Patient portals and human values

This paper reports quantitative and qualitative findings from a systematic literature review of user studies of patient portals. A deductive content analysis was performed using six human values identified in a prior study: privacy, confidentiality, security, trust, transparency and agency. Each of the 52 articles in the corpus included invocations of at least one of these human values, supporting their salience for understanding the user experience of patient portals. The paper concludes with a discussion of the implications of this analysis for value‐sensitive design of patient portals, including indicating potential future research directions.

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