  E. Y. Kim,et al.  Five-Year Follow-Up and Outcomes of Noninvasive Ventilation in Subjects With Neuromuscular Diseases , 2018, Respiratory Care.

[2]  D. Orlikowski,et al.  Impact of invasive ventilation on survival when non-invasive ventilation is ineffective in patients with Duchenne muscular dystrophy: A prospective cohort. , 2016, Respiratory medicine.

[3]  J. Bach,et al.  Cost and Physician Effort Analysis of Invasive vs. Noninvasive Respiratory Management of Duchenne Muscular Dystrophy , 2015, American journal of physical medicine & rehabilitation.

[4]  J. Storre,et al.  Invasive Home Mechanical Ventilation: Living Conditions and Health-Related Quality of Life , 2015, Respiration.

[5]  I. Leuchter,et al.  Is tracheostomy still an option in amyotrophic lateral sclerosis? Reflections of a multidisciplinary work group. , 2013, Swiss medical weekly.

[6]  J. Benditt,et al.  Pulmonary issues in patients with chronic neuromuscular disease. , 2013, American journal of respiratory and critical care medicine.

[7]  D. Orlikowski,et al.  Patient-controlled positive end-expiratory pressure with neuromuscular disease: effect on speech in patients with tracheostomy and mechanical ventilation support. , 2013, Chest.

[8]  Y. Péréon,et al.  Evolution of life expectancy of patients with Duchenne muscular dystrophy at AFM Yolaine de Kepper centre between 1981 and 2011. , 2012, Annals of physical and rehabilitation medicine.

[9]  T. Miura,et al.  Duchenne muscular dystrophy: Survival by cardio-respiratory interventions , 2011, Neuromuscular Disorders.

[10]  H. Sitter,et al.  Guidelines for non-invasive and invasive mechanical ventilation for treatment of chronic respiratory failure. Published by the German Society for Pneumology (DGP). , 2010, Pneumologie.

[11]  D. Annane,et al.  Impact of tracheostomy on swallowing performance in Duchenne muscular dystrophy , 2010, Neuromuscular Disorders.

[12]  J. Bach,et al.  The respiratory management of patients with duchenne muscular dystrophy: A DMD care considerations working group specialty article , 2010, Pediatric pulmonology.

[13]  D. Orlikowski,et al.  Speech effects of a speaking valve versus external PEEP in tracheostomized ventilator-dependent neuromuscular patients , 2010, Intensive Care Medicine.

[14]  Craig McDonald,et al.  Diagnosis and management of Duchenne muscular dystrophy, part 2: implementation of multidisciplinary care , 2010, The Lancet Neurology.

[15]  N. Ambrosino,et al.  Chronic respiratory care for neuromuscular diseases in adults , 2009, European Respiratory Journal.

[16]  D. Orlikowski,et al.  Breathing-swallowing interaction in neuromuscular patients: a physiological evaluation. , 2007, American journal of respiratory and critical care medicine.

[17]  M. Toussaint,et al.  Diurnal ventilation via mouthpiece: survival in end-stage Duchenne patients , 2006, European Respiratory Journal.

[18]  P. Narayanaswami,et al.  Long-Term Tracheostomy Ventilation in Neuromuscular Diseases: Patient Acceptance and Quality of Life , 2000, Neurorehabilitation and neural repair.

[19]  J. Bach.  A comparison of long-term ventilatory support alternatives from the perspective of the patient and care giver. , 1993, Chest.

[20]  J. Bach,et al.  Intermittent Positive Pressure Ventilation via the Mouth as an Alternative to Tracheostomy for 257 Ventilator Users , 2006 .