Mother's support in NICU: A Focused Ethnographic Study

Background: Mothers of premature infants in the neonatal intensive care unit (NICU) have complex needs and require a significant amount of support during the NICU admission. However, little is known about Iranian mothers support needs in the NICU. To explore Iranian mother’s experience of support in the NICU as well as explore nursing perceptions of mothers needs and practices that support mothers in the NICU.Methods: A focused ethnographic approach was adopted. Observation and interviews with 21 mothers, 18 nurses and 5 doctors were undertaken over a seven month period. Qualitative data analysis was conducted using the Roper and Shapira (2000) five-step framework. Result: The specific support needs of mothers of neonates in the NICU did not appear to be adequately identified by the treating healthcare team. There was also poor communication and inadequate sharing of information regarding the neonate’s clinical condition, diagnosis and treatment between both medical/nursing staff and the mother. This appeared to be a source of maternal distress. Conclusion: Cultural perspective Iranian nurses perceive providing support to mothers as an act of human kindness, a new paradigm is required where supporting mothers becomes a fundamental component of care provision.

[1]  A. Ullman,et al.  Family-Centred Care in Dedicated Neonatal Units: An Integrative Review of International Perspectives , 2020 .

[2]  Z. Sabzi,et al.  Experiences of the mothers of infants hospitalized in the neonatal intensive care unit (NICU). , 2020, Journal of neonatal-perinatal medicine.

[3]  G. Lista,et al.  Stress and feelings in mothers and fathers in NICU: identifying risk factors for early interventions , 2019, Primary Health Care Research & Development.

[4]  L. Mwape,et al.  Perception of stressors by mothers with babies admitted to the Neonatal Intensive Care Unit in Women and New Born Hospital, Lusaka, Zambia , 2019, International Journal of Nursing and Midwifery.

[5]  J. Rogowski,et al.  How Nurse Work Environments Relate to the Presence of Parents in Neonatal Intensive Care , 2017, Advances in neonatal care : official journal of the National Association of Neonatal Nurses.

[6]  Kate Robson,et al.  Effectiveness of Family Integrated Care in neonatal intensive care units on infant and parent outcomes: a multicentre, multinational, cluster-randomised controlled trial. , 2018, The Lancet. Child & adolescent health.

[7]  Aya Shimizu,et al.  Maternal perceptions of family‐centred support and their associations with the mother–nurse relationship in the neonatal intensive care unit , 2018, Journal of clinical nursing.

[8]  Srijana Dongol,et al.  Perception of Mothers Needs and Nurses Felt Needs on Nursing Care Provided by Nurses to their Neonates in the Neonatal Intensive Care Unit , 2017 .

[9]  Kathryn Knafl,et al.  Family‐Centered Care From the Perspective of Parents of Children Cared for in a Pediatric Intensive Care Unit: An Integrative Review , 2017, Journal of pediatric nursing.

[10]  A. Payot,et al.  Antenatal consultations for preterm labour: how are future mothers reassured? , 2017, Archives of Disease in Childhood: Fetal and Neonatal Edition.

[11]  M. Svelto,et al.  Supporting parents in taking care of their infants admitted to a neonatal intensive care unit: a prospective cohort pilot study , 2017, Italian Journal of Pediatrics.

[12]  M. Hasanpour,et al.  Stress Management among Parents of Neonates Hospitalized in NICU: A Qualitative Study , 2017, Journal of caring sciences.

[13]  Lina Mrayan,et al.  The Lived Experience of Jordanian Parents in a Neonatal Intensive Care Unit: A Phenomenological Study. , 2016, The journal of nursing research : JNR.

[14]  Mary A. Wickline,et al.  Guidelines for Family-Centered Care in the Neonatal, Pediatric, and Adult ICU , 2017, Critical care medicine.

[15]  Zahra Maghsoudi,et al.  Comparing perception of nurse-mother communication between neonatal intensive care nurses and mothers of hospitalized neonates , 2016 .

[16]  T. Turan,et al.  Determining the Psychometric Properties of the Turkish Version of the Nurse-Parent Support Tool and the Stress Levels of Parents of Premature Infants Hospitalized in the Neonatal Intensive Care Unit , 2016, Clinical nurse specialist CNS.

[17]  A. Heidarzadeh,et al.  Assess the admission needs of the mothers of hospitalized in the neonatal intensive care unit , 2015 .

[18]  R. Phillips,et al.  Recommendations for involving the family in developmental care of the NICU baby , 2015, Journal of Perinatology.

[19]  Z. Vanaki,et al.  Resources–tasks imbalance: Experiences of nurses from factors influencing workload to increase , 2015, Iranian journal of nursing and midwifery research.

[20]  L. Lehtonen,et al.  Trends in care practices reflecting parental involvement in neonatal care. , 2014, Early human development.

[21]  H. Winefield,et al.  The neonatal nurses' view of their role in emotional support of parents and its complexities. , 2014, Journal of clinical nursing.

[22]  L. Duley,et al.  Parents’ views on care of their very premature babies in neonatal intensive care units: a qualitative study , 2014, BMC Pediatrics.

[23]  K. Sundin,et al.  Mothers' lived experiences of support when living with young children with congenital heart defects , 2013, Journal for specialists in pediatric nursing : JSPN.

[24]  M. Tafreshi,et al.  Comparing perception of nurse - mother communication between nurses and mothers' hospitalized children , 2013 .

[25]  K. Gerrish,et al.  Parental involvement in neonatal comfort care. , 2012, Journal of obstetric, gynecologic, and neonatal nursing : JOGNN.

[26]  S. Cockcroft,et al.  How can family centred care be improved to meet the needs of parents with a premature baby in neonatal intensive care , 2012 .

[27]  Borhani Fariba,et al.  EXPERIENCE OF MOTHERS WITH PREMATURE INFANTS IN NEONATAL INTENSIVE CARE UNIT , 2012 .

[28]  E. Mohammadi,et al.  Parental participation and mismanagement: a qualitative study of child care in Iran. , 2009, Nursing & health sciences.

[29]  Lynn Clark Callister,et al.  The Parental Experience of Having an Infant in the Newborn Intensive Care Unit , 2009, Journal of Perinatal Education.

[30]  Lisa M Cleveland,et al.  Parenting in the neonatal intensive care unit. , 2008, Journal of obstetric, gynecologic, and neonatal nursing : JOGNN.

[31]  E. Mok,et al.  Nurses as providers of support for mothers of premature infants. , 2006, Journal of clinical nursing.

[32]  David B. Wilson,et al.  Wong's nursing care of infants and children , 2003 .

[33]  E. Guba,et al.  Competing paradigms in qualitative research. , 1994 .