Issues in online patient self-reporting of health status

Patient self-reporting of symptoms and quality of life following surgical interventions is generally delivered in the form of paper-based questionnaires to be completed in the outpatient clinic or at home. A commonly used tool for patient self-reporting of quality of life is the EQ5D health status questionnaire which, while limited in scope, has general applicability across a range of health interventions. In this article we examine the issues relating to online patient self-reporting using this questionnaire and the wider implications for the online reporting of health status.

[1]  E. C. G. van Geffen,et al.  PHARMACOEPIDEMIOLOGY AND PRESCRIPTION Evaluation of patients ’ experiences with antidepressants reported by means of a medicine reporting system , 2022 .

[2]  Edward Watson.  National Institute for the Blind , 1923 .

[3]  J. Gilmour,et al.  Reducing disparities in the access and use of Internet health information. a discussion paper. , 2007, International journal of nursing studies.

[4]  H M Schoolman,et al.  The United States National Library of Medicine. , 1989, Seminars in dermatology.

[5]  W. Fisher,et al.  Assessing Measurement Properties of Two Single-item General Health Measures , 2006, Quality of Life Research.

[6]  William C Welch,et al.  Quality of life assessment in patients undergoing nucleoplasty-based percutaneous discectomy. , 2006, Journal of neurosurgery. Spine.

[7]  Richard E. B. Solomons.  Assisted Internet Access for Patients in a General Practitioner Surgery: Helping the Information Poor , 2003, Health Informatics J..

[8]  Seth Wolpin,et al.  Acceptability of an Electronic Self-report Assessment Program for Patients With Cancer , 2008, Computers, informatics, nursing : CIN.

[9]  P Nygren,et al.  Assessment of quality of life during chemotherapy. , 2001, Acta oncologica.

[10]  Werner Budts,et al.  Individual quality of life in adults with congenital heart disease: a paradigm shift. , 2005, European heart journal.

[11]  George Demiris,et al.  The diffusion of virtual communities in health care: concepts and challenges. , 2006, Patient education and counseling.

[12]  E. Adang,et al.  Comment on the use of self-reporting instruments to assess patients with rheumatoid arthritis: the longitudinal association between the DAS28 and the VAS general health. , 2006, Arthritis and rheumatism.

[13]  Nandita Mitra,et al.  Patient online self-reporting of toxicity symptoms during chemotherapy. , 2005, Journal of clinical oncology : official journal of the American Society of Clinical Oncology.

[14]  Ethan Basch,et al.  Patient-reported outcomes and the evolution of adverse event reporting in oncology. , 2007, Journal of clinical oncology : official journal of the American Society of Clinical Oncology.

[15]  M. Kris,et al.  Patient versus clinician symptom reporting using the National Cancer Institute Common Terminology Criteria for Adverse Events: results of a questionnaire-based study. , 2006, The Lancet. Oncology.

[16]  Alison J. Carr,et al.  An Ethical Dilemma Medical Errors and Medical Culture an Error of Omission Education and Debate , 2022 .

[17]  Matthias Rose,et al.  Logistics of collecting patient-reported outcomes (PROs) in clinical practice: an overview and practical examples , 2009, Quality of Life Research.

[18]  D. Watson,et al.  Influence of follow-up methodology and completeness on apparent clinical outcome of fundoplication. , 2003, American journal of surgery.

[19]  Kai Lin,et al.  Application of Information Technology: Evaluation of an Online Platform for Cancer Patient Self-reporting of Chemotherapy Toxicities , 2007, J. Am. Medical Informatics Assoc..

[20]  Jeff A Sloan,et al.  Rising importance of patient-reported outcomes. , 2006, The Lancet. Oncology.

[21]  Benita Cox,et al.  The impact of the Internet on the doctor-patient relationship , 2000 .

[22]  Bryant T Karras,et al.  Electronic Self-report Assessment--Cancer (ESRA-C): Working towards an integrated survey system. , 2006, Studies in health technology and informatics.

[23]  H. Poulsen,et al.  Are Patients Reliable When Self‐Reporting Medication Use? Validation of Structured Drug Interviews and Home Visits by Drug Analysis and Prescription Data in Acutely Hospitalized Patients 1 , 2007, Journal of clinical pharmacology.

[24]  L. J. D. Berg,et al.  Adverse Drug Reaction Reporting by Patients in the Netherlands Three Years of Experience , 2008, Drug safety.

[25]  Martyn R Partridge,et al.  Patient understanding, detection, and experience of COPD exacerbations: an observational, interview-based study. , 2006, Chest.

[26]  Douglas J. Rhee,et al.  Effect of Written Instructions on Accuracy of Self-Reporting Medication Regimen in Glaucoma Patients , 2006, Journal of glaucoma.

[27]  Mirina Grosz,et al.  World Wide Web Consortium , 2010 .

[28]  Matthew I. Trotter,et al.  Patients' use of the Internet for health related matters: a study of Internet usage in 2000 and 2006 , 2008, Health Informatics J..