'We Just Call Them People': Positive Regard as a Dimension of Culture in Group Homes for People with Severe Intellectual Disability.

BACKGROUND A dimension of the culture in group homes is staff regard for residents. In underperforming group homes, staff regard residents as being not 'like us' (Bigby, Knox, Beadle-Brown, Clement & Mansell, 2012). We hypothesized the opposite pole of this dimension, in higher performing group homes, would be that staff regard residents positively. METHOD Three in-depth qualitative case studies were conducted in higher performing group homes using participant observation, interviews and document review. RESULTS Consistent pattern of staff practices and talk, as well as artefacts, demonstrated staff had a positive regard for residents, who were seen as being 'like us'. Explicit and continuing attention was given to sustaining positive regard for residents in everyday staff practices and to turning abstract values into concrete realities. CONCLUSIONS This positive cultural norm was established, operationalized and embedded through structures, such as a formal policy about language, and processes such as peer monitoring and practice leadership.

[1]  M. Knox,et al.  Identifying good group homes: qualitative indicators using a quality of life framework. , 2014, Intellectual and developmental disabilities.

[2]  C. Bigby,et al.  Implementation of active support in Victoria, Australia: An exploratory study , 2013, Journal of intellectual & developmental disability.

[3]  M. Knox,et al.  Uncovering dimensions of culture in underperforming group homes for people with severe intellectual disability. , 2012, Intellectual and developmental disabilities.

[4]  C. Bigby,et al.  Social interaction with adults with severe intellectual disability: having fun and hanging out. , 2012, Journal of applied research in intellectual disabilities : JARID.

[5]  K. Rummery A Comparative Analysis of Personalisation: Balancing an Ethic of Care with User Empowerment , 2011 .

[6]  R. Schalock,et al.  Supported Accommodation for People With Intellectual Disabilities and Quality of Life:An Overview , 2010 .

[7]  H. Reinders,et al.  The importance of tacit knowledge in practices of care. , 2010, Journal of intellectual disability research : JIDR.

[8]  J. Beadle‐Brown,et al.  Outcomes in different residential settings for people with intellectual disability: a systematic review. , 2009, American journal on intellectual and developmental disabilities.

[9]  C. Bigby,et al.  'It's pretty hard with our ones, they can't talk, the more able bodied can participate': staff attitudes about the applicability of disability policies to people with severe and profound intellectual disabilities. , 2009, Journal of intellectual disability research : JIDR.

[10]  C. Bigby,et al.  Position statement on housing and support for people with severe or profound intellectual disability , 2009, Journal of intellectual & developmental disability.

[11]  Helge Folkestad,et al.  The sociology of acceptance revisited: "there must have been something because I grieve so!". , 2008, Intellectual and developmental disabilities.

[12]  J. Beadle‐Brown,et al.  Effect of Service Structure and Organization on Staff Care Practices in Small Community Homes for People with Intellectual Disabilities , 2008 .

[13]  Christine Bigby,et al.  Known well by no‐one: Trends in the informal social networks of middle‐aged and older people with intellectual disability five years after moving to the community , 2008, Journal of intellectual & developmental disability.

[14]  R. Stancliffe,et al.  Chapter 23. Residential Supports , 2008 .

[15]  S. Toogood,et al.  Australian implementation and evaluation of active support , 2007 .

[16]  Joy L. Johnson,et al.  Othering and Being Othered in the Context of Health Care Services , 2004, Health communication.

[17]  Elizabeth Gillett,et al.  Investigating Organizational Culture: A Comparison of a ‘High’‐ and a ‘Low’‐Performing Residential Unit for People with Intellectual Disabilities , 2003 .

[18]  Guizzo Bs,et al.  [The software QSR Nvivo 2.0 in qualitative data analysis: a tool for health and human sciences researches]. , 2003 .

[19]  Jenny Morris,et al.  Impairment and Disability: Constructing an Ethics of Care That Promotes Human Rights , 2001, Hypatia.

[20]  K. Järbrink,et al.  Quality and costs of supported living residences and group homes in the United Kingdom. , 2001, American journal of mental retardation : AJMR.

[21]  C. Hatton,et al.  The adaptive behavior scale-residential and community (part I): towards the development of a short form. , 2001, Research in developmental disabilities.

[22]  J. Bradshaw Complexity of staff communication and reported level of understanding skills in adults with intellectual disability. , 2001, Journal of intellectual disability research : JIDR.

[23]  S. Sevenhuijsen Caring in the third way: the relation between obligation, responsibility and care in Third Way discourse , 2000 .

[24]  S. Croft Creating Locales through Storytelling: An Ethnography of a Group Home for Men with Mental Retardation. , 1999 .

[25]  E. Emerson,et al.  Organizational culture and staff outcomes in services for people with intellectual disabilities. , 1999, Journal of intellectual disability research : JIDR.

[26]  S. Larson,et al.  Staff recruitment challenges and interventions in agencies supporting people with developmental disabilities. , 1999, Mental retardation.

[27]  M. Aman,et al.  The Aberrant Behavior Checklist-Community: factor validity and effect of subject variables for adults in group homes. , 1995, American journal of mental retardation : AJMR.

[28]  W. Wolfensberger The Growing Threat to the Lives of Handicapped People in the Context of Modernistic Values[1] , 1994 .

[29]  Steven J. Taylor,et al.  Relationships with Severely Disabled People: The Social Construction of Humanness , 1989 .

[30]  M. Pollner,et al.  The social construction of unreality: a case study of a family's attribution of competence to a severely retarded child. , 1985, Family process.

[31]  L. Wing,et al.  Systematic recording of behaviors and skills of retarded and psychotic children , 1978, Journal of autism and childhood schizophrenia.