Informing relatives at risk of inherited cardiac conditions: experiences and attitudes of healthcare professionals and counselees

[1]  S. Daack-Hirsch,et al.  Family Communication About Genetic Risk of Hereditary Cardiomyopathies and Arrhythmias: an Integrative Review , 2018, Journal of Genetic Counseling.

[2]  E. Bleiker,et al.  The uptake of presymptomatic genetic testing in hereditary breast-ovarian cancer and Lynch syndrome: a systematic review of the literature and implications for clinical practice , 2018, Familial Cancer.

[3]  Sandi Dheensa,et al.  Limitations and Pitfalls of Using Family Letters to Communicate Genetic Risk: a Qualitative Study with Patients and Healthcare Professionals , 2017, Journal of Genetic Counseling.

[4]  A. Green,et al.  Family Communication in Inherited Cardiovascular Conditions in Ireland , 2016, Journal of Genetic Counseling.

[5]  A. Sturm Cardiovascular Cascade Genetic Testing: Exploring the Role of Direct Contact and Technology , 2016, Front. Cardiovasc. Med..

[6]  M. Weaver The Double Helix: Applying an Ethic of Care to the Duty to Warn Genetic Relatives of Genetic Information , 2016, Bioethics.

[7]  C. Semsarian,et al.  Factors influencing uptake of familial long QT syndrome genetic testing , 2016, American journal of medical genetics. Part A.

[8]  M. Bonduelle,et al.  The impact of an interventional counselling procedure in families with a BRCA1/2 gene mutation: efficacy and safety , 2016, Familial Cancer.

[9]  E. Kuipers,et al.  Genetic testing for Lynch syndrome: family communication and motivation , 2015, Familial Cancer.

[10]  Siobhan M. Dolan,et al.  Disclosing Genetic Information to Family Members About Inherited Cardiac Arrhythmias: An Obligation or a Choice? , 2015, Journal of Genetic Counseling.

[11]  M. Aitken,et al.  Outcomes of a randomised controlled trial of a complex genetic counselling intervention to improve family communication , 2015, European Journal of Human Genetics.

[12]  Sandi Dheensa,et al.  Health-care professionals' responsibility to patients' relatives in genetic medicine: a systematic review and synthesis of empirical research , 2015, Genetics in Medicine.

[13]  K. Ormond,et al.  Evaluating the utilization of educational materials in communicating about Lynch syndrome to at-risk relatives , 2014, Familial Cancer.

[14]  C. Tracy,et al.  HRS/EHRA/APHRS expert consensus statement on the diagnosis and management of patients with inherited primary arrhythmia syndromes: document endorsed by HRS, EHRA, and APHRS in May 2013 and by ACCF, AHA, PACES, and AEPC in June 2013. , 2013, Heart rhythm.

[15]  H. Watkins,et al.  Pre-symptomatic genetic testing for inherited cardiac conditions: a qualitative exploration of psychosocial and ethical implications , 2013, European Journal of Human Genetics.

[16]  S. Ware,et al.  Uptake of Cardiac Screening and Genetic Testing Among Hypertrophic and Dilated Cardiomyopathy Families , 2013, Journal of Genetic Counseling.

[17]  E. Smets,et al.  Informing family members of individuals with Lynch syndrome: a guideline for clinical geneticists , 2013, Familial Cancer.

[18]  J. Duffy,et al.  An exploration of the communication preferences regarding genetic testing in individuals from families with identified breast/ovarian cancer mutations , 2011, Familial Cancer.

[19]  B. Maron Risk stratification and role of implantable defibrillators for prevention of sudden death in patients with hypertrophic cardiomyopathy. , 2010, Circulation journal : official journal of the Japanese Circulation Society.

[20]  M. Westerman,et al.  Informing family members about a hereditary predisposition to cancer: attitudes and practices among clinical geneticists , 2010, Journal of Medical Ethics.

[21]  M. P. van den Berg,et al.  Family letters are an effective way to inform relatives about inherited cardiac disease , 2009, American journal of medical genetics. Part A.

[22]  G. Bonsel,et al.  Uptake of genetic counselling and predictive DNA testing in hypertrophic cardiomyopathy , 2008, European Journal of Human Genetics.

[23]  E. Behr,et al.  Sudden arrhythmic death syndrome: familial evaluation identifies inheritable heart disease in the majority of families. , 2008, European heart journal.

[24]  M. Aitken,et al.  Health first, genetics second: exploring families' experiences of communicating genetic information , 2008, European Journal of Human Genetics.

[25]  D. Amor,et al.  Increased genetic counseling support improves communication of genetic information in families , 2008, Genetics in Medicine.

[26]  L. Aaltonen,et al.  Direct contact in inviting high-risk members of hereditary colon cancer families to genetic counselling and DNA testing , 2007, Journal of Medical Genetics.

[27]  V. Braun,et al.  Using thematic analysis in psychology , 2006 .

[28]  G. Suthers,et al.  Letting the family know: balancing ethics and effectiveness when notifying relatives about genetic testing for a familial disorder , 2005, Journal of Medical Genetics.

[29]  A. Clarke,et al.  Genetic professionals' reports of nondisclosure of genetic risk information within families , 2005, European Journal of Human Genetics.

[30]  S. Humphries,et al.  Cascade testing in familial hypercholesterolaemia: how should family members be contacted? , 2005, European Journal of Human Genetics.

[31]  Marni J. Falk,et al.  Medical geneticists' duty to warn at‐risk relatives for genetic disease , 2003, American journal of medical genetics. Part A.

[32]  J. Kitzinger,et al.  Qualitative Research: Introducing focus groups , 1995 .

[33]  L. Jaeger Family Communication About Genetics Theory And Practice , 2016 .

[34]  A. Kruse [Ethical perspectives]. , 2005, Zeitschrift fur Gerontologie und Geriatrie.