Measuring the Parental, Service and Cost Impacts of Children with Autistic Spectrum Disorder: A Pilot Study

The aim of this study was to carry out a preliminary examination of a research instrument developed specifically to collect cost information for individuals with autistic spectrum disorder. There is very little cost information on children or adults with autism or autism-related disorder, and no study appears to have carried out a specific cost collection in this area. Although some global cost estimates can be made, little is known about the cost implications of parental burden. By using different techniques to collect indirect costs, the study outlines a functional methodology. Results from this small pilot study point to considerable economic burden for parents and give some indication of the associated costs of autistic spectrum disorder.

[1]  A. Birenbaum,et al.  On the importance of helping families: policy implications from a national study. , 1993, Mental Retardation.

[2]  D McDaid,et al.  Estimating the costs of informal care for people with Alzheimer's disease: methodological and practical challenges , 2001, International journal of geriatric psychiatry.

[3]  Martin Knapp,et al.  Comparing patterns and costs of schizophrenia care in five European countries: the EPSILON study , 2002, Acta psychiatrica Scandinavica.

[4]  Gina Green,et al.  Cost–benefit estimates for early intensive behavioral intervention for young children with autism—general model and single state case , 1998 .

[5]  Benefit—Cost Analysis and Autism Services: A Response to Jacobson and Mulick , 2000, Journal of autism and developmental disorders.

[6]  Martin Knapp,et al.  Costing psychiatric interventions. , 1992 .

[7]  Martin Knapp,et al.  The Economic Impact of Autism in Britain , 2001, Autism : the international journal of research and practice.

[8]  P. Howlin Practitioner review: psychological and educational treatments for autism. , 1998, Journal of child psychology and psychiatry, and allied disciplines.

[9]  J. Beecham,et al.  Supporting young adults with hemiplegia: services and costs. , 2001, Health & social care in the community.

[10]  M. Bruijnzeels,et al.  Measuring morbidity of children in the community: a comparison of interview and diary data. , 1998, International journal of epidemiology.

[11]  L. Magliano,et al.  Burden on the families of patients with schizophrenia: results of the BIOMED I study , 1998, Social Psychiatry and Psychiatric Epidemiology.

[12]  M. Gold Cost-effectiveness in health and medicine , 2016 .