Embodied selfhood in Alzheimer's disease

Dementia care practices are premised on a model of Alzheimer's disease that denies the body an agential role in the constitution and manifestation of selfhood. As a consequence, despite advances in person-centred care, the body, which is a substantive means by which persons with advancing dementia engage with the world, is treated as passive rather than active and intentional. My central argument is that dementia care practices must embrace the idea that the body is a fundamental source of selfhood that does not derive its agency from a cognitive form of knowledge. With an interest in bringing the body into a theoretical re-visioning of selfhood in Alzheimer's disease, I advance this idea with the notion of embodied selfhood. I suggest ways that the notion of embodied selfhood could enhance person-centred dementia care; however, further research is required in order to fully conceptualize this notion in the context of dementia care.

[1]  G. Gutman,et al.  The discourse of self in dementia , 1998, Ageing and Society.

[2]  M. Loomis Knowledge utilization and research utilization in nursing. , 1985, Image--the journal of nursing scholarship.

[3]  S. Post The Moral Challenge of Alzheimer Disease , 1995 .

[4]  C. Williams,et al.  Persistence of self in advanced Alzheimer's disease. , 1999, Image--the journal of nursing scholarship.

[5]  E. Goffman Stigma; Notes On The Management Of Spoiled Identity , 1964 .

[6]  Lyman Ka,et al.  Living with Alzheimer's disease: the creation of meaning among persons with dementia. , 1998, The Journal of clinical ethics.

[7]  T. Kitwood,et al.  Dementia Reconsidered: the Person Comes First , 1997 .

[8]  T. Kitwood,et al.  Towards a Theory of Dementia Care: The Interpersonal Process , 1993, Ageing and Society.

[9]  K. Lyman,et al.  Bringing the social back in: a critique of the biomedicalization of dementia. , 1989, The Gerontologist.

[10]  Old Age and Agency , 2004 .

[11]  P. Bourdieu The Logic of Practice , 1990 .

[12]  T. Kitwood,et al.  The New Culture of Dementia Care , 1995 .

[13]  P. Bourdieu Distinction: A Social Critique of the Judgement of Taste* , 2018, Food and Culture.

[14]  T. Kitwood,et al.  Towards a Theory of Dementia Care: Personhood and Well-being , 1992, Ageing and Society.

[15]  K. Pillemer,et al.  Integrating theory, basic research, and intervention: two case studies from caregiving research. , 2003, The Gerontologist.

[16]  Rom Harré,et al.  The Construction and Deconstruction of Self in Alzheimer's Disease , 1992, Ageing and Society.

[17]  S. Folstein,et al.  "Mini-mental state". A practical method for grading the cognitive state of patients for the clinician. , 1975, Journal of psychiatric research.

[18]  Preserving Selves , 1998 .

[19]  Aviad E. Raz,et al.  The Mask of Dementia: Images of ‘Demented Residents’ in a Nursing Ward , 1996, Ageing and Society.

[20]  T. Kitwood Brain, Mind and Dementia: With Particular Reference to Alzheimer's Disease , 1989, Ageing and Society.

[21]  Maurice Merleau-Ponty Phenomenology of Perception , 1964 .

[22]  B. Winblad,et al.  Social dancing: a way to support intellectual, emotional and motor functions in persons with dementia. , 1998, Journal of psychiatric and mental health nursing.

[23]  Daniel H. Davis Dementia: sociological and philosophical constructions. , 2004, Social science & medicine.

[24]  S J Closs,et al.  Utilization of nursing research: culture, interest and support. , 1994, Journal of advanced nursing.

[25]  Person-centred Approaches To Dementia Care , 1997 .

[26]  T. Kitwood,et al.  Toward a Theory of Dementia Care: Ethics and Interaction , 1998, The Journal of Clinical Ethics.

[27]  J. Gubrium Oldtimers and Alzheimer's: The Descriptive Organization of Senility , 1986 .

[28]  T. Kitwood,et al.  The Dialectics of Dementia: With Particular Reference to Alzheimer's Disease , 1990, Ageing and Society.

[29]  G. P. Stone,et al.  Social Psychology Through Symbolic Interaction , 1970 .

[30]  C. A. Mottola Research utilization and the continuing/staff development educator. , 1996, Journal of Continuing Education in Nursing: Continuing Competence for the Future.

[31]  Catherine M. Chin Reconstructing the self with drama and creative arts therapies , 1996 .

[32]  D. Cohen,et al.  The loss of self : a family resource for the care of Alzheimer's disease and related disorders , 1987 .

[33]  John Bond,et al.  The medicalization of dementia , 1992 .

[34]  C. Cooley,et al.  The Looking-Glass Self , 1993 .

[35]  Murna Downs,et al.  The Emergence of the Person in Dementia Research , 1997, Ageing and Society.

[36]  Anna Yaya Kelleher Msw The Beat of a Different Drummer , 2001 .

[37]  S. Post The Fear of Forgetfulness: A Grassroots Approach to an Ethics of Alzheimer’s Disease , 1998, The Journal of Clinical Ethics.

[38]  Andrea Fontana,et al.  Alzheimer's Disease Victims: The “Unbecoming” of Self and the Normalization of Competence , 1989 .

[39]  P. Kontos “The painterly hand”: embodied consciousness and Alzheimer's disease , 2003 .

[40]  Pierre Bourdieu,et al.  Outline of a Theory of Practice , 2020, On Violence.

[41]  P. Bourdieu,et al.  实践与反思 : 反思社会学导引 = An invitation to reflexive sociology , 1994 .

[42]  Gemma M. M. Jones,et al.  Care-giving in dementia : research and applications , 1992 .

[43]  Alan M Jette,et al.  Knowledge dissemination and utilization in gerontology: an organizing framework. , 2003, The Gerontologist.

[44]  A. Radley Worlds of Illness: Biographical and Cultural Perspectives on Health and Disease , 1993 .

[45]  Pia Kontos,et al.  Ethnographic reflections on selfhood, embodiment and Alzheimer's disease , 2004, Ageing and Society.

[46]  Julia Twigg,et al.  Carework as a form of bodywork , 2000, Ageing and Society.