Living with an adult family member using advanced medical technology at home.

Living with an adult family member using advanced medical technology at home An increased number of chronically ill adults perform self-care while using different sorts of advanced medical technology at home. This hermeneutical study aimed to gain a deeper understanding of the meaning of living with an adult family member using advanced medical technology at home. Eleven next of kin to adults performing self-care at home, either using long-term oxygen from a cylinder or ventilator, or performing peritoneal or haemodialysis, were interviewed. The qualitative interviews were analysed using a Gadamerian methodology. The main interpretation explained the meaning as rhythmical patterns of connectedness versus separation, and of sorrow versus reconciliation. Dependence on others was shown in the need for support from healthcare professionals and significant others. In conclusion, next of kin took considerable responsibility for dependent-care. All next of kin were positive to the idea of bringing the technology home, even though their own needs receded into the background, while focusing on the best for the patient. The results were discussed in relation to dependent-care and transition, which may have an influence on the self-care of next of kin and patients. The study revealed a need for further nursing attention to next of kin in this context.

[1]  R. V. van Kesteren,et al.  Psychosocial Problems Arising from Home Ventilation , 2001, American journal of physical medicine & rehabilitation.

[2]  W. Luk The home care experience as perceived by the caregivers of Chinese dialysis patients. , 2002, International journal of nursing studies.

[3]  Randi Ballangrud,et al.  Clients' experiences of living at home with a mechanical ventilator. , 2009, Journal of advanced nursing.

[4]  N. Courts Psychosocial Adjustment of Patients on Home Hemodialysis and Their Dialysis Partners , 2000, Clinical nursing research.

[5]  B. Midgren Home mechanical ventilation. A growing challenge in an aging society. , 2007, Respiratory medicine.

[6]  Tzu-Ting Huang,et al.  Role adaptation of family caregivers for ventilator-dependent patients: transition from respiratory care ward to home. , 2010, Journal of clinical nursing.

[7]  A. Street,et al.  Family issues in home-based care. , 1999, International journal of nursing practice.

[8]  S. Eckstein Ethical principles for medical research involving human subjects. , 2001, European journal of emergency medicine : official journal of the European Society for Emergency Medicine.

[9]  M. Ageborg,et al.  Quality of life, self‐care ability, and sense of coherence in hemodialysis patients: A comparative study , 2005, Hemodialysis international. International Symposium on Home Hemodialysis.

[10]  J. Morse,et al.  Verification Strategies for Establishing Reliability and Validity in Qualitative Research , 2002 .

[11]  Rosemarie Rizzo Parse,et al.  The Human Becoming School of Thought: A Perspective for Nurses and Other Health Professionals , 1998 .

[12]  T. Iwanaga,et al.  Burden among caregivers of patients with chronic obstructive pulmonary disease with long-term oxygen therapy , 2008 .

[13]  Dorothea E. Orem,et al.  Nursing: Concepts of practice , 1972 .

[14]  Christine Thrasher,et al.  Caregiving by family and friends of adults receiving dialysis. , 2005, Nephrology nursing journal : journal of the American Nephrology Nurses' Association.

[15]  A. Biggs Orem's Self-Care Deficit Nursing Theory: Update on the State of the Art and Science , 2008, Nursing science quarterly.

[16]  H. Jónsdóttir,et al.  Technological dependency--the experience of using home ventilators and long-term oxygen therapy: patients' and families' perspective. , 2006, Scandinavian journal of caring sciences.

[17]  P. Sinclair Home haemodialysis: a literature review , 2009 .

[18]  Eun-Ok Im,et al.  Experiencing Transitions: An Emerging Middle-Range Theory , 2000, ANS. Advances in nursing science.

[19]  Lois W. Sayrs Interviews : an introduction to qualitative research interviewing , 1996 .

[20]  M. Hart,et al.  A Theory of Dependent-Care: A Corollary Theory to Orem’s Theory of Self-Care , 2001, Nursing science quarterly.

[21]  V. Fleming,et al.  Hermeneutic research in nursing: developing a Gadamerian-based research method. , 2003, Nursing inquiry.

[22]  E. Paavilainen,et al.  Family dynamics in families of severe COPD patients. , 2007, Journal of clinical nursing.